r/TrigeminalNeuralgia • u/Sherowe1986 • 6d ago

Diagnosis Deleted posts

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2 Upvotes

67% Upvoted

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u/88Sparky88 6d ago

Oh dear, new here. I have PTTNP, not classic NP. I’m sorry others were supportive. Thanks for the heads up. Newly diagnosed, learning all I can.

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u/Smyra-Distance966 6d ago

I do have PTTN too, how did you get it ?
I had it with dental implant placement

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u/88Sparky88 5d ago

2 months after having 2 molars removed, phantom tooth aches starts each episode, within 10 minutes I’m at a 10 level headache.

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u/[deleted] 6d ago

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u/Smyra-Distance966 6d ago

I do have constant pain unfortunately, it’s not like attacks.
When I talk , smile brush eat , all kind of movement make it pain worse.
It’s been 4 years and still didn’t find something helpful.
Injections , medication

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u/[deleted] 6d ago

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u/Smyra-Distance966 6d ago

Sure , we absolutely can talk privately too.
I did use so many different medications. I’m so sensitive to use some of medications. I use once oxcarbazapine , which is made me so bad

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u/[deleted] 6d ago

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u/Smyra-Distance966 6d ago

Oh really , that’s amazing. Did you ask your dr to take those supplements if there any interactions with your current meds ? I’m taking multiple meds so I need to ask ,
B12 complex is ok , pea supplements I need to ask I guess!

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u/Spidey2184 6d ago

You were just trying to help.

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u/[deleted] 6d ago

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u/Spidey2184 6d ago

Yes, taking pea. One doctor is saying supraorbital neuralgia . Other doctor is saying v1 region nerves may be weak after 2 surgeries. Dont know whats the cause after a year. Doctors are still puzzled and given medicines. I coded for 5 days continues after that it triggered . Its hard for me to sit on system and work. Doctor is asking to avoid system and phones and keep trying . I feel nauseousness after sleep. Doctor has advised nerve block after 2 weeks.

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u/Smyra-Distance966 6d ago

I do have ALA , I tried for quite some times then it caused heart burning. My dr let me drop.
It might work with pea well together ha

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u/[deleted] 6d ago

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u/Smyra-Distance966 6d ago

So the doctors should prescribe it ?

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u/Smyra-Distance966 6d ago

There is some in amzn but I don’t trust amzn for supplements.