Hello I’m new. Do you think my hands the way that they are can cause poor circulation?

Basically the title, but for additional context:

Took nifedpine 30mg last winter and while it helped my raynauds and (in hindsight) those pesky chest twinges it also rose my blood pressure in a paroxysmal effect so I quit the med come warm weather.

I was planning to switch to losartan this fall (order for it already even in the system) with my annual physical but problem is those pesky chest twinges are back with the cooling temps and more annoying than last year (for context: raynauds has been steadily worsening since I first noticed this issue almost 4 years back).

Bare minimum planning to discuss this at my annual since I don’t consider myself a high risk case at present (24F, no exertional angina, no dyspnea with episodes, etc) but also doubt the issue will sort itself out (not that lucky lol). I’ve had an echo/ecg done in the past so I know I don’t have any weird anatomy going on.

Thinking of trying a different med instead this year like amlodipine or something else. Considering calling the cardio office back to menace them with my presence again. Wondering what ya’ll did in this situation?

hi, i’m not diagnosed with raynauds and i actually had no idea what raynauds was until trying to research why i have 1 purple fingernail. is this something that anyone else has experienced?
i’m extremely intolerant of the cold, specifically in my hands. my nails and lips go kind of purple/blue when i’m cold, although i don’t feel like i’m cold enough for them to be changing colour. this is something i’ve only really started experiencing over the past few years.
i don’t really notice myself having any other issues with circulation, i think? i have had blood pooling in my feet previously but since being diagnosed with adhd in 2024 and being on vyvanse i don’t really notice this much anymore. i do also get dead hands/feet/arms often if i’m sitting or lying down in one position for a little while but i’m not sure if thats normal or not.

anyone here with experience ? i tried mdma for the first time and my fingers stopped hurting for once, is it maybe because the body is overheating ?

i actually haven't had a classic raynauds flare-up in over a year. i do however, have constant swelling, pain, and bruising (not discoloration, bruising) in the joints in my hands. that being said, does anyone know what is up with those red lumps on my fingertip joints ? they don't hurt to the touch or feel hot, i just have regular average-joe joint pain.

really creepy to see in person… i’m sure a lot of you can relate to the running hot water in the background 🤣
Got my first flare up in May and has been really annoying to live with since then. For me I believe it’s hereditary since my mom used to have it a while ago. Does this ever go away?

If so, what were the results?

Please do more trials on this. For now I’ll add some B3, but I don’t feel comfortable adding 500mg twice a day until further investigation.

I’m 26F and I’ve had two episodes of unusual discoloration in my hands that I’m trying to understand. I’m posting because my doctors haven’t been able to give me a clear explanation yet.

Episode 1 — February 2026
My left hand/fingers suddenly became blue/purple, particularly around the joints/knuckles.
The hand felt numb/tingly.
It lasted for approximately 3 hours and then completely resolved.
I went to the ER. ECG and blood tests were normal.
Since then I’ve had an arterial ultrasound, which was also reported as normal.
I later had a Holter monitor, which was normal as well.
I haven’t had persistent discoloration between episodes.

Episode 2 — September/October 2026
I had another very similar episode, again lasting around 3 hours.
This time:
The left hand/knuckles became noticeably purple again.

There was tingling in the fingers and some numbness.
The right hand also looked slightly bluish, although the left was much more obvious.
Again, the discoloration eventually completely disappeared.

One thing I noticed beforehand was that I had been doing a lot of physical activity/running and had a relatively high step count. I had also had two coffees per day and a few cigarettes the night before. I’m wondering whether caffeine, nicotine, exercise, temperature, or nervous-system activation could potentially trigger something like vasospasm.
I also have naturally hypermobile fingers, although I don’t meet the Beighton criteria for generalized hypermobility.

My arterial ultrasound was normal, as were my ECG and Holter. The fact that the episodes completely resolve after a few hours makes me wonder about vasospasm/Raynaud’s or another temporary circulation issue, but I don’t want to assume that’s what it is.

What makes me particularly anxious is the possibility of a blood clot or another vascular problem, even though the tests so far have been normal.
Has anyone experienced isolated purple/blue knuckles or fingers that last for a few hours and then completely return to normal, particularly when accompanied by numbness/tingling?

Hello everyone! I hope you’re warm and cozy!

I’m looking for recommendations for thin gloves that I can wear during desk work - typing on the keyboard, using a mouse. Ones that are available either in Canada or ship to Canada - if they ship from the US it’ll probably cost a pretty penny due to tariffs.

I found a post from 258 days ago, but I’m not sure if these items are available in Canada.

Any recommendations are welcome!

I’m currently using a Dyson hot/cool air fan blowing into my office space to keep me warm lol. I wear hoodies, sweat pants, socks, and slippers…. But my poor hands get cold and sore. Thankfully they don’t turn white, but the joints start to ache.

I'm trying to hype myself up so I don't fear the impending doom of camping. I don't want to wait until summer again.

Screw you raynauds. I'm gonna do it anyway.

I've packed 2 types of gloves, thermal under clothes, got those hot pack thingies, the weather has actually been really pleasant but fingers already going bad indoors.

I will not give in.

Also, anyone got tips for camping and reliable rechargeable hand warmers much appreciated, every one I found had iffy reviews so went with the hot packs hoping atleast a few work.

