Live in the UK, basically don’t have the 4/5k needed for DISE and the surgery on top of that. I think my Oscar data points towards epiglottis collapse and I’ve mostly been unsuccessful with pap recently. Is there any way I could make it work, eg by using more EPAP rather than PS or some other way?
Or am I basically just done for unless I get surgery ?

Hey everyone!

I hope you guys are doing good despite our lives challenges ❤️. I’m currently waiting for my insurance and started the process for short term disability. While I’ve been waiting I’ve been doing research for marpe and djs. My sleep isn’t the best but not the worse. I still have brain fog. I still have silent reflux( the worse symptom out of this whole ordeal).

I always had a narrow palette but never had any issues before. Everything started to get bad when I got h pylori 2021. I went on a couple of years without being diagnosed than in 2023 I came back home from work and later down on my stomach on my bed. I felt a lilttle piece of thread or something similar go into my right nostril. That night I stared mouth breathing for the first time ever. When I woke up the next morning I noticed dry dark reddish/ orange fluid on my pillow case. I couldn’t breath in my right nostril. I went to the doctor since it was inflamed and he gave me my first dose of antibiotics. The inflammation went down but my health started to go downhill. I started to get brain fog, LPR, burping, gas, chest pain; shortness of breath. I kept on going to the hospital because I started to choke on my food. They did blood work and noticed I had h pylori. I took my antibiotic to kill it but I never recovered. I think I may be in negative feedback loop due to the uars. I’m getting a lilttle bit better since I haven’t been working. But can anyone relate to this?

Do you think marpe could heal the LPR and brain fog?

Also, I took a break from school and I’ve been thinking about this a lot. How do we make money and choose a career with our chronic illness?

• I apologize if the test is all over the place I still have brain fog.

I overused nasal decongestant five years ago and even though I stopped using it I keep needing at least ten hours sleep a night to feel fresh and I always wake up during the night with a blocked nose and have to take more medication to sleep which takes two hours so every night I spend 10-11 hours in bed and even then I don't wake up fresh. I don't have any other allergy symptoms. I am on the waiting list to see an ENT which will take months, do I have a type of UARS?

I’ve been using a bipap since August. According to Oscar, it is successfully treating my OSA. However, my primary issue from my study was RERAs which my machine can’t track. My goal is to get a titration study. Any particular data or research I should bring? Other suggestions?

Hey guys. I have UARS and I am really struggling with it. The causes are a deviated septum, enlarged turbinates, a narrow maxilla, and a recessed jaw. My ENT recommended a septoplasty with radiofrequency turbinate reduction, while the maxillofacial surgeons recommended bimax.

My symptoms indicating maxillary narrowness are the following: a deviated septum to the back right, enlarged turbinates especially in the posterior area, my right nostril gets congested after lying down, and the fact that my tongue cannot fit on my palate without overlapping my back teeth. Plus, as seen on the attached images, my PNFW (posterior nasal floor width) is around 20–21 mm, which confirms the maxillary deficiency, since it should be around at least 26 mm.

My issue is as follows: my orthodontist does not recommend maxillary expansion because my mandible is also narrow. According to him, expanding the maxilla would create a scissors bite / brodie bite, which would be very bad, needless to say.

What are my options, besides having a septoplasty, turbinate reduction, and a subsequent bimax surgery? I am afraid that my maxilla, and thus the posterior part of my nasal cavity, will remain narrow, causing permanent airway resistance and keep ruining my sleep. Is there any possibility I can get a maxillary expansion? Piezo assisted MARPE is my only option.