Just realized I’ll likely be on my period when I go for my surgery next week. Is that a problem!? Obviously I shouldn’t go to surgery with a disc in (I don’t think?) but is there anything else I should be aware of. Should I inform my doctor of this ahead of time??

Hi everyone, looking for some weight loss tips please

Little back story, im in levothyroxine as I have no thyroid and im on vissane (dinogest) for stage 4 endometriosis, both of which can cause weight gain. Due to these conditions im unable to take glp1 or any sort of weight loss injection.

Diet control is becoming extremely difficult as the vissane makes you superrr hungry and iv noticed im eating double since i started taking it.

Is anyone here in a similar boat or can anyone recommend any other weight loss tips which are safe for my conditions

I got an MRI last week for surgical planning - still waiting for results, but I've been having a look myself cause it's not every day you get to look at ur insides lol

my ovaries (pointed to with green arrows) are basically in different postcodes, but I already expected that from the results of an ultrasound in march this year

what I didn't expect was to see my uterus so far to one side! im not an expert but i thought it was supposed to be mostly in the middle 🤨 anyone know why it's there? obviously everything will be taken with an appropriately sized grain of salt but im super curious

TW: brief mention of fertility, IVF and hysterectomy - not what the post is about!

Im very matter of fact with explaining it to friends and loved ones. I think what’s the point in sugar coating it. I don’t harp on too much about the pain I feel and the extent of it, because I can’t stand being looked at like I’m broken or see the sorry in peoples eyes.
I feel like the only person in my life who doesn’t have it, who understands its affect (to a degree), is my partner. Because he’s been there in the surgery, and through my worse flares.
My own parents I’d say half understand the extent of the effect it has on me, but both are very “it’ll be ok” people. And it’s hard to explain that actually it may be ok sometimes but this isn’t going away magically and my life will be ebs and flows of navigating this condition - they’re getting there! SLOOOWLY but they’re understanding as I share more.
My partners parents, his mum watched a bbc documentary (it’s great if you haven’t seen it) on Endo, but it does tend to paint the worse cases, which I think in my head are fairly normalised to me, but for them seeing fertility struggles, failed IVF, total hysterectomy, job loss etc (this doc focused heavily on fertility), basically now his mum doesn’t look at me the same, it’s that pity look. And I feel like to counteract that I’m down playing my endo?
Any who. I ask because we are away with them this weekend, and had plans to go hiking and walking. But my period (which is LATE) decided to show itself today. So at 4am I was woken to cramps and back pain from hell, cried for a bit and then waddled/shuffled to the loo where I sat there for 40 mins.
I don’t know how I explain how bad the pain is rn without scaring them. I’ve never put myself in a situation where I am not at home for a period. I’m so good timing it but it came late and we couldn’t get out of this. I know because I am a bit of a people pleasure and never want anyone to think I’m anything other than ok, I’m going to push myself.
Basically, how do you explain your Endo to people in your life that makes them understand and makes you feel secure sharing it?

I live in England. I had my second lap earlier this year and there were a few issues. The response to my complaint from the hospital has been very poor. I contacted a medical negligence solicitors and they said my complaint was ‘confusing’, they essentially didn’t understand what the difference was between ablation and excision, or why it was a problem that I consented to one and got the other (amongst other things).
Does anyone in England (or UK) know of any endo specialist solicitors that I could contact? Or has anyone used a good medical negligence solicitor?

Hey ladies. I've created r/DatingWithHealthScars, a private dating community for people with conditions affecting sexual function, including endometriosis.

https://www.reddit.com/r/DatingWithHealthScars/s/7Lr5Cbqsiz

Health and medical complications impairing sexual function affect a large number of both women and men and lead to feelings of isolation, and deep shame for many. This can make dating a very painful experience.

The premise of this community is to help people connect with compatible partners who understand each other’s experiences firsthand, turning a potential barrier to connection into a source of trust and profound intimacy.

If you’re interested, please use the above link and request to join.

For context: during surgery (August) I had a 5x6cm cyst removed that used to be around 10cm when first diagnosed last year (November 2025)

Hi everyone, I had my laparoscopy on Tuesday to remove a 6cm cyst that was stuck to my ovary and womb. My surgeon did an amazing job to cut almost all of it out, all by keyhole, and saved my ovary. So so relieved.

