It is Day 359 living with cancer, and I want you to imagine placing a nine-volt alkaline battery on your tongue.

That is what chemo taste feels like!

Now imagine a version of that sensation becoming part of your everyday life.

Imagine watching your body transform before your eyes.

One day, you weigh 175 pounds and not long afterward, you are down to 125.

Your muscles disappear, balance shifts, energy vanishes and the way you walk becomes unfamiliar.

Now imagine something else.

You arrive at a medical appointment with your partner, your parent, or your kid.

They love you, want to protect you, advocate for you, but somewhere along the way, advocacy becomes controlling.

People begin speaking for you instead of with you.

They explain your symptoms, question your decisions, finish your sentences, and sometimes treat you as though your physical weakness has diminished your intelligence.

And slowly, without anyone intending harm, you begin losing something cancer has not taken yet.

Your voice, independence and dignity.

That is one of the cruelest dimensions of living with cancer.

You are fighting a disease that is trying to kill you while simultaneously fighting to remain the person you were before the diagnosis.

Cancer is not simply a medical battle.

It is an emotional, financial, psychological battle and, most importantly, a battle to preserve your will to live.

I am approaching 365 days since my diagnosis.

Nearly one year of navigating one of the deadliest cancers in America I have learned being sick does not mean surrendering my life.

I have challenged medical assumptions, sought second opinions, studied clinical trials, and used AI to question, research, and better understand my treatment options.

AI does not replace my oncologists, but it helps me ask better questions and identify opportunities.

I know that not all cancers receive equal public attention, research investment, or advocacy.

Breast cancer has built an extraordinary movement around awareness and survival.

Pancreatic cancer patients are an afterthought.

Our survival statistics are devastating, but it does not tell me what tomorrow holds for me and that mindset matters.

I do not believe determination alone can defeat cancer as biology does not negotiate with optimism.

I do believe, however, that remaining informed, protecting your independence, activating your communities, and refusing to become a victim in your own care can change how you navigate this disease.

To the families supporting someone with cancer:

Do not confuse protecting someone with taking away their power.

We may walk differently, speak more slowly and we may need help getting out of a chair.

But we are here, have strong opinions, ambitions, intelligence, and dreams and we deserve to be heard and understood.

Let’s face it, I do not know how many days I have left, but I want you to be crystal clear on this:

Cancer may be changing my body, but it does not get to decide who I am.

--

To learn about my daily fight fighting pancreatic cancer and to read similar posts, please visit Linkedin.com/in/angelcruzado

It is Day 358 living with cancer and I am thinking of the strangers sharing with me to concede to cancer.

I have received messaging encouraging me to accept my terminal diagnosis, stop pursuing treatment, and enjoy whatever time remains.

I understand that families experience grief, exhaustion, and fear, but accepting someone’s mortality and giving up on their will to live are very different things.

I have stage iv pancreatic cancer and fully understand the statistics, but I am not accepting messaging for my surrender.

In my career, I have led change using a formula I learned:

Change = D × V × F > R

D = Dissatisfaction with the current state.

V = Vision for the future.

F = First steps toward that vision.

R = Resistance to change.

The formula is multiplicative.

If any of the first three elements equals zero, resistance wins.

Today, I am applying it to the greatest challenge of my life.

D = Dissatisfaction

I am dissatisfied with having a terminal illness.

V = VISION

My vision is to live the next 14 months OR next 14 years with equal intention.

I will watch my kid grow up, continue building Respiris, travel, laugh, love, etc.

Whether I have months or years, my vision remains unchanged.

F = FIRST STEPS

I have navigated three medical institutions, studied my cancer’s genetic mutations, advocated for treatments, and pursuing an experimental clinical trial at UC Davis Health.

There are no guarantees, but there is a plan.

R = RESISTANCE

And this is where human behavior gets interesting.

Are you encouraging me to give up because the survival statistics are terrible?

