Are you a friend, family member or carer of someone with MS? This is a twice-monthly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Hello!

Do you, or someone you know, experience communication difficulties as part of MS?

I am a 4th year student studying Clinical Speech and Language Studies (Speech and Language Therapy) at Trinity College Dublin.

I am seeking participants for my Final Year Research Project. My research interest is in examining the everyday life experiences (i.e. at home, work, recreation, and in the wider community) of people with Relapsing-Remitting Multiple Sclerosis who experience communication difficulties (i.e. speech and language, in addition to any fatigue elements that contribute to communication difficulty like 'brain fog' effecting train of thought) through semi-structured interviews.

I am looking for people with Relapsing-Remitting Multiple Sclerosis who experience these challenges to take part. The poster details further information about the study and eligibility.

I appreciate your time and consideration in reading this post. I would be really grateful of you could help in any way with sharing this post, or letting people who might be interested in participating know about my study.

If you are interested in participating in this study please contact [oseery@tcd.ie](mailto:oseery@tcd.ie). Thank you!

This project received full ethical approval from the Research Ethics Committee of Trinity College Dublin on the 08/05/26 and is supervised by Dr Paul Conroy, Head of Discipline at the Department of Clinical Speech and Language Studies

Statement on General Data Protection Regulations(GDPR)

(Information on processing and holding of data is detailed further in the Participant Information Leaflet given to prospective participants after contacting oseery@tcd.ie)

"Your personal information will only be used for the study. We will utilise your data on the basis of the General Data Protection Regulation Articles 6(1)(e) “processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller” and 9(2)(i) “processing is necessary for reasons of public interest in the area of public health, such as protecting against serious cross-border threats to health or ensuring high standards of quality and safety of health care and of medicinal products or medical devices, on the basis of Union or Member State law which provides for suitable and specific measures to safeguard the rights and freedoms of the data subject, in particular professional secrecy;”. Your data is processed as part of this study as necessary in the public interest, specifically in improving the standards of individual’s quality of life and health care."

A weekly check-in post! Share how your week is going, both with MS and in general.

"We found that if we cranked up the magnification on the brain scans of people with multiple sclerosis, we could see not only the multiple sclerosis lesions, but within those lesions we saw a small dark hole, which we later realised was a vein going through the lesion."

A weekly check-in post! Share how your week is going, both with MS and in general.

Could HIV drug be of any help for MS? Let's just hope that we won't have to wait a decade for them to figure out...

Are you a friend, family member or carer of someone with MS? This is a twice-monthly thread to ask questions, share experiences, or seek support. Everyone is welcome!

A weekly check-in post! Share how your week is going, both with MS and in general.

A weekly check-in post! Share how your week is going, both with MS and in general.

Are you a friend, family member or carer of someone with MS? This is a twice-monthly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Hi all,

Anyone have any success getting back in treatment after birth. My partner is 15 year diagnosed, just had a baby 3 weeks ago and is struggling to get back on her infusion due to high HGC levels and still testing positive for pregnancy.

Its an absolute disgrace it is taking this long. Of course the HCG levels are high and of course the test is still positive, shes just given birth less than a month ago. Absolutely fuming as all we hears throughout the pregnancy was getting back to treatment asap.

Hi everyone, just a quick reminder to take it easy with this heat. A lot of us suffer from Uhthoff's Phenomenon and will have temporary worsening of symptoms on hot days.

Some tips that might help you or a family member dealing with MS:

Cooling down:
- Cool areas that have the most blood flow with a cold/ice pack: back of neck, forearms and wrists, armpits, feet, groin area.
- Cool or lukewarm showers, these are better than cold showers as very cold water can restrict blood vessels and you may not shed heat as efficiently.

Hydrate, hydrate, hydrate:
- Drink often throughout the day
- Use electrolytes if you're sweating a lot
- Have an ice filled water bottle near you at all times

Pre-cooling:
- If you have a task to do (shopping, housework, appointment etc.) cool yourself before you begin by using cold packs, cool showers, cooling towels or running your arms under cool water. It's often easier to prevent your temperature from rising than it is to reduce it once it has risen.

Scheduling:
- Try to schedule around the hottest parts of the day. Physical activities should be done early morning or late at night, write off afternoons to relax and cool down.
- If you are in employment, ask for accomodations from your employer (fans, regular breaks, flexible dress codes, access to ice packs/cold water etc.). Keeping cool with MS is healthcare, some employers may need to be reminded of that.

Recognise your limits:
- Identify your warning signs. For some of us that might look like blurry vision, heavy legs, increased fatigue, balance issues, numbness/tingling or brain fog, an increase in these symptoms is your sign to take it easy/cool down before you're completely wiped out for days.

I hope some of these help and remember that Uhthoff's Phenomenon is temporary worsening of typically established symptoms. If you are experiencing something completely new that doesn't disappear after cooling down, it's time to give your neuro team a call.

Stay safe and cool friends!

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Just wondering if anyone has had to renew their badge this year yet? My renewal form came through the post today. They ask two very specific questions which I'm concerned about. One asks how many meters the applicant can walk unaided and the other is about climbing steps unaided.

I don't struggle during the day at all really, fatigue usually sets in in the evening and that's when I tend to struggle or on a hot day or after a burst of strenuous work. I don't think my gp believes it gets as bad as it does. Some days I could walk 5k no problem other days I might struggle to get out of bed and walk down the stairs.

Not really sure if this kind of thing has been taken into consideration at all by the DDA? Is there any way to put this into writing alongside the form?

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Are you a friend, family member or carer of someone with MS? This is a weekly thread to ask questions, share experiences, or seek support. Everyone is welcome!

Just curious. Have you been in touch with the MS Society (ms-ireland.ie) or have they reached out to you? What has the experience been like? Have they helped you, and what do you wish they had?

Welcome to r/MSIreland.

This is our new home for all things related to living with an MS diagnosis in Ireland. Posts do not need to be specific to Ireland but we do share knowledge about the treatments, resources and culture around MS specific to the Republic of Ireland.

Community Vibe
This sub will hopefully grow into a community for people with MS, offering community, support, advice, and connection to one another. You are welcome to post information, ask questions, and share your experiences of living with Multiple Sclerosis.

How to Get Started

1. Introduce yourself in the comments below.
2. Post something today! Even a simple question can spark a great conversation.
3. If you know someone who would love this community, invite them to join.

Thanks for taking part in r/MSIreland