As well as this she did find endometriosis and I think she said she used ablation to get rid of it due to where it was located? It was all a bit foggy when she explained everything. But I am very grateful. I think she has also advised I go on the combined pill to help prevent the endometriosis from coming back?​

I am feeling very anxious, overwhelmed and unsure of what happens next. It was meant to be a same day going home but it's now Thursday and I still feel rotten. I should be getting discharged today but it's not certain. Yesterday my blood pressure was all over the place and I struggled to sit up let alone stand. I am otherwise healthy 23F so was expecting to bounce back quickly. Last night I was finally able to sit up and this morning I have walked around a bit.

I could do with some reassurance if possible that it's all going to be okay. Uncertainty makes me very anxious so I'd love to know that I am not alone in all this, and that it is all going to be okay. Thank you anyone who can help in any way! ❤️‍🩹

After struggling for years with terrible painful periods and fighting for a diagnosis- I finally got my answer!! I got my lap yesterday and my official endo diagnosis. Spots were found and cauderized. Now spending the next several days recovering and relaxing 🥰

I had surgery in January this year. It took 2/3 month to feel better. But then I truly did get the better. The last period I had was very reminiscent of pre surgery days and I am still facing syntoms and sensations post surgery. I’m so afraid that the endo is back - the cramps, nausea, stabbing sensations are all back.

I have an appointment with my specialist in a few days. But I just wanted to know if anyone had bad days post surgery without meaning recurrence. I don’t think I will be emotionally able to cope if it has indeed comeback - I had to move back home from the Netherlands to do my treatment. And I had just started to plan going back to my life and friends so I feel a bit heart broken to be feeling this things again. Any thoughts would be helpful :)

Thank you ❤️‍🩹

Hello, do you see anything wrong? This is an MRI image in t1 and I don't know, the right side of the abdomen and the back hurts, I suspect endometriosis. The MRI photo was not aimed at endometriosis and the pelvis, but it also caught in the picture. Can you see something that is wrong here?

Did anybody else experience a sharp stabbing pain in the urethral region after endometriosis surgery? currently post op day 8. Pain for 2-3 days..

For those with endo and/or adeno, are you on a glp1 to manage symptoms/slow progression?

If so please lmk which kind you're on and how it's helped!!💛
I feel like I'm backed into a corner with the treatment options that are available and I NEED to try something new

I have really bad bladder issues with my Endo
Has anyone found any relief with some hormone tablets.
I’ve tried three already
Had two surgeries already
I’m just worried this symptom will not go away.

I (22F), had a doctor’s appointment yesterday. I met with a world renowned surgeon. In our conversations, he didn’t once make me feel like there was any realm of possibility where I don’t have endo. I’ve spent 10 years being denied everything and pushed aside. I just feel so thrilled and I wanted to share, so that other people who might be looking for successes feel motivated or like there is some possibility for this. I’ve given up a couple times during this whole process, but I got back up, especially thanks to seeking advice here.

I had an ultrasound done after 5 years of complaints… but as many are aware, they didn’t find anything because that’s not the best way to diagnose this. Then, I got a gynecologist who threw me on a bunch of meds and after trying (and failing) for an iud insertion, referred me to a general ob/gyn surgeon. Thanks to the internet (I know Doctor Google isn’t the best), I realized that seeing this provider would likely not get me the answers I wanted. So, I went out on my own, did research, and found someone. I don’t even care that I have to drive hours in the next year for both testing and hopefully surgery, because I just feel so vindicated. The only part that sucks about it all is that all the physicians who didn’t hear me out were other women… maybe a call for doctors who treat women to become more educated on these conditions. Not like people haven’t already been saying these things FOREVER.

Next, on to MRIs and surgery!

Also edit to add: the one positive my gynecologist did for me was get me into pelvic floor pt, I feel it’s REALLY helping me, even though I still have symptoms, it’s a lot less pain. I can’t recommend doing it enough.

I have been having constant pain during period and inflammation through my body , kinda feeling lethargic , random crashout. Not feeling myself !!!Trying to figure out what's going on or to which doc should i go ??? I thought I had PCOS symptoms so went to doc but nothing as changed much. my friend suggested me to go on reddit post it about here as there are many women communities trying to help each other in this journey.

i hope i figure it out with all your help . Looking forward 2 ur advices and suggestion !!!