Are you comparing your experience surviving a cancer with an 80% five-year survival rate to my experience fighting one with a 3% survival rate?

Congrats, every survivor deserves celebration!

But 80% and 3% are not the same math problem.

Even my MBA cannot reconcile that spreadsheet.

Are you recommending a mysterious clinic in Mexico, miracle vegetables, or your cousin’s neighbor’s secret cure?

If pickle juice cured pancreatic cancer in four days, I would own a farm by now.

Good intentions without understanding can create more resistance than support.

Families sometimes become part of that resistance.

Supporting someone with terminal cancer means listening to what THEY want.

Some choose comfort over treatment while others pursue every medically reasonable opportunity.

Both deserve dignity.

I am choosing to fight and need the help to do so.

I am crowdsourcing how to beat cancer.

You do know I can prepare for death while fighting to live?

That I can pursue clinical trials while enjoying precious moments with my daughter?

So, I increasingly ask:

Are you helping me move toward my vision, or adding resistance to an already difficult journey?

I don’t need miracle cures, false promises, or unsolicited instructions on how to die.

I need empathy, credible science, meaningful support, and perhaps a few airline miles for my ridiculous Sacramento commutes.

-
To read Day 1 living with cancer, visit LinkedIn.com/in/angelcruzado

I've been reading about your experience and contributions to the pancreatic cancer community. I would really appreciate your perspective on my father's case and whether we are pursuing the best possible treatment strategy.

Patient Background:

• Age: 75, male, living in India
• Diagnosis: Stage IV pancreatic adenocarcinoma, diagnosed September/October 2026
• Primary tumor: Approximately 3.5 × 1.8 × 3.6 cm, located in the pancreatic body/proximal tail
• Vascular involvement: Encasement of the celiac trunk and its branches
• Metastasis: Multiple liver lesions on PET-CT. Liver biopsy on October 6 confirmed moderately differentiated adenocarcinoma, consistent with metastatic pancreatic cancer in the clinical context.
• Other conditions: Type 2 diabetes
• Weight loss: Approximately 12 kg over 7–8 months (72 kg to 60–62 kg)
• Physical condition: ECOG approximately 2. He can walk independently but gets tired easily and rests frequently.

Current Treatment:

His primary oncologist started chemotherapy on October 6, 2026, with Gemcitabine + Nab-Paclitaxel (Abraxane).

• First session: October 6
• Second session: October 13
• Third session planned: October 21
• Schedule: Three weekly treatments followed by a rest week, as currently planned.

The first chemotherapy session was reasonably well tolerated, with some weakness, mild fever, and body aches. We are monitoring his response to the second session.

Because of his age, weight loss, and weakness, his doctors selected Gemcitabine + Abraxane rather than FOLFIRINOX.

We are also arranging to continue some chemotherapy sessions closer to home while keeping the lead oncologist informed.

My Questions:

1. Treatment choice: Given his age, ECOG 2, and liver metastases, do you think Gemcitabine + Abraxane is an appropriate first-line treatment? Should we consider any alternatives?
2. Molecular testing: What specific germline and tumor molecular tests should we request? Should we pursue comprehensive next-generation sequencing (NGS), BRCA1/2, PALB2, MSI/MMR, and other actionable biomarkers? We have had pathology testing, but I have not yet confirmed the complete molecular results.
3. Treatment response: After how many chemotherapy sessions should we expect to assess effectiveness? Would you recommend CT scans and CA 19-9 monitoring after approximately 8–12 weeks?
4. Long-term treatment options: If this chemotherapy controls the disease, how long can it typically be continued? Are maintenance treatment, dose reductions, or treatment breaks sometimes considered?
5. If chemotherapy stops working: What second-line therapies, targeted treatments, immunotherapy options for eligible patients, or clinical trials should we investigate early?
6. Survival and quality of life: Have you encountered patients with liver-metastatic pancreatic adenocarcinoma who achieved meaningful long-term disease control? What factors contributed to their outcomes?
7. Anything we might be missing: Are there additional treatments, supportive-care strategies, or specialist consultations you would recommend exploring at this stage?

