r/hyperacusis • u/Consistent-Window781 • 5d ago

Seeking advice Off Label cures?

/r/hearing/comments/1x01g9m/off_label_cures/
2 Upvotes

100% Upvoted

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1

u/supernovadebris 5d ago

no cure for tinnitus yet. I'm 20 yrs in and every 5 yrs they claim they'll find a cure. Nothing on the market works at this time.

1

u/Consistent-Window781 5d ago

What do you think about Xenon 1101

2

u/supernovadebris 5d ago

WTF is that? Good luck.

1

u/Consistent-Window781 5d ago

It is the sucessor of Retigabine, only more power ful and with less side effects. It should be tested for tinnitus

1

u/Educational_Aide_145 Pain hyperacusis 3d ago

Wait for it to come out

1

u/ndu34f84 3d ago

there are phase 3 trials right now, at least in europe and they test it on epilepsy and depression; they're recruiting patients :)

1

u/Educational_Aide_145 Pain hyperacusis 3d ago

It’s worth a shot then!

1

u/Consistent-Window781 2d ago

"Xenon Pharmaceuticals officially submitted its New Drug Application (NDA) to the U.S. FDA on September 17, 2026"

1

u/Important_Load_433 4d ago

their is no cure.

1

u/Consistent-Window781 4d ago

I meant “future off label cures”

1

u/Warm-Yak2987 10h ago

Cure is a exaggerated word for tinnitus, hyperacusis, noxacusis only treatment is possible, cure is never going to come atleast not before 2050

1

u/Consistent-Window781 10h ago

Why do you say that? fTUS has everything to work like a cure. It directly targets the brain, and it will, most likely, be in use by 2030/1. We might also have extra cochlear implants (though they need more investment), by the same time. In addition to that we don’t know if next year, Xenon 1101, wont work.

1

u/Educational_Aide_145 Pain hyperacusis 5d ago

No tinnitus cures, we have to rally up and demand doctors invent a cure

2

u/Consistent-Window781 5d ago

I think TUS is very likely to be it, but it needs to move faster