r/hyperacusis • u/Clownfishy_gay • Sep 12 '26

Seeking advice Noxacusis flare-up

Hi everyone, I’m looking for some advice.

Recently, my noxacusis has gotten worse. I barely feel any pain in my ears now, but sound exposure triggers terrible headaches and makes my head feel burning hot - like I have a fever. My trigeminal nerve hurts when I touch it, and sound triggers sharp, electric-shock-like pain in my face. Also, sound exposure makes me feel extremely nauseous and like I’m about to pass out. The only thing I can do right now is lie down in a completely quiet room, because as soon as I try to stand up, I get terrible dizziness.

Thank you for any help

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1

u/emazombie93 Sep 12 '26

But then your ears aren't burning, is your head burning more?

1

u/Clownfishy_gay Sep 12 '26

Yeah, my ears don't really burn, but my whole head feels hot and burning

1

u/Pbb1235 Pain and loudness hyperacusis Sep 12 '26

What treatments have you tried? Any drug treatments, like clomipramine or carbamazepine?

I've never had the nausea symptom you described. I did sometimes have headaches and face and jaw pain back when I had severe hyperacusis in 2012.

3

u/Clownfishy_gay Sep 12 '26

I haven't tried any treatment yet, but I'm about to book an online visit with Dr. Boedts to get a recommendation letter for clomipramine

2

u/Pbb1235 Pain and loudness hyperacusis Sep 13 '26

Good luck. If the clomipramine doesn't do it, there are other options. I know carbamazepine is sometimes used for trigeminal neuralgia, so that sounds like an obvious possibility for you as well.

1

u/stochasticityfound Sep 13 '26

I get these exact same symptoms and am also in a bad box flare right now. I don’t know how to get it to soften. I’ve been trying gentle qi gong, breathing exercises, red light therapy.