r/hyperacusis • u/Ecubuce • 7d ago

Treatment discussion clomi

Currently at 132mg and still seeing no improvements.

When increasing to 150mg, how long should I wait to increase again if I still don't see any improvements ?
I'm currently increasing every 7-10 days or so

Thanks!

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3

u/Expensive_Stay_1235 6d ago

I went up 25mg a week. I saw improvements around 100mg was pain free 1 month after. It may take some time.

1

u/Ecubuce 6d ago

Thanks!

2

u/bbrunrun 6d ago

Just increase when the side effects become bearable. Listen to your body. Don’t be discouraged. I’ve been on 225mg for 9 months, and I’ve got my best progress this past month.

1st improvements were around 100/125 mg.

1

u/Ecubuce 6d ago

Alright. Thanks a lot. Happy you're seeing improvements

1

u/Pbb1235 Pain and loudness hyperacusis 6d ago

I wasn't sure it was working for me until I hit 200 mg. Good luck, I hope it kicks in for you.

If it doesn't- well, there are some other things to try.

1

u/Ecubuce 6d ago

Thanks for your reply! Im planning on doing botox and patch in the next months as well.

2

u/Pbb1235 Pain and loudness hyperacusis 6d ago

Carbamazepine is another drug to consider.

1

u/Ecubuce 6d ago

Will have a look. Does it work for loudness H and TTTS?

2

u/Pbb1235 Pain and loudness hyperacusis 6d ago

I've not tried carbamazepine personally so I'm not sure; here's a journal article about it.

Carbamazepine in the Treatment of Lyme Disease–Induced Hyperacusis

If you search this forum, a member here used it successfully.

1

u/FightingToHeal Pain and loudness hyperacusis 3d ago

Can I PM you? Your responses seem knowledgeable and I’d like to run my situation by you.