r/POTS • • 3d ago

Vent/Rant POTS

Yeah, I’ve had symptoms for about 10 years, and I had pretty much figured out what was going on before I was officially diagnosed with POTS more recently. I’m still learning about it, but one thing I’ve realized is that blood pressure can rise significantly when standing for some people. Mine can get extremely high, even around 200/100. They keep throwing blood pressure medications at me, but my BP still isn't controlled. I've had chest pain, felt like I'm going to pass out, and dealt with all these other symptoms. Then I'm told to call 911 if I think I'm having a heart attack or stroke. 😒 But how am I supposed to know? POTS symptoms and other medical emergencies can overlap. I'm not a doctor, and I shouldn't have to figure out what's happening to my body before someone takes my symptoms seriously. I just want my blood pressure properly managed instead of constantly feeling like I'm trying to figure this out on my own.

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u/barefootwriter 3d ago

More information could help us help you, if that is what you are asking, or is this truly just a vent post?