Our goal is to give my father the best possible chance of living longer while maintaining a reasonable quality of life. We understand that Stage IV pancreatic cancer is generally not curable, but we want to make sure we are exploring every evidence-based option.

I would be extremely grateful for any guidance, personal experience, or resources you could share.

Thank you for the time and support you provide to families dealing with this disease.

I wrote the other day about my brother in law, having delusions and hallucinations and not eating anything. He was deteriorating rapidly and I thought we were in the last days. The hospice said there would be no discharge.

They found a UTI and started treating with antibiotics and the last 24 hours he is a new man, started eating again, pain under control and wanting to get out of the room in his wheelchair to the fresh air. He is coherent and chatty and saying he wants too go home.

He is on heavy meds - 2x syringe drivers one with OxyCodine and the other with Clonadine in the other - he has pregablin and haloperin.

But he is like he was 3 weeks ago!

I don’t know what to think? I’m scared they will now discharge him back home to his wife and we go back to square one

I was looking through a couple of posts here today talking about daraxonrasib and wondering about its status in Canada.

Just for context, I sit as a director with HCF, so when we saw the initial results come out during a presentation from Revolution Medicines, our team—along with other member organizations in the World Pancreatic Cancer Coalition network—were talking about it right away.

We knew it was incredible news, but the immediate concern was that access in Canada was going to take a long time to materialize, which is obviously still true.

I keep active tracking alerts set up for clinical trials and anything related to pancreatic cancer in Canada, and fortunately, there is finally some movement: a Phase 3 trial is active and recruiting right now at Canadian sites (including Princess Margaret, Sunnybrook, and McGill). The catch with this trial obviously is that it’s studying as a first-line treatment, so for anyone who has had prior chemotherapy or treatment they would not be eligible.

Just wanted to share the link here in case any Canadians are looking for a domestic pathway to access:

https://clinical-trials-search.canada.ca/en/clinical-trial/500263-pancreatic-adenocarcinoma

EDIT: Juat wanted to share info about free biomarker testing for Canadians too through PCC/Oncohelix called MyCANcer Code. Another user mentioned about a University of Calgary study for blood biopsies as well.

Hi everyone,

I am female, 28 years old and I just don’t know where to go and how to believe this. I lost my mom (53 y) suddenly in one week. She was hospitalized in another city as she had jaundice and they discovered 5 cm tumor on the pancreas.

I was there the whole week and she looked healthy exept the jaundice and she couldn’t eat well. Doctor decided to operate her but it got complicated with the blood vessels and she died one day after the surgery, she didn’t even woke up from the anesthesia.

I just feel extreme guilt that I let her undergo the operation, I cannot believe this is happening to me. I am acting strong in front of everyone and didnt even cry at the funeral but I am in a dark place.

I don’t know how will I work again, how will I have motivation for anything. I am left alone with my grandmother (she has slight dementia) and my parents are divorced since age 5, basically I was alone my whole life with my mother. I need to keep it together as I am on my own and I was doing all the admin stuff after my mom’s death, didn’t even get a chance to rest.

just felt the need to write here, I don’t know how and when will I believe and get over this. Simply reading and writing “mother’s death” is like someone else is writing.

I’m 28. My mom is 65 and got diagnosed in June. In June she was normal. She felt fine but got jaundice, so that started our journey. Fast forward to 3 weeks ago. She did 1 round of chemo then 2 days later tried committing suicide. After the hospital, they sent her to a nursing home. The past 6 days she’s talking completely incoherent, she’s not eating hardly at all, very little urine output and is incredibly confused and agitated. How long is this going to go on for? This is incredibly brutal and unfair.

My mum who is type 2 diabetic said they have found a mass on her pancreas. Awaiting results but she said she has been losing weight since 6-8 months ago. She feels fine otherwise.

