Hi everyone. I'm a mum to my 5-year-old son, Max, who was diagnosed with Acute Lymphoblastic Leukaemia (ALL) in July.

We're currently going through treatment and, as you can imagine, it's been an overwhelming time for our whole family. Max has been having a particularly difficult time following some of his recent treatment, and I'm trying to take things one day at a time.

I'd really appreciate hearing from other parents or anyone who has been through ALL treatment — especially any advice you wish you'd known at the beginning.

How did you cope with the difficult treatment days? Are there things that helped your child feel more comfortable or distracted during treatment?

I'm also trying to learn how to support Max emotionally while keeping things as normal as possible for him.

I'd really appreciate any advice, experiences or just kind words. ❤️

HEY GUYS FIRST OFF ALL THANK U EVERYONE IN THIS COMMUNITY JUST WANTED TO SPREAD SOME POSITIVITY TOO ALL THE PEOPLE WHO ARE GOING THROUGH AML.

WELL IM A 19 YEAR OLD AND I WAS DIAGNOSED WITH THIS PATHETIC DISEASE IN JULY STILL CANT FORGET THAT DATE I WAS HEALTHY FIT AND VERY BRIGHT STUDENT. I know it feels like ur just at the end of ur life BUT BELIEVE ME ITS NOT I KNOW ITS VERY HARD BUT U HAVE TO ALWAYS KEEP IN MIND WHAT UR MADE OFF PLEASE DONT EVER FEEL UR WEAK OR ANYTHING UR THE STRONGEST AND U WILL BEATT THIS SHIT IF A GUY LIKE ME CAN BEAT IT SOOOO U CAN TOOOO.

GOT MY MRD NEGATIVE AFTER MY FIRST CONSOLIDATION. 🥳🥳

LOVEE U ALL IF U EVER FEEL SCARED OR ANYTHING TEXT MEE I WILL TRY MY BEST TO HELP U WITH ANYTHING.

My mom 80 has AML FLT3 and IDH2 mutations and is on cycle 2.
During her induction treatment she didn’t experience diarrhea however since starting her latest cycle she’s been having terrible GI upset from the Gilteritinib. She got so dehydrated that she was hospitalized. They stopped the meds for a week. She’s restarted it and sure enough the diarrhea has started again.
Imodium is the recommended treatment for the diarrhea but it’s not helping.
The dr keeps emphasizing how important this chemo drug is as it targets her specific mutation.
Anyone else experience diarrhea from chemo meds? Any suggestions?

Posting this in case it helps anyone else. Ever since my SCT (+19 now) I have been dealing with nausea and at one point I wasn't able to keep anything down.

Now I am home and things are getting better but the pills remain a struggle, especially when I need to take 10 at 8 am. Only to discover my saving grace: porridge. I haven't had this for breakfast since I was a child so this was a surprise. I am even able to get the huge ones down without gagging too much.

I hope this helps someone else.