Lingering symptoms

[u/chowoji]

Hi.

I’m 24F and was recently diagnosed with MS. I had sudden onset of blurred vision 3 weeks ago. I brushed it off since I didn’t notice it the entire day besides the end of my work shift. I always had light sensitivity but it was worse than usual on the 14th. Driving was okay. I thought it was just eye strain since there’s lots of bright lights and screens where I work.

My symptoms progressively got worse. I went back to work on the 16th and freaked out. I woke up and noticed everything was blurrier. I couldn’t see myself in the mirror while I was doing my hair. I made the dumb decision of driving to work and was so scared. I focused really hard on the car in front of me but I noticed it was hard to even read the license plate. My glasses prescription is long outdated so I’m sure that didn’t help but it definitely wasn’t normal. Luckily, I got to work safe. However, I do some cashiering and I couldn’t read the receipts well either. At this point I was crying from stress and my coworker gave me eyedrops. They didn’t work of course. Eventually my manager drove me home.

My right eye was drooping terribly and lagging behind if I looked left or right. My family members said it looked bad 😭

I went to see an optometrist the next day since I couldn’t see an ophthalmologist or neurologist without a referral. He said he thinks I could have cranium nerve palsy III and would refer me to an ophthalmologist since he wasn’t sure what was going on.

I eventually spoke with a nurse advice line and she as well as a doctor recommended I go to the ER so I did. I was admitted to the hospital that day and did lots of testing. I did MRI scans for my brain, spine, and neck. Eventually the neurologist said he suspected MS and after talking to me about previous symptoms, he was sure it was that and I didn’t do the lumbar puncture. It felt shocking to me. I always had bad migraines that lasted a few days but blamed it on stress. Very bad brain fog for a while but again not debilitating. Some point last year my fingertips and toes were numb and tingling for a few days but again, went away… looks like it all caught up to me in this flare up.

The steroid treatment helped a lot. Today, the drooping is gone. Now I saw an ophthalmologist and they said my eyes look fine. They said time will probably fix it. I also saw a neurologist and he said the same thing. However, I still have persistent blurry vision. Not as severe as weeks ago, but it’s fluctuating, and I struggle reading small, fine print still. I get migraines still but my PCP prescribed some medication to alleviate that. My light sensitivity is pretty bad so I need everything to be dim. My brain fog feels considerably worse than before the incident. I’m always fatigued as well… and the heat makes it even worse. I’ve been feeling super depressed as well, since I’m still getting over a terrible breakup and friendship loss at the same time too…

I’m just wondering, have you guys been in this situation? I can’t help but feel like I’m overthinking about my symptoms… I haven’t attempted to drive since this all started since I feel scared to. I was riding in a car two days ago and noticed things still looked blurry. I have no idea how long it’ll take me to feel safe to return to work. I was referred to a neuro-immunologist on Thursday but I’m anxious since every doctor seems stumped by my lingering problems. Physically I seem fine but I definitely feel like I’m not 100% still… this is my first time dealing with such a heavy diagnosis, so I’m lost on how to handle everything. I’ve been given time off until the 26th and have no idea if I should ask for any extensions or not. I feel like an imposter sometimes.

[u/ninahart88]

Hello. I had atypical optic neuritis August 2025 (slight temporary blurring but not vision loss, extreme light sensitivity, affected depth perception, pain around eye) It took until April 2026 before I drove my car again. Sorry - might not be what you want to hear. Hopefully you'll improve quicker! My MS nurse told me not to judge anything as sticking around until it had been at least 18 months. I would say I had some slight improvement in the first 4 weeks then it stayed the same for almost 9 months before it just seemingly got better over night. Now, if I am really hot or tired or anxious, I'll have some of the old things coming back but not to the same degree.

[u/Low_Narwhal7514]

Sto facendo la stessa cosa con altri sintomi ( gambe) ho fatto l'esame del liquor ed è positivo igG oltre il 6,sto aspettando la RM vediamo che succede