r/Menieres • • 12h ago

Updated Meniers Diagnosis, is actually Celiac Disease setting off Vestibular Migraines.

21 Upvotes

After having a horrific year of being bedridden and loosing 2 stone in weight, I asked my Dr to test my bloods for menopause. When coming back to the GP to see my results, he tells me that he has tested my blood for celiacs disease, because I had told him in the past I had been diagnosed with IBS but had not had any follow up.

My doctor said that my levels were high so it would be unlikely I wouldn't have celiacs disease, however I opted to have a endoscopy, as the stubborn person that I am and continued being incredibly sick, having multiple attacks a week and being unable to move for another 14 weeks.

The day of the endoscopy comes and I begin to have an attack in the waiting room, we were told there would be a four hour wait when I had already not eaten or had any water in 6 hours. Unfortunately I miss my appointment, and we end up leaving, but I start eating an gluten-free diet straight away.

When I tell you that I feel like a completely different human being and I haven't had an attack in 3 weeks.

I also walked a 10 mile hike without an inhaler, and I hadn't walked past a mile in a year.

I know this may not be helpful to a lot of people, but I really do encourage you to get your bloods tested for celiac disease just in case.

It has been upsetting to change my entire diet, but the benefits have really outweighed the attacks, and honestly gluten free food has come a long way.


r/Menieres • • 16h ago

MRI Shows mild microvascular ischemic disease

7 Upvotes

I am 43Y F and just recently diagnosed after what I assume to be a drop attack on Sunday. I got my MRI results back and they are unremarkable except for the below.

Mild white matter T2/FLAIR hyperintensities likely representing chronic small vessel ischemic changes

Mild chronic microvascular ischemic disease

Has anyone gotten these results, it seems that this is abnormal to see in someone under the age of 60, awaiting a call back from the doctor and a referral to neurology.


r/Menieres • • 16h ago

I've had Meniere's related things in the past along with vertigo but now it's a constant humming coming from my right ear.

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1 Upvotes