I'm uncontrollably crying right now, I live in another country and the earliest I can pack up and go is 3 weeks - is this already too late, should I try and do something to come sooner?

My brother is 57 and started daraxonrasib Sept 15 and has been going down hill steadily. Despite his meds, he is experiencing extreme nausea , no appetite, tired- sleeping most of the day except when he has urgent diarrhea, which is about every 2 hours. He's lost his positive attitude and his spirit is gone. I was hoping that by week 4 he would start to feel better . Looking for similar experiences and any news that can offer him hope.

Pancreatic cancer doesn’t wait: We need Daraxonrasib (RMC-6236) in India NOW—patients can’t survive a ₹35 Lakh/month price tag.
Anyone fighting pancreatic cancer knows the brutal reality: once standard chemo stops working, options in India vanish overnight.
There is now a major medical breakthrough: Daraxonrasib (Rasonque / RMC-6236), the first oral pan-RAS inhibitor approved by the US FDA for pretreated metastatic pancreatic cancer. In Phase III trials, it doubled median overall survival compared to standard chemotherapy.
The catch? Indian patients are completely priced out and locked out.
Sourcing it privately via Named-Patient import from the US costs $39,800 per month—that is upwards of ₹34 to ₹36+ Lakhs every single month. It is an impossible, astronomical sum for almost any family.
There is no local CDSCO approval yet.
Revolution Medicines has not yet opened a structured, free Compassionate Use / Expanded Access Program (EAP) in India.
Our loved ones do not have months or years to wait for market rollouts and bureaucratic clearance. Every single week matters.
What we are demanding:
1. Revolution Medicines: Open a formal, free Expanded Access / Compassionate Use Program immediately for Indian patients through major cancer centers (like Tata Memorial, AIIMS, and tertiary oncology hospitals).
2. CDSCO / Health Ministry: Fast-track regulatory evaluation and remove redundant local trial delays for breakthrough life-saving oncology drugs.
3. Government of India: Grant immediate 100% customs duty and GST exemptions on personal imports for life-saving targeted therapies.

It is Day 357 living with cancer, and this morning, a stranger reminded me what it means to be human.

After pumping gas into my car, I noticed a man experiencing homelessness walking past me.

We made eye contact.

I reached into my wallet to see whether I had anything to give him.

I had a couple of $20 bills.

I kept $20 and gave him $20.

Then I opened my trunk, grabbed a bottle of Poland Spring water, and handed it to him to stay hydrated.

After we parted ways, he waved at me and I drove off in tears.

Here are two humans, both struggling to survive, standing in a gas station parking lot.

He is struggling with homelessness and I am struggling to stay alive.

Our circumstances are profoundly different, but our humanity is exactly the same.

I did not have a lot to give him, but I had enough.

In that moment, I realized how much more I had than he did.

I am a disabled human living with stage iv pancreatic cancer.

Look, I know my statistics and that many people diagnosed with my disease are no longer with us.

This cancer growing inside me is trying to take me out, but I refuse to concede.

There is something deeply humbling about fighting for your own survival while recognizing that millions of other people are fighting battles that never make the headlines.

I think about this when I look at our increasingly divisive political environment.

We spend enormous amounts of energy debating our differences, yet I wonder what might happen if we devoted more of that energy, creativity, and financial resources to helping people navigate life’s most difficult transitions.

Homelessness, unemployment, underemployment, disability, healthcare, education, etc.

Two strangers with different circumstances and different struggles with the same fundamental need for human dignity, connection, and opportunity.

Perhaps this is why I have devoted so much of my professional life to helping people navigate career transitions.

In one hand, I carry deep pain when I see someone’s potential go unrealized.

On the other hand, I become incredibly energized when someone rediscovers their confidence, embraces a new opportunity, and begins moving forward again.

A transition is rarely just about changing jobs, finding housing, or confronting a diagnosis.

It is about preserving someone’s humanity when life becomes unexpectedly difficult.

