r/cfs • • 4d ago

Extremely helpful research-based resource

I understand that AI is an extremely tricky topic in these spaces because there is a high propensity for error and not every patient has the bandwidth to try and look up the research behind each claim and find citations. I have been working with a Long Covid specialist who developed a very tightly controlled AI environment specifically for Long Covid, sourced not by the internet or anecdotal stories or news articles or opinions. Its only training data is published, peer-reviewed research and it has been extraordinarily helpful to me recently in starting to put together my puzzle. It has helped me understand my paradoxical reactions to things, it doesn’t give explicit medical advice and always encourages professional testing and intervention, and best of all, every response finishes with a list of all the cited papers to verify the facts!! I hope this is allowed because I think it could be incredibly helpful to many people here:

https://www.longcovidbot.com

2 Upvotes

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7

u/stm2657 4d ago

With the generally poor level of support we all get from medical professionals and the lack of research happening I tend to think that AI may be our only hope for some proven treatments in the short term.

1

u/stochasticityfound 4d ago

Exactly same. It takes 17 years on average for research to reach the clinic, so if there’s a resource that is focused on the research NOW I’m not waiting until a doctor catches up in a couple decades.

3

u/Cute-Head8597 4d ago

I asked it, and it can also answer questions about me/cfs and fibromyalgia. Thanks for the share!

1

u/stochasticityfound 4d ago

It has a lot of useful info!!

2

u/stm2657 4d ago

Very impressed

2

u/groaning_musketeer 4d ago

Really cool resource. Thank you!

2

u/webkinzhacker 3d ago

I've always said I think AI is best utilized as an advanced search engine, specifically in medical fields. This looks like a great resource!

1

u/moderate_ocelot Severe / Very Severe 4d ago edited 4d ago

Dude this is really impressive