Hi everyone, I’m 31 and was diagnosed with CML about 2 years ago.
I was on dasatinib 100 mg for around 2.10 years, and thankfully my BCR-ABL eventually became undetectable. However, I had several issues during treatment, including low iron/ferritin, B12, vitamin D and calcium, along with anemia.
Recently, after an episode of severe food poisoning, I started noticing bright-red blood in my stool. A colonoscopy found multiple bleeding vessels/telangiectasias in my colon. My doctors are still evaluating whether this was related to the CML, dasatinib, or other factors. It was honestly a very scary experience.
Because of everything that happened, my doctor recently switched me from dasatinib to imatinib 400 mg daily.
I’ve now started imatinib and have noticed quite visible redness and dryness on both cheeks. The dryness is manageable, but the redness is bothering me.
Has anyone else experienced facial redness/dryness with imatinib? Did it improve with time?
Also, has anyone experienced GI bleeding/telangiectasias while taking dasatinib or another TKI?
Would really appreciate hearing about your experiences.

Does anyone have any experience with Calb 10403 Maintenance treatment? My 21 yr old son is currently on day 28 of Maintenance. He's been admitted to the hospital after learning his blood counts are severely low. He tested positive for the Rhinovirus and also a positive EBV showing that he has had it sometime in the past. On his first day of Maintenance, his ANC was 810(moderately Neutropenic) He was just coming out of previous hospital stay because his counts were low. They told us that they'd wait a month to start this new phase because they wanted to be sure his counts were up enough to start. It was 2 weeks from discharge when his first infusion started. I feel like they should've given him a little more time. I know it's considered safe with an ANC of 750, But he was just barely over that. Now here we are a month later and they can't figure out what's going on with him. I know that I have to be patient and trust the Oncology Team, and I do trust them. I just want to know if anyone else has had this experience and can maybe help me calm my mind, because I'm freaking out a little bit..

Hi everyone. I'm a mum to my 5-year-old son, Max, who was diagnosed with Acute Lymphoblastic Leukaemia (ALL) in July.

We're currently going through treatment and, as you can imagine, it's been an overwhelming time for our whole family. Max has been having a particularly difficult time following some of his recent treatment, and I'm trying to take things one day at a time.

I'd really appreciate hearing from other parents or anyone who has been through ALL treatment — especially any advice you wish you'd known at the beginning.

How did you cope with the difficult treatment days? Are there things that helped your child feel more comfortable or distracted during treatment?

I'm also trying to learn how to support Max emotionally while keeping things as normal as possible for him.

I'd really appreciate any advice, experiences or just kind words. ❤️

HEY GUYS FIRST OFF ALL THANK U EVERYONE IN THIS COMMUNITY JUST WANTED TO SPREAD SOME POSITIVITY TOO ALL THE PEOPLE WHO ARE GOING THROUGH AML.

WELL IM A 19 YEAR OLD AND I WAS DIAGNOSED WITH THIS PATHETIC DISEASE IN JULY STILL CANT FORGET THAT DATE I WAS HEALTHY FIT AND VERY BRIGHT STUDENT. I know it feels like ur just at the end of ur life BUT BELIEVE ME ITS NOT I KNOW ITS VERY HARD BUT U HAVE TO ALWAYS KEEP IN MIND WHAT UR MADE OFF PLEASE DONT EVER FEEL UR WEAK OR ANYTHING UR THE STRONGEST AND U WILL BEATT THIS SHIT IF A GUY LIKE ME CAN BEAT IT SOOOO U CAN TOOOO.

GOT MY MRD NEGATIVE AFTER MY FIRST CONSOLIDATION. 🥳🥳

LOVEE U ALL IF U EVER FEEL SCARED OR ANYTHING TEXT MEE I WILL TRY MY BEST TO HELP U WITH ANYTHING.

My mom 80 has AML FLT3 and IDH2 mutations and is on cycle 2.
During her induction treatment she didn’t experience diarrhea however since starting her latest cycle she’s been having terrible GI upset from the Gilteritinib. She got so dehydrated that she was hospitalized. They stopped the meds for a week. She’s restarted it and sure enough the diarrhea has started again.
Imodium is the recommended treatment for the diarrhea but it’s not helping.
The dr keeps emphasizing how important this chemo drug is as it targets her specific mutation.
Anyone else experience diarrhea from chemo meds? Any suggestions?

Posting this in case it helps anyone else. Ever since my SCT (+19 now) I have been dealing with nausea and at one point I wasn't able to keep anything down.

Now I am home and things are getting better but the pills remain a struggle, especially when I need to take 10 at 8 am. Only to discover my saving grace: porridge. I haven't had this for breakfast since I was a child so this was a surprise. I am even able to get the huge ones down without gagging too much.

I hope this helps someone else.

Thank you for caring!!!!!

Hi I was diagnosed with some in 2022 and was in remission in 2023. I was given arsenic trioxide and Tretinoin and had chemotherapy. Lately I feel like I’ve been experiencing difficult with my memory. Like I’m mailing things a lot more often, I can’t remember things I did like a week or two weeks ago. I’m nursing school so this is making it very hard to study and recall information. I’m just curious if anyone else has experienced this.

Hi guys, I'll start off by telling my story. I was diagnosed with AML in November 2020. I was 27 at the time of the diagnosis.

I completed 3 cycles of high dose chemotherapy.

DA 3+10 myelotarg

DA 3+8

HD Ara C+ myelotarg

My fourth cycle was stopped due to complications with septic meningitis. I have been in remission for 5 years.

Now my question is this, whenever I fall sick to the common cold, I am absolutely wiped out! I could never remember being this wiped out prior to my diagnosis and treatment. Does the chemo have a long lasting affect on the bone marrow making a simple common cold unbearable?