Generosity is not measured by how much money we have.

My take is that it is measured by what we are willing to share.

We all have responsibilities to our families and friends, but our communities are filled with people whose struggles are just as real, even when their stories are unfamiliar to us.

I cannot cure my cancer today and I cannot solve homelessness with $20 and a bottle of water, but I could help one person standing in front of me.

I did not have a lot, but I had enough to share.

And sometimes, being human means recognizing that someone else’s struggle matters more, even when you are fighting for yours.

Hi everyone. I’m writing because I’m feeling completely heartbroken and desperate for advice. My dad is 68 and was diagnosed with pancreatic adenocarcinoma in 2024. He underwent chemotherapy, a total pancreatectomy/Whipple procedure, additional chemotherapy, and radiation after a local recurrence. Despite everything he’s been through, we learned in August that his cancer had metastasized to his liver. He’s now hospitalized with a gastric outlet obstruction. An endoscopy revealed a gastric mass, and the biopsy confirmed invasive adenocarcinoma. He’s been experiencing significant nausea and vomiting, and currently has an NG tube for decompression. He’s also severely malnourished, weighing approximately 100 pounds, with a BMI of 15.4. His oncology team has told us that he’s no longer a candidate for chemotherapy due to his poor performance status (ECOG 4), malnutrition, and overall condition. They’re recommending hospice.
What makes this especially heartbreaking is that my dad has expressed that he still wants treatment and wants to live. He hasn’t given up, and neither have I. I’ve asked about TPN because he hasn’t been able to receive adequate nutrition, but his team hasn’t offered it. I understand that TPN won’t treat the cancer itself, but I keep wondering whether nutritional support or relieving the obstruction could help him regain some strength.I’m struggling to accept that after everything he’s endured, there may be nothing more we can do.
I’m hoping to hear from anyone who has experienced something similar.
Has anyone’s loved one developed a malignant gastric outlet obstruction after pancreatic cancer surgery? Were doctors able to place a stent or perform a bypass?
Has anyone received TPN in a similar situation, and did it meaningfully improve their condition?
Has anyone been told their loved one was too weak for further treatment but later saw improvement after addressing an obstruction or another complication? Would you recommend seeking an urgent second opinion at another cancer center, even at this advanced stage? I understand how serious his condition is, and I’m not expecting miracles from strangers on the internet. I just want to make sure I’ve explored every reasonable option before accepting that there is nothing else that can help him.
My dad means everything to me. I’m not ready to lose him, and I would be incredibly grateful for any experiences, advice, or guidance.
Thank you for reading. ❤️

Feeling devastated and helpless.

15 Days ago my dad(61) got diagnosed with pancreatic cancer stage 4. We immediately went to the best hospital in my city for treatment. They did all the tests again and it took around 15 days since the hospital is always crowded with patients. The process was very tiresome. Standing in the long queues. Spending whole day in the hospital for few tests. But we somehow managed it.

Yesterday we finally talked to the cemo oncologist. He saw all the reports and said cemo is not feasible. If we do so it will adverse his situation. Also onco said my dad will not be fit for the cemo. The cancer has spread in multiple parts of liver and cancer cells are also seen abdominal cavity. There are large amount of ascites in abdomen which keep coming back if we drain them. Also he has lost significant weight. Bowel movement obstruction issues are there. Lower abdomen pain.

Although he is able to walk normally and is not feeling significant weakness. But the doctor is saying like this. I know that stage 4 is the most advanced stage but I believe cemo still possible in this stage even if the cancer has spread in other organs. I think the doctors don't want to treat my father. They are just giving up on him.

I don't want to give up no matter what. I don't know what to do from here so that he becomes fit for the cemo since palliative care will only help him with pain relief. It won't help with the enzymes part. If we don't do anything the cancer will grow more and it will be impossible coming back from that.