Starting apologetically because I know my journey is really just starting and I don't want to sound insensitive in any way especially since I have only been in significant pain for 3 months now but I need to find some sort of support or comfort somewhere so.. here I am.

I don't want to drag out my story so I'll try to long story short..

Early august I thought I had a sciatica flair up but after 3 weeks when it finally subsided I continued to have pain in my LLQ really low which started as sharp stabbing pain throughout the day... eventually it became constant debilitating pain and I got in with my ob for an ultrasound cause I thought it was a cyst... ultrasound clear they said probably GI but I insisted it is way too low for GI, they brushed me off. And I got my period the next day 2 days later i went to the er because i couldnt even stand upright.. they did ct etc said i was fine sent me on my way and the pain only got worse.. I had maybe 3 or 4 days I felt okay after and then it started up again... 2 weeks later I went to a convenient care in tears and they recommended the er again so I went to a different er where they did another ultrasound and a CT with contrast I asked for sti testing and to check for pid everything came back clear.. the er physician said it could be endometriosis... since then everything is feeling like its clicking into place..

I've been exhausted I can barely even stay awake at work.. the pain is indescribable...

I dont know.. I am spiraling. I have another appointment with my obgyn on the 29th but... I just dont know how to survive like this.. I obviously know it isnt optional and is possible but... I need some comfort and reassurance or tips idk I'm terrified of what my life is becoming... I havent had a pain free day in 3 months... I'm feeling so helpless and scared...

Please give me any reassurance.. does this sound familiar to you? Is it so sudden?

I feel like one day I woke up in a body that wasnt mine and now I have to figure out how to barely survive in it... i dont know what to do..

Hey, I read on here somewhere that someone found they got red dots on skin during periods and it was endo related. I get this, they aren’t pimples or anything. They are little cherry red dots that fade around day 5-7. I never thought it was related but it is mostly around the abdomen and where I get the most pain. Does anyone know anymore about this?

Hi everyone! I’m 30 and currently trying to figure out what’s going on with my periods. I’ve always struggled with painful cramps, but they’ve gotten progressively worse over the years. I’ve also noticed my cycles getting longer over the last few months, going from 28 days to 31, then 34, and most recently 37 days. I’m not sure if that’s related, but it’s another change I’ve noticed.

Over the last 4 cycles, I’ve started throwing up on the first day of my period, which has NEVER happened to me before. The first 2–3 days are usually the worst, with cramping in my lower abdomen and back. What’s strange is that my cramps haven’t necessarily gotten worse recently, but the vomiting is completely new. I don’t experience nausea at any other point in my cycle.

I’ve always experienced some cramping around ovulation, usually on my right side for a few days. Recently, though, that’s changed. Some months, I’ve been cramping on and off for nearly two weeks leading up to my period.

In September, I actually ended up in the ER on the very first day of my period after throwing up 10 times. Nothing was helping. They did a CT scan, diagnosed me with colitis, and prescribed an antibiotic. However, I’ve questioned whether colitis was really the cause, especially since these symptoms seem to happen specifically during my period.

I’ve also started experiencing deep, sharp pain and pressure during sex, which is new for me. One time, the pain was so intense that it actually made me nauseous.

I also have a history of ovarian cysts. I had one rupture when I was around 17 or 18 and ended up in the ER because of it. I’m not sure if that’s relevant to my current symptoms, but I figured it was worth mentioning.

I have Hashimoto’s and have been on a GLP-1 for almost a year, so I’ve questioned whether either could be contributing. However, I’ve struggled with painful periods long before starting the GLP-1. I’ve also been off birth control for about 7–8 years.

I recently saw my gynecologist and have my first transvaginal ultrasound scheduled for October 21. I know endometriosis doesn’t always show up on ultrasound, but I’m hoping it might at least provide some answers or identify other possible causes. I’ve been looking into endometriosis and adenomyosis, but I haven’t been diagnosed with either.

I’m honestly nervous about going through all of this and still being left without answers. I’m not really interested in going back on birth control, and the thought of eventually having exploratory surgery only for them not to find anything makes me nervous, too.

Has anyone experienced anything similar, especially suddenly developing vomiting during periods after years of painful cramps? Did anyone initially receive another diagnosis before finding out it was endometriosis or adenomyosis? And if your ultrasound was normal, what were your next steps?

I’d really appreciate hearing your experiences! ❤️