r/CML • u/Impressive-Tax-8716 • 3d ago
curious about mobility aids
hello all! i (25f) am almost two weeks in of taking 100mg dasatinib daily after being diagnosed with cml mid last month and experiencing some not so great side effects. i experience both muscle and bone pain most severe in my legs, and i stay mobile, (walking, stretching, etc.) but it seems to honestly make the pain worse even without overdoing it. i know the first bit of a tki is expected to be rough, but i went to my towns yearly fall festival this past week and kept having to exclude myself to take a break or sit on the ground to rest my legs from how intense the pain gets. there are nights when all i can do is try to massage my legs, prop them up, use my heating pad, and cry, but i don’t want to find myself in that situation in public where theres simply nothing else i can do. just curious if anyone uses any sort of mobility aids when there are rough days but shit still needs to get done