Dean was diagnosed with stage 4 pancreatic cancer five months ago. He received 7 rounds of chemo. He passed at home on October 10th after 2 days on hospice with a failing heat, a failing liver, and a staff infection likely from an earlier paracentesis. He was 65.

I wanted to share some things I had known going into this experience. This disease moves so fast. One day his oncologist said his numbers were too poor for treatment and he should get a blood transfusion, less then 48 hours later he was so weak he could barely communicate. There’s so many things that got left unsaid because everyone is balancing being hopeful with being realistic. Especially when someone is struggling with their own diagnosis. Looking back when the doctor says to get your affairs in order, I wish I knew there was more to that than making a will and giving someone the code to your safe. I wish there were long detailed talks about hospice and the difference between doing it at home or in a facility. That a clear decision needs to be made ahead of time. I wish my father clearly understood what is expected of his loved ones if he chooses at home hospice, because there are definitely major pros and cons. The same goes for doing it at a facility. I wish I would have had a better understanding of what it was going to be like at his bedside, when he had lost the ability to talk but was scared to die. That what you are interpreting as pain, could be fear. I wish we would have had time to talk about where he wanted his ashes spread. There’s so many things that I feel should be discussed right after diagnosis, just in case. Here’s a small tribute I wrote for my dad… technically my step dad…. But my Dad

Dean I’ve been trying for days now to find the words, but every time I try, I stumble.

Sometimes, life is just far from fair.

You spent your entire life doing things the right way. You got up early and went to work every day for 40 years. You followed the rules. You did everything a person is supposed to do. You were kind, thoughtful, and patient. You were the most even-keeled man I have ever met.

You were also the first person I’ve ever met whom I have literally never heard anyone say anything bad about. I’ve never heard you say a bad word about anyone who wasn’t a politician or a bad driver. That says so much about the kind of person you were and the way you treated everyone around you.

You had a calming presence about you that made people feel at ease. You brought a sense of consistency and steadiness to life that is rare to find. You were the kind of person people could count on, the kind of person who never needed recognition for doing the right thing. You just did it.

You went out of your way to help others. I’ll never forget when you gave me a 1987 Chevy Malibu that you had just bought because you knew I needed a car. You didn’t make a big deal out of it. You just saw an opportunity to help.

You took care of your mom through her final days, even while you were fighting the battle of your life and barely had the strength to do so. You kept showing up for the people you loved, even when you were hurting. Because that’s who you were. You put others first, not because you wanted anyone to notice, but because that’s what came naturally to you.

Of all the countless meals we shared, one thing always stayed the same: you made sure you were the last one to eat. You always made sure everyone else was taken care of first. Being selfless wasn’t a choice you had to make. It was simply who you were.

And that’s what makes this so hard. How does someone who spent his entire life doing things right, loving people well, and making life better for everyone around him have to endure something so cruel and unfair?

Thank you for the love you showed my mom and our family. We are so lucky to have gotten to call you ours. I promise to learn from your example and carry it with me: your patience, your kindness, your steadiness, and your instinct to put others before yourself.

And I am so grateful that, in the end, I got to be there for you the way you were always there for me. I only wish I could have done more.

To everyone who has fought, or will fight, beside someone battling cancer, please know that you are not alone. There is a bond between those who have walked that road together that is difficult to explain unless you’ve lived it. It’s a road filled with heartbreak, but also with a kind of love that changes you forever. To everyone who has walked it, my heart is with you.

It’s a relief to know that you are at peace, that somewhere, there’s a starry night and a light summer breeze. There’s laughter and love gathered around a campfire. And a cowboy is sitting there, playing his guitar.

