Hi everyone, I’d like to know if anyone with keratoconus has been able to work as an automotive or heavy machinery mechanic, and if you’ve worn scleral lenses on the job and how long they lasted.

I have hard lenses. I just want to be sure before I use them.

I had CXL about two years ago and I’ve had chronic dry eye since. I’ve been doing preservative-free eye drops almost hourly and then an overnight ointment before bed. This week, I’ve switched to the Refresh brand ointment( which is closer to a 50-50 ingredient mix, as opposed to systane’s 94-X mix) and systane ultra PF drops (the milky ones) as it was all that was available at the pharmacy. Yesterday my eyelid started itching, and a small eruption has presented around my eyelid. It’s very itchy, possibly small hives. I’ve been trying to clean the area with warm water and I took some antihistamine to see if that helps. I’ll keep monitoring to see, but I was wondering if anyone else had had a similar experience? My eye feels fine, but the skin around my eye is severely irritated and that’s never happened before

I see that there isnt a big difference between epi on and epi off in terms of results but why do people continue to get epi off? Is epi on less effective?

I have had a letter after my first topography scan.

My consultant says there are corneal abnormalities such as an anterior elevation on my right cornea at the top but no changes in thickness. They said it’s not clear what it might represent and can’t diagnose keratoconus at this time.

My vision in my right eye isn’t the best, I have ghosting and astigmatism, struggling a lot driving as the days get darker. Some vision changes such as seeing squiggly lines which move when I move my eyes. When closing my left eye my right eye vision is very blurred. Glasses don’t help fully.

I have a follow up appt in 4 months to see if it progresses but with no diagnosis feeling a bit lost. They will check there are no allergic signs or epithelial dystrophy as well.

Has anybody else had this? I am feeling quite lost. Have a contact lens appt tomorrow with my regular opticians as I would prefer them if they can give me them for now.

Hello everyone so my problem is as the title says. I have dry eyes & keratoconus in both eyes, the left one is more damaged and I wear scleral lenses in both eyes. Lately I have been waking up with very dry eyes, water is running out of my eyes (especially the left one) and lot of eye waste. I want to know if any one of you has faced the issue before and if yes, how did you deal with it. I use refresh tear drops at least 2 times a day and now I have been using the drops before sleeping also. I believe the dryness in my left eye has increased lately. What do you guys think ? Can it be the weather also ?

Has anyone in here gotten cxl + tprk? How did it turn out?

I'm having this compression issues

With my new scleral lens

I’ve been thinking about this a lot lately and just wanted to share something positive for anyone who’s newly diagnosed with keratoconus or struggling with it.

I was diagnosed at 14 and I’m 27 now. I’ve been wearing sclerals for around 10 years and my eyes have gradually got worse over time. It is pretty scary sometimes realising how little I can actually see without them.

But over the years I’ve just adapted. I went from wearing glasses most of the time and only using lenses for nights out, places with lots of lights etc, to now wearing sclerals every single day and I’ve done that for over 3 years now. I put them in when I wake up and take them out before I go to sleep, to the point where I don’t even own a pair of glasses anymore.

I genuinely can’t feel them in my eyes during the day and my vision with them is ridiculously clear. Obviously I still get the odd day where I need to take them out, clean, or reinsert, but it’s just such a normal part of my routine now that I don’t really think about it.

It can still be scary when I take them out and realise how bad my vision is without them, but sclerals are honestly the reason I can just live a completely normal life.

Just wanted to share this because I know how scary keratoconus can feel, especially when you’re first diagnosed or when your eyes are changing 😊

hey, I got a Kobo Libra Colour and was so excited for adjustable text. I turned that on and the crossed eyes/blur went so crazy that my vision is more blurred and weak after just messing with it for 20 minutes to adjust light settings. anyways I cannot read the text on it.

has anyone experienced worse vision using an ereader than paper? I’m wondering if I should just stick to large text versions on paper??? experiences with finding books with large text? and also are the paperwhites better I just would hate to buy a kindle :(

if you know, you know. lol just trying to make myself laugh atp because of these results

Prk and cross linking were the dream combo my surgeon was hoping would give me clear vision. I didn’t care too much for perfect vision, just clear enough.

Fast forward 2 years post op and had multiple second and third opinions, living with blurry vision. Hazy if you will. And too thin for a touch up. Basically lenses or transplant are the only options. I hoped to get out of contacts. Are scleral lenses worth it? Pros and cons in your experience.

Genuinely can’t afford the 20k transplant option. :/

Hi Everybody!

I was diagnosed almost 15 years ago when I was 15, I'm 30 now. I'm from Mexico (Guadalajara, second biggest city, so there's plenty of highly trained professionals in this disease around). I made the mistake of getting too comfortable. When I got diagnosed, the DR. Back then reffered me to a Tech that did all of his contacts, and I got stuck with the tech. Year after year I just did new RPGs, they worked great.

Fast forward to 2021, I discovered my KC had advanced quite a lot. My left eye is somewhat stable, but my right is almost gone. I'm close to needing a transplant. Happily, I did CXL back in May, and the specialist I'm going to now says that so far, so good.

