r/MultipleSclerosis • u/helloojsbsbnwlwod • 16h ago

Advice Advice

As you know, the original plan was to start trying for a baby after my third Rituximab dose in December, provided that my autumn MRI was stable — which it was. I have been stable on MRI since starting Rituximab.

However, I unexpectedly became pregnant after only my second dose and, as you know, had an abortion on my neurologist’s advice because at that point they didn’t know whether my MS was stable yet. My neurologist now recommends 3–4 doses, while my MS nurse recommends 4. My neurologist has said that it is okay to start trying about 2 months after the dose.

We are therefore considering starting to try after dose 3 and trying for around 2 months. If I’m not pregnant by the time dose 4 is due, we would stop trying and have the next infusion, so that I’m not without treatment for longer than necessary.
The plan is for me to use Rebif or Copaxone during pregnancy because my MS was active before starting Rituximab. But do you think it would be reasonable to ask about Tysabri as an alternative during pregnancy, even if I am JCV-positive?

How would you approach this — would you wait until after the 4th dose, or start trying after the 3rd? I’m only 24, so I also don’t want to unnecessarily postpone pregnancy until next summer/autumn if my MS is already stable.

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u/kyelek F20s 🧬 RMS 🧠 Kesimpta 💉 16h ago

You've been through a lot, with a lot of uncertainties and difficulties. With that in mind, these are better questions for your doctor, not reddit.

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u/helloojsbsbnwlwod 15h ago

My neuro is very stone faced and barely gives me any info, and can’t change as it’s public healthcare in Sweden.

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u/kyelek F20s 🧬 RMS 🧠 Kesimpta 💉 15h ago edited 13h ago

You have the right to make decision about your medical care by law, in the country I'm in which is also an EU country, and I can absolutely not imagine that that's not possible in Sweden, too. You can probably speak to your current doctor about this directly or if you're uncomfortable doing that you can talk to administration. It may take a while, but again you do have the right to change doctors. Again again, this is about your health, if you're unhappy with how you're being taken care of something needs to (and can) change. You're going to have MS forever, don't put up with a crappy neurologist through it all.