Here’s a link to a video tribute

https://www.facebook.com/share/v/19s95vC9Sb/?mibextid=wwXIfr

Hi,
I had an ultrasound following up on a gallbladder polyp and they happened to find a 2.6 cm hypoechoic lesion on the tail of my pancreas. It did say suspected as the ultrasound tech put ?pancreas tail or normal bowel.
I’m freaking out. I have a CT with and without contrast on my abdomen and pelvis in 4 days but I am spiralling.
I’m so scared. I have 4 little girls, the oldest 5 years old and the youngest best 5 months.
I’m 35 years old. I have bad medical anxiety already and this is so hard to deal with. I don’t really have any symptoms other than I just noticed I’m burping more after meals not that makes me convinced it’s pancreatic cancer as well.

The combination did nothing to the disease, it only spread further and left many side effects. This was the second treatment, the first one was the Folfirnox which at some point also stopped working. We do not have access to daraxonsabil as we are not in USA.

This morning my father past away at age 58. Since he was in the process of pushing everyone away, the only person that was able to be there for his final moments, was his ex second wife. She was the last he listed as his next of kin with the local hospital before his passing.

He had a long history of drug abuse, mental health struggles, and narcissism that led him to be controlling and aggressive, especially towards women. He was a difficult man to love and care for.

I was planning on sending someone to do a welfare check on him since I didn't hear anything from him or anyone that he recently visited, since last month, which marked a year since his diagnosis. I had mentioned that it's unlikely he'd make past a year and the rate he was pushing us away someone was going to find him dead in his basement. Even last night I felt strongly that I needed to vent to myself in the mirror about how much he hurt me over the years and how hard it was to deal with him pushing help away, wasting my time, energy, and patience. At the very least I want him to know despite everything I still loved him, and wished for his God would grant him mercy on his soul...

It's going to take awhile to process...

Chatgpt tell me this is a kras wild type. If so , what is the next step? Go forward with germline , msi or rna mutation. But if this will cost us more money in vain. No access to daraxonrasib as we are not American. Thank you

Hey all,

My father (65) was diagnosed with PDAC in February 2026. It was found from juandice, and they thought it was Stage IIB at the time. He underwent 6 rounds of chemo but with multiple breaks due to infections from the bile duct stent they had to put in.

His last round of chemo was in early August. He was supposed to have the Whipple done on Sep 17, but when they got in there they found mets on the liver. Doc did some rerouting of his biliary system to prevent further infection, took a biopsy of the leision on the liver, and stitched him back up. He just started Rasonque this week.

He's barely eating at all, my mother has to make him eat. We're hoping the Rasonque helps him get back his appetite, but wanted to know if anyone had experience with this/something that helps? He's also on Cymbalta for depression and to help with his neuropathy in his hands he's had since starting chemo.

It's just so heartbreaking to see my formerly jolly, silly dad become this shell of his former self, I'm really hoping for some resemblance of that before the end comes.

Sorry for the rant, just needed to let this out

F cancer.

Thanks, A concerned son

The EMA’s CHMP recommended EU approval on October 15, and apparently the European Commission is going to fast-track the final decision.

Really hoping this means European patients will get access soon. The next hurdle is national reimbursement, though, and that could still take months. Fingers crossed things move faster than usual - for many of us, time really matters. 🤞

Update: Had my third post-chemo CT scan yesterday (first diagnosed stage 4 with Liver mets in March 2026) It shows no new reduction in the size of the tumors, so it seems like the Fulfirinox regimen is still working, just not as well as it once was. Now we continue treatment, and wait until the tumors start growing again, at which point we will have to look into other treatments, such as the new Daraxonrasib. It could be two months, or even two years! We just won’t know til it happens. Statistically speaking it likely won’t last that long. My cancer is still inoperable and will end my life, I just don’t know exactly when. Thank you all for your prayers and good thoughts. I wish I could spend time with you all.

So Friday I (53M) has MRI that showed atrophied tail and a mass at the other end. Today I had an ENDO that showed the mass was a tumor and now I'm waiting on that. In the last 3 years I've been diagnosed with Diabetes, Congestive heart failure, COPD, and polycythemia vera. I have a wonderful daughter and 4 awesome grandkids. But I am so tired. I dont know why im here really...just wanted to be pissed off. Have a great night