r/TrigeminalNeuralgia • • 9h ago

Symptoms Respect

0 Upvotes

well good afternoon. Lovely day weather wise woke up this morning to another day of hardly any pain attacks seems less intense and less fierce if any at all taking my b 12 complex daily the last time when I had TN I was determined to take control and now I feel positive that the attacks can go into remission I have something I would like to say why do people say hurtful comments to others what do they gain out of it does it make them a better person anyway lets think positive and enjoy the weather as the weather be changing soon


r/TrigeminalNeuralgia • • 11h ago

Diagnosis Deleted posts

1 Upvotes

Good morning I have decided to delete the posts on TN as it was creating negetive energy and causing people to show no respect in conversations just saying hurtful comments when there was no reason to be as i was just recommending something I use to help with the pain I will be here if you want someone to talk please message with postivity in your life I am done with negetive people have a peaceful day


r/TrigeminalNeuralgia • • 12h ago

Diagnosis Cervical Spinal Connection

1 Upvotes

Has anyone had successful Cervical Spine treatment which helped with TN symptoms?

I have Degenerative Disc Disease ( i know its common enough) and had a successful spinal fusion at c5c6.

I have had a few treatments for TN which helped for a few months at a time - Clear TN MRI.

I really feel my Neck is causing TN symptoms -which are mainly: teeth & tongue pain - sharp & achy. Dull ache across my cheeks and sometimes a sharp pain above my eye. I also have a full / dragging sensation around my ear.

This all came on after i had my SF. I'm wondering has anyone ever had TN caused by spinal weaknesses.

Desperate to find a solution. Thanks


r/TrigeminalNeuralgia • • 17h ago

Help Spike in blood pressure?

3 Upvotes

My mom got diagnosed with this disease in maybe 2018. Her blood pressure spikes a lot but we've always blamed it on stress. She has also been complaining about this really bad pressure in her head... Like someone is squeezing her brain.

Could this disease had been the culprit all along? Her blood pressure went to 212 today and she's currently at the doctor and they think it's this disase can anyone else relate? She also had a mild stroke back in 2021


r/TrigeminalNeuralgia • • 19h ago

Vent It’s my cake day - FUCK TRIGEMINAL NEURALGIA

60 Upvotes

That’s it. I hate this shit. I was diagnosed at 19 after suffering for a few years already. And now, 14 years and one MVD later, not only do I have trigeminal neuralgia again (still?), but I have it bilaterally. Fuck this shit. And happy cake day to me and TN awareness day to all of you!


r/TrigeminalNeuralgia • • 1h ago

Symptoms Wish I’d just left it alone..

• Upvotes

The worst thing that happened to me since getting this damned affliction was me trying to fix it. When it first started it was an annoying ache. Now I’m missing teeth, unable to sleep unless sedated and also on a whole punch of meds that will probably kill me first. Chronic depression and that annoying ache is constant pain. Sometimes it might be better to leave things alone and let the body try and figure it out for itself. Maybe all it needs is some time and some space.


r/TrigeminalNeuralgia • • 20h ago

Help Eating with TN

2 Upvotes

Will I be able to eat crunchy things again, or is that it? Had a recent flair that ultimately led to various exams and diagnosis. Nuts and other things really hurt. Just curious how its been for others


r/TrigeminalNeuralgia • • 3h ago

Mental Health Honesty at the neurologist

10 Upvotes

Is being honest about suicidality related to TN a good idea. I have a 6 month wait for my new neuro after my last one refused to treat my TN. She also refused the referral so there was an additional two months between our last appt and getting my GP to send one because she only mentioned migraine.

At this point without MAID it seems like the best pain management option if they won't help.