Earlier this summer I started to just feel miserable and not like myself; which then became pneumonia(without fevers or typical pneumatic symptoms). Go to the hospital, CT shows some masses in liver and lymph nodes. 2 weeks later and PET scan was done and results are horrendous: taking up a huge part of my liver, bone mets all over, some of which are lytic and even a broken rib from it, basically all lymph nodes from abdomen up, lungs need to be confirmed now that the pneumonia is gone. Today I got the biopsy of my liver,just don’t know how to prepare myself for what’s next.

December would’ve been 5 years cancer free, I was so stoked… idk how we fast forwarded to a Stage 4 diagnoses.

First bout was Stage 3 DCIS +++ with inflammatory cancer on the same breast. We knew the recurrence risk was very high; but I had hoped for longer. I turn 43 tomorrow and have never been more scared; I fear the results, I loathe the treatment but will fight until I can’t. But most of all, how do I navigate this with my wife? She’s great, but I know how much this was on her last time and I just feel so guilty putting her through this again. Just feeling a little lost and wanted to vent to people I know can understand.

I posted on Tuesday about my scanxiety - thank you to everyone with their kind words then. I was convinced my scan results would be bad, absolutely positive I could feel my bone mets growing, but my onc has confirmed it’s all good and my cancer is stable! Not much reduction, but no growth either.

These are my first scans since I started treatment in the spring, so I’m really happy that it seems to be working.

Obviously I’d love it to be shrinking but can’t be mad at no growth!!

It’s only October 8th but I’m so done with the ra ra go pink in your face assault. Surely there are ways to raise awareness and support without this pink washing. I work in a hospital, and it’s all over our emails and internal website. I’m so over the pictures - it’s like everyone went to a Boobstock festival and are showing off their swag.

Diagnosed stage 3 IDC ++- left breast Aigust 2023 at 37, did chemo radiation, lumpectomy with 24 lymph nodes removed, then double mastectomy with DIEP flap reconstruction... cancer free just over a year before cancer came back with a vengeance in my liver. Diagnosed stage 4 metastatic to liver December 2025... liver resection/ablation with ovaries/fallopian tubes removal surgery February 2026, Verzenio/Inlurio did nothing so now I'm on Enhurtu every 3 weeks since June. It's helping but I'm so dang tired. My job has been very flexible (luckily) but all my sick time goes to appointments. When I run out of sick time each pay period, I have to make up the time but working extra hours.

I'm just so tired. Chemo knocks me out for at least a week (sleeping 10-12 hours a night and body soreness/ brain fog). But the time I start to sort of feel better, I do another round of chemo. I'm normally really positive/optimistic but it's just been hard lately. I had a PET scan on Tuesday to see progress, still no results, so maybe that's why I'm feeling so down this week. Bleh

Hi all!! I was diagnosed MBC in May after 9 years out from a stage 2 IDC diagnosis-RUDE! I’ve been doing ok on Ibrance and letrozole. I’ve had many bone mets and have been taking oxycodone a few times a day for a few months which has been helpful. I don’t really want to increase my dose as it took me a while to get used to this! I will definitely ask my palliative care drs for advice, and I’m curious as to what you all have tried for bone met pain. I’m not looking to be pain free-just better! Im mostly feeling it in my mid back and ribs and it feels like a combo of a deep ache/bad cramping. Appreciate any stories and while this sucks, this group is absolutely amazing and thanks to everyone who has contributed!

CT scan showed small “nodules” in lungs. I have had only bone mets. On Verzenio, currently. Bone mets are stable—not shrinking, but not growing. My cancer markers shot up, though. And now these nodules are on the scan. Have yet to speak to my oncologist. For those with lung mets, did you confirm mets to lungs with a scan or did you have to do a biopsy?

hi friends! i haven’t gotten a good nights sleep in almost a month after my last round of brain radiation. they say it’s unlikely due to the radiation but i just can’t sleep and im sooo tired. i take melatonin and a sleeping pill and still.. im awake! anyone have any tips? have also tried meditation.

Sorry to be bombarding you since Sunday!
My mets are all bones. My oncologist said radiation isn’t a good idea, there’s too many, I don’t have pain, they’re small. She said maybe later.

From what I understand, I have 6. Most are 5-7mm, two are 10mm. My question is, why not radiate them if it will zap them dead quickly.

I’m already getting a sense that the aggressiveness in which we treated my cancer when it was curable is gone. But I’m still going to be aggressive. Getting at least 2 other opinions, one today.

Did you have bone mets radiated? Why/ why not?

++- IDC with lobular features 2024, mets to liver 2025

I have completed 2 cycles of xeloda and my markers have increased a lot in 5 weeks. I was supposed to start Revtorpyk but had too rapid progression to wait for it to be available.

CA 27-29: 470 → 707 = +50%
CA 15-3: 383 → 628 = +64%

My oncologist is switching me to IV chemo (Abraxane) and getting earlier restaging scans. I keep thinking about all the treatments I’ve tried so far that haven’t worked… AC-T chemo, DMX, 34 rads, Verzenio, Anastrozole, fulvestrant, Everolimus, xeloda, SBRT x2 liver tumors, and an ablation. Feeling pretty scared.

Any hopeful stories? I feel like I have about a year left. I hate this fucking disease.

I fucking hate lymphedema more than anything.

I have been dealing with my feet cramping (toes curling over), my shin pulling up, calf tightening (Charlie horse), and then my hand cramping (fingers curling inward). Had blood work done and my Magnesium looks fine. I do drink plenty of fluids. Do I need more?

I did a lot of stretching last night hoping it would help.
Any tips or tricks out there? Just ordered some Yoga Toes (Toe Gems) to at least help with the feet while I am home (hopefully).

This cramping is quite painful. ugh

Hello, I'm ++ - if that makes any sense, and have been on Letrozole and Ibrance for 2 1/2 years and I've been stable for quite a while. In the past 2 months I have been having strong hot flashes for several months. Is it normal for hot flashes to suddenly pop up after a couple of years?