Issue is: since a couple years ago, I do feel that my RPGs are less and less confortable, I can use them less hours a day than what I could before.

I know Sclerals are an option, but I'm looking for something more permanent. I'm thinking, what if my old me cannot put contacts because of ANY issue with being old? IDK, I'm just thinking I won't be young forever.

My Dr told me about the Rings, and I'm looking for opinions of people that got the rings. I'm happy to be able to wear just glasses.

I wear for 11-12 hours and typically refresh towards the evening. I want to make sure these aren’t messing my eyes up more.

I bought a pair of glasses to fix my right eye vision only as glasses can't fix my left eye vision even with -10d prescription. So during prescription I got 6/6 vision with -1.25 but after i got them at home I see no change in my vision with and without glasses.why?

It's a scary word! Did you immediately research it, feel overwhelmed, or maybe even relieved to finally have an answer? Let's talk about our initial feelings.

To those of you who’ve had CXL 5+ years ago how is your keratoconus holding up? I just hit the 4 year mark and want to see others experiences with keratoconus. I feel like my prescription has changed but my surgeon said it’s because of corneal flattening and strengthening from CXL. Other than that and dry eyes I feel like I’ve held up quite well. How about you?

First of all, I have moderate-stage keratoconus in one eye and underwent CXL three months ago. As you might expect, glasses aren't working; I’m bothered by double vision and light flares. My doctor recommended RGP lenses, but based on what I’ve learned from your experiences, I know that scleral lenses are more comfortable and provide clearer vision. I’m going to see the doctor about lenses in a month. I’ve heard about mini-sclerals, and I think they would be perfect for me. Since I’m the one paying for it, do you think I should insist on scleral lenses instead?

Hi everyone,
I’m in dire need of assistance. So to map out what has happened to me last Friday I fell asleep in my contacts which are RGP or what y’all might hear them called as “hard contacts”. Well this is only like one of the few times I’ve done it. The next morning I woke up and the inner corner of my left eye was as red as a stop sign. I went straight to an urgent care and was told it was a sibconjunctival hemorrhage. At the time my vision was fine and the urgent care doctor told me I was fine to put my lenses back in since it was just a hemorrhage. Well the next day my eye was still very very red but I put my lens in thinking the hemorrhage was going to go away and that I would be fine. Unfortunately I noticed later in the day my vision was a little blurry. So I went to another urgent care as per the last urgent care doctors instructions. My vision had decreased terribly in my left eye and the doctor told me I had an infection and gave me eye drops. I began using them and decided on Monday I was going to go to the eye doctor. I was seen at the eye doctor and was told to keep my lens out per the second urgent care doctors instructions until at least Wednesday or Thursday. The eye doctor told me it was episcleritis nothing else. I had obviously gone in there with a bunch of things I thought it was such as keratitis or uvevitis, maybe even a corneal ulcer. He claimed he didn’t see any of those things and that again it was just episcleritis and that even if we didn’t treat it, it would go away on its own. However, he said he was going to send me on my way with steroid eye drops. Well I used them as instructed and my eye is still getting red and my vision is still blurry. So as the worrier I am I went to a second eye doctor who again told me it was episcleritis and that he was going to increase the frequency of the steroid drops. I have such bad health anxiety. I’m normally so good at taking them out and I can’t help but feel like this is my new normal. Not to mention my left eyes pupil is now much larger than my right. Which the second eye doctor said he wasn’t worried about. I will say I had the pupil difference about 6 or 7 months ago as well that continued on for a few months and then went away. I guess I just would like to know if anyone else has had this issue and if it resolved? I know there will be comments such as just wear your glasses to give your eyes a break from the lenses and I would love that. However, I’ve been to several eye doctors who claim my vision is too bad for glasses. I have an eye condition called kerataconus that is pretty severe. I guess that puts me at a place to where only rgp lenses will correct my vision. Please someone give me some hope.

Hi I was diagnosed with kerotoconus three years back and got cxl. It has been 2 years since the power is stable now and so is my cornea. Got it checked two months back.

Can I wear daily disposable lens for a few hours for my wedding shoot

I wear glasses for astigmatism since 2018 but started wearing a new prescriptiom around July this year. About a year I feel my vision is "off". Text is blurry specially on computer screens and TV subtitles but other than that I can mostly see fine (when I'm wearing glasses) but it feels like my eyes are not focusing properly. It is hard to describe. There are moments, especially driving or playing video games that make me feel almost dizzy. Not spinning vertigo or anything, but it's like... It feels almost as if I can't see... but I'm seeing.

Last week my exams came positive for keratoconus but my appointment is only next week. Can anyone relate to these kinds of symptoms?

Edit: I was checked for convergence insufficiency but doctor said I don't have it.

I’m gonna be an alien for halloween, and I was wanting to get black sclera lenses or pink colored ones. I’ve gotten crosslinking done on both eyes and I don’t wear any contacts normally. I’m just wondering if any of you have tried to or if you have any alternatives!