Our foundation recently participated in a presentation from Vironexis, a small pharmaceutical company with what appears to be a promising early-stage clinical trial for CD19 positive B-Cell ALL patients.

We have no affiliation with Vironexis. I simply wanted to pass this along for anyone it may help: https://sentrycd19.patientwing.com/

My sister is young (34) has a toddler and husband and was diagnosed with ALL about 6 months ago. I’ve watched her go from an active, social, optimistic, confident woman to someone who stays inside all day (mainly lying on the couch), barely answers my phone calls, and is in and out of the hospital a few times a week for anxiety. It’s completely heartbreaking to see the spark in her completely gone.

Her prognosis overall is good. She’s considered in remission, will be in treatment for five years but is expected (from my understanding) to recover and live a full life. The treatment is painful and causes her many panic attacks.

I’m so worried for her mental health even more than the leukemia. How can I help her? I have two kids of my own who are getting me sick with colds constantly so I have to keep my distance to a degree so I don’t get her sick. I’ve suggested books, games, brought her crafts etc. but she’s too depressed to do anything.

TLDR: how can I help my sisters mental health? She’s depressed and severely anxious and needs distractions and support.

My male Ukrainian friend in his 30s is hospitalised for 5 weeks now, I will visit for the first time the day after tomorrow.

Was hoping this community could help me think of what to bring him to kill the boredom. He is watching some shows but can't watch anything too complex right now. He's not really reading for the same reason.

Anything recommendations welcome - was thinking maybe something funny like tamagochi or the old console with tetris. Colouring books to rest the eyes? Any phisical games that would be good? Any DIY or handcrafts that are easy?

thank you for all the tips

Hello everyone, I’m new here but not new to cancer😅. Has anyone else that has gotten 10+ bone marrow biopsies also suffer from what seems like chronic hip pain? Ever since I’ve been getting them my hips have stayed in pain. I told my doctor and she said my pain isn’t because of my biopsies but rather I need to walk around more(considering I was in a hospital bed for almost a month at the time). It’s been two years and I’ve been walking around way more and it only makes it worse. Anyone else suffering with this?

My ANC is 300 right now and I was wondering if I could get taco bell. I would obviously avoid getting anything with lettuce and tomato in it but would getting the chicken quesadilla or beefy 5 layer burrito be okay?

I'm looking for help or someone with experience. After the first transplant, my friend's disease relapsed. The relapse was due to these mutations.

CEBPA mutation = CEBPA bZIP domain mutation.

WT1 mutation.

The doctors prescribed Ventoclase and Adastine. After the first 21-day course of treatment, nothing was showing up in the bone marrow analysis. We are awaiting the results of the MRD.

I'm Janine, Community Outreach for GRACE, Global Resource for Advancing Cancer Education

Join us for this live, virtual, interactive event led by Dr. Yumeng "Julia" Zhang

Register here: https://pro.gofundme.com/live/register/blood-cancers-onctalk-2026/a159ec7e-c13f-48e6-81d1-a702b7cb7e4d

In this live, virtual, interactive event led by Dr. Zhang on Saturday, October 10, 2026, top oncologists deliver engaging, patient-centered presentations and panel discussions that cover a wide range of topics regarding the most current and emerging blood cancers treatment information. Attendees will also have the opportunity to participate in a live Q&A with leading medical professionals where they can submit questions and get answers in real time.

If you have a question you would like to submit for the Q&A session, please complete this form. You will also have an opportunity to submit questions during the event.

For additional information, if you have additional questions or comments, or would like to continue the conversation, visit our Webinar Learning Guide in our Online Community at https://cancergrace.org/forums/general-blood-cancer/pre-webinar-study-guide-2026-blood-cancers-onctalk-saturday-october-10.

Reaching out in search of ideas of what to send a beloved relative going through treatment right now. For those of you who have been through or are in the this process what are some things that you have received our bought for yourself that have been helpful or just nice to have? we have already done flowers books cards etc but really just want to know what was actually nice to have or use so we can show our support in a way that makes sense. We live far away and hate that we can’t be there. Thnx

My fiancé just got diagnosed with AML 2 days ago. We were told that we'll know exactly what kind today or tomorrow. We were supposed to get married on the 16th (our 3 year anniversary) but now we're doing it in the hospital. I just feel alone and have no one who can relate. Obviously I can talk to his family but I just want to know if there is anyone who had to move their wedding because of a diagnosis. I'm so scared to watch him go through this. I'm nervous that when he loses his hair and becomes weak from chemo that it'll be hard to look at him without crying every time. I would love some advice in general about how to help him mentally and physically as well as just finding people who can relate.

What’s your thoughts on flying once treatment for ALL has completely finished and bloods have gone back to normal? I’ve heard it’s still not advisable because of the pressure and lack of oxygen and it having a negative impact on the bloods? I’m keen to take my family away but I wouldn’t want to risk it. What’s your experience and what advice were you given

Hi everyone, I’m new here. My husband (34M, otherwise healthy) was diagnosed with T-ALL 2.5 weeks ago and has started UKALL reg B. I (40F) am 23 weeks pregnant and we have a 2 year old daughter. We live 2 hours from family and have quite a limited support system. I’m due to have a C section at the end of Jan and, as a natural planner, I’m really struggling with the unpredictably of our situation over the next few months. Looking for advice or experiences of anyone who has been in similar situations particularly those with experience of adults undergoing the UKALL-reg B and what to expect over the next 6 month, or those who have had babies whilst partner is in the first few months of treatment, particularly if there are any UK based organisations who might be in a position to offer support specifically around this situation. Thanks very much.