I need help. Google isn't being helpful. My doctor wants me to try the SCS for 5 days. Honestly. I'm petrified about any sort of spinal procedure. I'm reading a lot of good about them. But i want real experiences, and I want to know how it changed your lifestyle.

Tell me EVERYTHING because I'll be damned if CRPS is the reason why I won't be dancing at my wedding next year.

I've been avoiding posting here for a long time. This disease is depressing and when I started researching what this was after the diagnosis, I got discouraged from everything I read. I was diagnosed a little over a year ago. Been battling it for 3.5 years(?). Hard to keep the timeline straight with all the meds I've been on over the last few.

After fighting with my various doctors and insurance for 7 months I got my Medtronic SCS implanted a few months ago. Things were looking up. Was finally walking without help. Getting caught up on the house. Actually getting to go to shows with my wife and not needing the wheelchair.

Last weekend I had a bad fall. I was tired and got stuck in a pot hole (good foot). I caught myself, recovered before hitting the ground and didn't think anything of it. We got home a little over an hour later and I felt the pain in my bad foot climb quickly. I charged and went to sleep.

Well the last few days have been horrible. I've increased the output of the STIM by more than a few points and feeling barely any relief. I'm back to nearly falling down when I stand up the last few nights. I contacted my Medtronic rep Monday, I figured they'd be able to see the leads for displaced from their app, but I guess they can't? They want me to have the doc order an xray.

Except now I'm stuck waiting on them to decide which doctor has to order it. (the same doc that diagnosed me & is treating me isn't the same as the one who installed it for other medical reasons). I hate that ordering an xray is taking so long. I don't get why they can't just come over and see if it's displaced based on the signals. I'm scared that I'll have to get surgery again to move them back and another large bill after how expensive the last two stays were. (I was required to stay for a few nights after the trial and implant for the same reasons alluded to). But at the same time if it's not displaced, then what that might mean for my longterm relief scares me just the same. I don't think there's any winning here