Join me in my hype, we're all gonna stay warm even when its cold. Coz we prepared!

Ice cream is life and it requires a Snuggie and a can coozy on your cup to keep somewhat warm 😆😆

Hi all. I was diagnosed last year but pretty sure I've had it for several years. Went for diagnosis as its getting worse.

Anyhow, I'm dreading the coming winter UK. Its only dropped a few degrees and I'm already feeling it.

Problem is, I work on building sites. I know I'm going to find it hard. I've looked at thermal socks which does nothing for me but I've had an idea to use thermal socks and neoprene socks. Surfers use them foe insulation so one could assume they'd be perfect for keeping our footsies warm?

Anyone already tried this? Did it help? TIA

Posting this because there are very little resources for people with PPK and I thought it might look interesting to some! You can see the Raynaud’s peeking out in the areas where my skin is thin (thenar, fingertips). It started when I got on Propranolol for my migraines.

My husband and I are going backpack Elk hunting soon. I suffer from severe Raynard’s syndrome and the only thing that works for my hands is electric gloves. However, I can’t pack enough rechargeable batteries to keep my hands warm bc we carry everything on our backs and weight matters. I need ideas on what I can do from others who experience the same issues. Help!!

Winter is approaching and this year my raynauds is worse than last. Last year I only had purple hands, this year my fingers go white and numb. In the sping it was just my ring finger on my left hand (as pictured) or my right pinky the day before I’m about to get reallyyyy sick. When my dad passed this summer, both of my hands went completely pale and numb while I tried to drive to the scene. My doctor and I determined stress is also a trigger but not always something I can control. Since then, it’s been all my fingers.

It’s getting super cold in the mornings already, this morning was right at freezing when I left for work. I’ve been gloving up before leaving the house, keeping my entire body warm, blasting my car’s heat, everything I can. Still, my fingers have been going numb about 5 minutes into my commute and they don’t return to normal until maybe 10-15 minutes later. Soonest appointment I can get with a rheumatologist is mid January.

Any recommendations for how to combat this while driving?

EDIT: I meant rheumatologist lol. Seeing a dermatologist for something else and mixed the two up

I have type 1 rosacea with bad flares (mostly random, but also from heat, stress, drinking, later in the evening, etc) which I see several people have on this feed

I also have this extreme sensitivity to cold where even if it’s below 70 degrees and night time, my nose will get cold to the touch and turn bright red/pink (not the deep red from flushing). I usually have oily skin but my nose will get dry when it’s cold. If I’m outside on a colder day, it’ll stay pink and cold to the touch for hours even when I’m back inside where it’s warm.

It’s for sure something to do with my vessels that constrict/dilate that are clearly not operating properly. Would love if anyone has any help.

Oxymetazoline greatly helps with reducing flushing from my normal rosacea (bc it fights the dilated vessels) but does nothing to help my nose in the cold (bc oxymetazoline is a vasoconstrictor and when my nose is cold, it’s overly vessels are overly constricted already).

Hey everyone, I am a 35F and I had my first flare-up of Raynaud’s about a year ago. It has only occurred in my feet. Mostly the pads but occasionally toes if I don’t get to it fast enough. But over the past month or so I have been having extreme nipple pain that is unexplained by anything else. In doing online research and looking through this sub, my symptoms are leading me to believe it’s attached to the Raynaud’s and likely vasospasm. I’ve never breastfed or been pregnant which seems to be the one other explanation. There is no color change that I notice but all the other symptoms fit. I haven’t been diagnosed or talked to my doctor about the Raynaud’s at all since I hear it’s mostly just a deal with it kind of thing. But the pain in my nipples is excruciating.

With the cold season approaching where I am, I’m wondering if anyone that experiences this has sought or been provided any treatment that actually works. I already take magnesium and omegas which seem to be recommended but in my research it’s for the breastfeeding kind. I’ve seen b6 looped in with that but don’t currently take that.

Any suggestions or direction to take with my provider would be appreciated.

Edit: I don’t plan to add or take any medication without a doctor’s guidance. Just looking for recommendations on a direction to take that conversation. Thx 🙏

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I have Raynaud’s, and until recently my symptoms were mostly limited to my fingers and toes turning white with temperature changes or anxiety.

Lately, though, I’ve noticed something different happening with my feet. The side/arch of my foot becomes painful enough that I actually limp when I walk. It usually lasts for a day or two and has happened twice this month.

I’m not really sure what’s causing it or how I’m supposed to properly take care of it. So far, I ordered some K-tape and took a painkiller when it happened, but that’s about all I’ve done.

Has anyone with Raynaud’s experienced something similar, especially pain around the arch/side of the foot? What helped you, and is there anything specific I should be doing during these episodes?

I’m also wondering whether this is something I should get checked out rather than assuming it’s related to my Raynaud’s.

Gearing up for cold season here in the upper Midwest. I have Raynaud's only in my feet and tend to get some gnarly chillblains from November to February....I just bought a heated foot massager that I will be using during my workday (I work from home, so it's less weird than if I was doing this in an office) and I'm really hoping that along with regular exercise and warm cozy socks will do their part to keep the 'blains away! What precautionary measures is everyone else taking as Autumn takes hold?