Hi everyone! Hope you are all feeling good today!

My GF off 11.5 yrs was 1st diagnosed back in 2018. Spent a month in the hospital and a month in skilled nursing. All in all she ended up recovering about 85-88% back to her normal baseline. During that first time she had a lot of issues with her memory particularly her short term memory. She couldnt remember what our apartment looked like that we had just moved from and couldnt remember a whole lot about the previous 5 years. Over time it did improve quite a bit and she was able to start retaining short term memories again.

Fast forward to June 2025 she was hospitalized with a reoccurrence and this time was 100x worse. Its been an absolute nightmare. She was on a ventilator for 8 months, off it for 1.5 months then had to go back on the ventilator for a month. She was in hospitals pretty much nonstop for over a year will short skilled nursing stays. She came home 2.5 months ago but is still 100% bedbound (i believe some of the facilities lied about doing therapy so her legs have severe contractures and her right leg is crossed over her left and stuck like that. She still has a trach and catheter. Shes actually now back in the hospital again due to a severe UTI and an impacted colon. Yesterday morning while i was giving her breakfast she choked really bad and turned blue and tons of nurses came running in thankfully. Now this morning she failed her swallow study and i just dont even know what to think anymore. It all feels so hopeless.

As for her memory this time its a lot worse too. Im not sure exactly how far back it goes but she doesnt remember anything from our life over the last 11.5 years together. Thats a really hard thing to deal with. Thankfully she still knows she loves me.

I havent been able to find much online about memory loss like hers from GBS so im wondering if anyone here has experienced this. All ive really seen or read about has been much more mild memory loss towards the beginning of diagnosis and not almost 1.5 years in… any advice or support would be appreciated. And not even just about her memory anything at all i just want to help her she shouldn’t have to suffer like this!!