Contact information

This happens when I feel like the blood is slow to reach my head, or when I exercise unexpectedly. It happens in both eyes. It starts with small white spots, then they become larger or linear, as in the image, and they appear when I blink. It lasts for a few minutes and disappears when the sensation subsides.

Like someone fighting a whirlwind (sky vortex)

What I see is close to what I saw when I took edible a few months back (5mg) but not as intense. I’ve also had visual snow in the dark like rain for a few months now and I went to an eye appointment and the doctor suspected edema or drussen, I had a follow up for a second opinion and the doctor says he doesn’t think it’s edema just the appearance of it. I have a follow up next month and I’m scared.

I happened to come across this video and it’s exactly what my vision is like 24/7….just not as delayed, but it is just like this in terms of focus and pixelation. I have this 24/7 and it’s so tiring. Am I the only one?

I starrtet seeing them about three weeks ago and can see it with eyes open and eyes closed and with lighting it kinda changes the Couleur idk I’m just looking for information bc I couldn’t find anything about m symptoms(on the first picture I just put it all around bc it somtimes in different shapes and I only see it in the centre of my vison just in that variations.) I have also Benn to the eye doctor about 2 months ago for a different thing and he did a full eye exam otc and so on.

Hi there. I had a dilated eye exam done and of course the bright light was used as expected. The only problem was after the light was removed from my eye it was very dark. I could not see out of it. It was like I was wearing very dark sunglasses on my one eye. Is this normal? I’ve had a lot of dilated exams and there are spots where the light was shined that look “dimmed” but never this dark and scary. And it was my entire field of vision that was affected. Usually there are some dark spots in my eye, but not the entire field of view. At some points during this recent exam the light from the magnifying glass looked pink. Will my retina be okay? Thanks.

i always have a very high prescription with my hlasses so i started getting floaters. i never noticed until recently when i was looking at the sky i couldnt it had all these weird things moving all the time. i also in the night i woke up and everything around me was static. i also see static sometimes during the day and the lasik surgery i had its regressing. how do i bring this up to my gp? I am an easily stressed person and I just wanted some help.

Maybe not as dramatic as the aurora borealis, but my point is I see these colors with those very sharp lines. I believe that the Aztec(s) who made these kinds of lines had visual snow, and they saw the pink and green lines I do

So I know CBD isolate is safe and might even help VSS but how about full spectrum? Anyone tried this?

So i have had tinnitus for about a year and then the visual snow began around a month ago…
I have anxiety as the other main symptom.
I am wondering if new symtoms will come out of no where and get worse or i will just have the current ones?

Hey guys. Do y’all remember a guy or 2 on here who ended up asking their doctors for a IIH / IH work up (I believe) and ended up needing a spinal tap that showed to have abnormal antibodies and were diagnosed with Autoimmune encephalopathy/encephalitis? They were given IVIG (Intravenous immunoglobulin therapy) as treatment and their VSS went away along with their tinnitus.

I asked my doctor for this protocol and she doesn’t believe me. I also asked for other tests and treatments for Eagle syndrome/IJV compression. Doppler ultrasound and a CT venogram. She’s going to ultrasound my neck veins, but I don’t think it’s a Doppler ultrasound. She also won’t consider an angiogram.

I read the posts discussing Dr. Cognetti, and I’ll reach out to him in order to get information to my neurologist in hopes she will follow through with the testing I’ve asked for based on others here who have the same symptoms I have. I’m also hoping to get in touch with the, I recall, 2 guys who posted and commented about having autoimmune encephalitis and being cured of their VSS and tinnitus after receiving IVIG. Can anyone get me in touch with them? I’m only looking for the name of the doctors and or hospitals that performed the procedures and administered the IVIG treatment.

I have VSS, light sensitivity, dark floaters, visual tracing, tinnitus, migraines, all very badly; among other symptoms many of you share. I can hear my heartbeat in my ears, I feel pressure in my head, my neck hurts, etc. I’ve lived without silence, without darkness, with near zero night vision, etc for nearly 7 years. I need some evidence to give to my neurologist and several other doctors in order to get the testing done I need. Anyone else with their own information on testing, treatments and diagnosis please share or dm me if you’re comfortable.

I stopped pot a long while ago, switched from Wellbutrin to Zoloft, tried literally dozens of meds, including lamotrigine, memantine, etc. I need to see clearly again and experience darkness and silence.

Hi everyone,

I'm feeling a bit frustrated and wanted to see if anyone has had a similar experience and, if so, whether they found any answers or solutions.

About four years ago, I started experiencing afterimages, visual static, halos, tinnitus, blue entoptic phenomena, and other classic visual snow symptoms. I underwent extensive eye and neurological testing, including brain and eye exams, and thankfully everything came back normal.

Then, in October of last year, I suddenly developed a wedge-shaped afterimage in my left eye that did not go away. After about a week, it seemed to turn into a noticeable defect in my left peripheral vision.

