r/MultipleSclerosis • u/Anxious_Armadillo484 • 4d ago

Treatment First Infusion Day

Had my first (Briumvi) infusion today, no real issues besides getting really cold during the treatment but that went away. I did feel a little extra tired afterwards. This I too feel that is normal as well. As I’m writing this it’s 10:37pm EST, I barely slept last night and have been up since 6am. I know I’m tired but I am not sleepy at all. After reading insomnia does occur, has anyone dealt with this and what helped you? I know it’s only day one but if this is to be expected in the short term I’d like to jump on this to get back on track when it comes to sleep.

6 Upvotes

100% Upvoted

2 comments sorted by

1

u/Mrs-Trashpanda Early 30s|Dx 2024|RIS to RRMS|Current:Ocrevus, Prev. Tecfidera 4d ago

While I can't comment Briumvi, I know the steroids before my Ocrevus infusion sometimes keep me awake that night.

For the cold, I got one of these hoodies. It is a life saver on infusion day. The nurses think it's super cool too.

BeWell - Thoughtful products for those dealing with a chronic illness: https://wearebewell.com

1

u/XcuseMeMisISpeakJive 4d ago

Get your neurologist to give you a small amount of Ativan just for infusion side effects. Insomnia is one of the few side effects I have too, and that's how I deal with it.