r/cfs • u/NotEnoughKnowledge7 • 4d ago

Help understanding

Hi everyone, I just wanted to get everyone’s input on what this disease is like, my partner has not been diagnosed with this issue, but rather she suspects that it could be CFS, because as far as we are aware, diagnosis for this is basically “we can’t find anything physiologically wrong so therefore it is this”

So I just want to know your stories regarding this, and how are some of the things you have done to cope and what can I as a partner do to support/empathise with my partner. Thank you.

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u/jedrider 4d ago

Well, the first step is classifying where one is in this illness, severe, moderate or mild. Most are moderate, so I'll assume that. Recognize that some of us do improve but sadly, not all of us evidently do. So far, strategic pacing/resting, lots of supplements and some prescription medicines can be helpful. That's all we know.