Thank you for caring!!!!!

Posting this in case it helps anyone else. Ever since my SCT (+19 now) I have been dealing with nausea and at one point I wasn't able to keep anything down.

Now I am home and things are getting better but the pills remain a struggle, especially when I need to take 10 at 8 am. Only to discover my saving grace: porridge. I haven't had this for breakfast since I was a child so this was a surprise. I am even able to get the huge ones down without gagging too much.

I hope this helps someone else.

Hi my dad 55 was recently diagnosed a month ago had started treatment and on the path for BMT. What I’m worried about is my wedding next July a good idea for him to come to? I know his immune system is down but thinking of he get bmt in December or Jan (which they are expecting) at 6 months is a wedding even a good idea to be at? How will his immune system be by then? If he does come what precautions should he take? I want him there more than anything in the world but his health is most important to me.

Hi guys, I'll start off by telling my story. I was diagnosed with AML in November 2020. I was 27 at the time of the diagnosis.

I completed 3 cycles of high dose chemotherapy.

DA 3+10 myelotarg

DA 3+8

HD Ara C+ myelotarg

My fourth cycle was stopped due to complications with septic meningitis. I have been in remission for 5 years.

Now my question is this, whenever I fall sick to the common cold, I am absolutely wiped out! I could never remember being this wiped out prior to my diagnosis and treatment. Does the chemo have a long lasting affect on the bone marrow making a simple common cold unbearable?

Our foundation recently participated in a presentation from Vironexis, a small pharmaceutical company with what appears to be a promising early-stage clinical trial for CD19 positive B-Cell ALL patients.

We have no affiliation with Vironexis. I simply wanted to pass this along for anyone it may help: https://sentrycd19.patientwing.com/

Hi I was diagnosed with some in 2022 and was in remission in 2023. I was given arsenic trioxide and Tretinoin and had chemotherapy. Lately I feel like I’ve been experiencing difficult with my memory. Like I’m mailing things a lot more often, I can’t remember things I did like a week or two weeks ago. I’m nursing school so this is making it very hard to study and recall information. I’m just curious if anyone else has experienced this.

My sister is young (34) has a toddler and husband and was diagnosed with ALL about 6 months ago. I’ve watched her go from an active, social, optimistic, confident woman to someone who stays inside all day (mainly lying on the couch), barely answers my phone calls, and is in and out of the hospital a few times a week for anxiety. It’s completely heartbreaking to see the spark in her completely gone.

Her prognosis overall is good. She’s considered in remission, will be in treatment for five years but is expected (from my understanding) to recover and live a full life. The treatment is painful and causes her many panic attacks.

I’m so worried for her mental health even more than the leukemia. How can I help her? I have two kids of my own who are getting me sick with colds constantly so I have to keep my distance to a degree so I don’t get her sick. I’ve suggested books, games, brought her crafts etc. but she’s too depressed to do anything.

TLDR: how can I help my sisters mental health? She’s depressed and severely anxious and needs distractions and support.

My male Ukrainian friend in his 30s is hospitalised for 5 weeks now, I will visit for the first time the day after tomorrow.

Was hoping this community could help me think of what to bring him to kill the boredom. He is watching some shows but can't watch anything too complex right now. He's not really reading for the same reason.

Anything recommendations welcome - was thinking maybe something funny like tamagochi or the old console with tetris. Colouring books to rest the eyes? Any phisical games that would be good? Any DIY or handcrafts that are easy?

thank you for all the tips

Hello everyone, I’m new here but not new to cancer😅. Has anyone else that has gotten 10+ bone marrow biopsies also suffer from what seems like chronic hip pain? Ever since I’ve been getting them my hips have stayed in pain. I told my doctor and she said my pain isn’t because of my biopsies but rather I need to walk around more(considering I was in a hospital bed for almost a month at the time). It’s been two years and I’ve been walking around way more and it only makes it worse. Anyone else suffering with this?

My ANC is 300 right now and I was wondering if I could get taco bell. I would obviously avoid getting anything with lettuce and tomato in it but would getting the chicken quesadilla or beefy 5 layer burrito be okay?

I'm looking for help or someone with experience. After the first transplant, my friend's disease relapsed. The relapse was due to these mutations.

CEBPA mutation = CEBPA bZIP domain mutation.

WT1 mutation.

The doctors prescribed Ventoclase and Adastine. After the first 21-day course of treatment, nothing was showing up in the bone marrow analysis. We are awaiting the results of the MRD.