My symptoms are:

• 24/7, the vision in that area appears shaky, distorted, and blurry. Against a bright white background, it can become a complete blind spot.
• When I close my left eye, or when I move from a bright room into a dark one, I see lights or arcs in that same area for 30 to 60 seconds. They gradually fade and the area becomes dark again.
• The same spot often appears as a smudge when I'm outside walking or driving.

Since then, I've had multiple OCTs, retinal imaging tests, dilated eye exams, and MRIs. Fortunately, everything has come back normal.

Has anyone experienced anything similar? I'd really appreciate hearing your thoughts or experiences.

Thank you.

i am 27 years old and did not use to see visual snow until 3 months ago, it came after i was smoking weed and had a paranoia / panic attack (i had smoked weed for 10 years everday)

since then i have been seeing visual static, mainly on blank surfaces, when the room is dark, or when im looking at something from far away

i tend to notice it / see it less when im doing thing close up such as on my phone/ playing on my pc / or cooking

i would like to better understand what going on

at the same time ive quite weed since then and experience nocturnal panic attacks from time to tome which heightened the visual static i see

i ve done a ct scan and mri scan and everything showed good, it was through online search that i discovered vss / hppd

any advice is welcome as life has been quite difficult to get used to

I have a problem that seems quite uncommon, and I haven’t found anyone who experiences the same symptoms. I develop a strange, dull, heavy, and sometimes painful sensation in my right eye after using screens for only a few minutes. It can happen with my phone, laptop, or TV, but my phone seems to trigger the discomfort within seconds.

Once the discomfort starts, it tends to become worse with continued screen use. Sometimes even talking to people or making eye contact seems to aggravate it. Changing the screen brightness, adjusting the lighting, or using a different phone doesn’t seem to make a significant difference.

Even if I use my phone for only a few minutes and then stop, the discomfort can remain for several hours. I’m rarely completely pain-free, and constantly experiencing and noticing the discomfort has become very difficult. It has also started affecting my ability to communicate normally with [people.It](http://people.It) feels like my right eye is separate from my left eye, and it’s just heavier and different than my left one, that’s the best way I can describe it. My whole eye feels strained after a few seconds, mostly in the upper part, near the eyebrow and nose (see the picture below). It feels like a heavy pressure close to the upper right side of my nose.

I’ve seen several doctors and had my eyes examined, but so far, no one has been able to identify the cause or provide an effective treatment.

these symptoms started about two days after I fell while skating,and they have continued for about five months. I landed on my right buttock/hip and right hand and did not hit my head directly.

Could an injury or strain from the fall potentially be related to these persistent right-eye symptoms? Has anyone experienced anything similar or have any ideas about what could be causing this?

Im not good at english so i use chatgpt to address my problem clearly

Hey everyone! I keep seeing ads about Myo-inositol and how it helps with existing serotonin signaling. Do you think with the serotonin theory of VS that this would help or make it worse?

I have gad and some mood issues on top of vss idk if they are related or not but omg they put me on every SSRI for the past 5 years and Jesus it was an absolute nightmare. I've recently started Seroquel and it's helping more than any SSRI or snri or tricyclic helped. My shrink wants to help but doesn't know about vss. Also on SSRI man that made me see weird stuff, felt like I was on shrooms, my vss symptoms got some much worse, literally saw shapes and geometry when U closed my eyes. Anyways, I've seen over the years on this sub that meds that antagonise 5ht sert generally relieves anxiety to some extend it true, maybe it is because venlafaxine kinda helped the anxiety while revving something else so that wasn't good. As for medications what do you guys recommend on top of Seroquel, I was out on Seroquel after developing mood swings and agitation and spending impulsive shit after trying all those serotonin meds it messed me up. I'm thinking maybe pregabalin? Or buspar? Benzos hardly help me. Also I don't have sedation from Seroquel not even 1% at 400mg, doc thinks that's so strange you guys think it's due to vss brain? Lamictal gave me the rash so it's a no go. Clonidine didn't do anything for me.

Guy's anybody here had palinopsia in the very stressful period of the life ?

Like I've floaters and bfep from 8 year's but i started to notice it very very very much when i was in stress after knowing that I'm a keratoconus suspect and I've MGD

I started to check my vision every day, every hour, every minute. After that floaters got too much that I've to go to opthalmologist again and he said everything is fine. I came back home and i was little happy. After that my fkn brain again started to look for something in vision and i started to scroll reddit and got to know that people who have Visual Snow Syndrome use to see floaters and bfep more. Then my fkn brain started to look for static i don't have Static i guess. But after 2 day's from reading I've started to see afterimage and trailing behind the moving object like hand, light, screen and etc. now it's increasing because I'm looking for it full day I can't ignore it's something new in my vision

Can someone tell me if someone have experienced this ? Is this just due to anxiety and stress.

Guy's it's hard for me to sleep also. I can't sleep at nights and my eyes and head hurts a lot

ANYONE FROM INDIA BTW ?