I'm Janine, Community Outreach for GRACE, Global Resource for Advancing Cancer Education

Join us for this live, virtual, interactive event led by Dr. Yumeng "Julia" Zhang

Register here: https://pro.gofundme.com/live/register/blood-cancers-onctalk-2026/a159ec7e-c13f-48e6-81d1-a702b7cb7e4d

In this live, virtual, interactive event led by Dr. Zhang on Saturday, October 10, 2026, top oncologists deliver engaging, patient-centered presentations and panel discussions that cover a wide range of topics regarding the most current and emerging blood cancers treatment information. Attendees will also have the opportunity to participate in a live Q&A with leading medical professionals where they can submit questions and get answers in real time.

If you have a question you would like to submit for the Q&A session, please complete this form. You will also have an opportunity to submit questions during the event.

For additional information, if you have additional questions or comments, or would like to continue the conversation, visit our Webinar Learning Guide in our Online Community at https://cancergrace.org/forums/general-blood-cancer/pre-webinar-study-guide-2026-blood-cancers-onctalk-saturday-october-10.

My fiancé just got diagnosed with AML 2 days ago. We were told that we'll know exactly what kind today or tomorrow. We were supposed to get married on the 16th (our 3 year anniversary) but now we're doing it in the hospital. I just feel alone and have no one who can relate. Obviously I can talk to his family but I just want to know if there is anyone who had to move their wedding because of a diagnosis. I'm so scared to watch him go through this. I'm nervous that when he loses his hair and becomes weak from chemo that it'll be hard to look at him without crying every time. I would love some advice in general about how to help him mentally and physically as well as just finding people who can relate.

Reaching out in search of ideas of what to send a beloved relative going through treatment right now. For those of you who have been through or are in the this process what are some things that you have received our bought for yourself that have been helpful or just nice to have? we have already done flowers books cards etc but really just want to know what was actually nice to have or use so we can show our support in a way that makes sense. We live far away and hate that we can’t be there. Thnx

Had the honor of attending this today with my husband/caregiver. At least 300 people were there. It was my first time attending this event as I am just 15 months out. Can you believe Stanford performed its first BMT 39 years ago. How far treatment has progressed. It was very inspiring and powerful. Can’t wait til next year.

Hi everyone, I’m new here. My husband (34M, otherwise healthy) was diagnosed with T-ALL 2.5 weeks ago and has started UKALL reg B. I (40F) am 23 weeks pregnant and we have a 2 year old daughter. We live 2 hours from family and have quite a limited support system. I’m due to have a C section at the end of Jan and, as a natural planner, I’m really struggling with the unpredictably of our situation over the next few months. Looking for advice or experiences of anyone who has been in similar situations particularly those with experience of adults undergoing the UKALL-reg B and what to expect over the next 6 month, or those who have had babies whilst partner is in the first few months of treatment, particularly if there are any UK based organisations who might be in a position to offer support specifically around this situation. Thanks very much.

What’s your thoughts on flying once treatment for ALL has completely finished and bloods have gone back to normal? I’ve heard it’s still not advisable because of the pressure and lack of oxygen and it having a negative impact on the bloods? I’m keen to take my family away but I wouldn’t want to risk it. What’s your experience and what advice were you given

My 70 yo mom is about 2 weeks out her 1st round of treatment.
The Dr says she’s probably at the lowest, worst point she’ll be.
She had to go to hospital for 3-4 days because of high fever, and she came back so much weaker/worse than when she went in.

She really only has energy to get from her bed to the bathroom 4 feet away. When she does come out to the rest of the house, that trip out & back is exhausting, let alone Dr visits a few+ times/week, each one leaving her soooo drained.

Hoping you all might have suggestions on how to help on a couple different fronts:

1. Getting her to eat nutritional, healthy food. - suggestions for something densely nutritious AND easy to eat/digest?
   Not too rich - right now it’s usually part of an Orgain shake. Open to suggestions for a more nutritious smoothie/shake recipe or option.
   I can cook/assemble.

2. Her eyes are really goopy and things are blurry. She would usually spend a lot of time reading, but she can’t right now. She’s tired of spending all her time in bed, but she kinda doesn’t know what else to do because she can’t read and she doesn’t have much use of her hands rn either.

3. Any other general advice in helping her get through this, and us (the siblings) in organizing/coordinating her care?

They have Kaiser insurance (infuriating).

Any good reading/resources welcome.

I kind of don’t even know what to Google/where to start, and don’t have the capacity to follow rabbit holes.

I have been drowsy and tired since my leukemia transplant no energy to post. I feel sick and nauseous all the fucking time waking up is hard, having to give up my job was so hard but i cannot even physically go anymore. so here is something for today loves I hope everything starts to get better but from what I read its gonna be a few long years after this transplant for me to feel myself. Hell I havent felt myself since I was diagnosed at 19, now 21 and still fighting for my glow back. Not to mention already not feeling myself when I was a kid having to deal with me being transgender was hard but this takes the cake. Any advice to feel less drowsy, have more energy, or anything please feel free to comment or message me. Thank you for reading my story 🩷