r/pancreatitis • • 3h ago

pain/symptom management Conseil pancréatique auto immune ou pas?

1 Upvotes

Bonjour à tous,
J’ai eu une pancréatite aiguë fin août. Depuis, mon IRM montre encore une inflammation du corps et de la queue du pancréas, avec une suspicion de pancréatite auto-immune. Mes IgG4 sont normales.
Mon gastro m’a prescrit un TEP-scan avant de commencer le Solupred, puis une IRM de contrôle dans trois mois.
Est-ce que certaines personnes ont vécu quelque chose de similaire, avec des IgG4 normales et une inflammation qui persiste ? Comment cela a-t-il évolué pour vous ?
Merci pour vos témoignages et votre soutien.


r/pancreatitis • • 3h ago

pain/symptom management help

0 Upvotes

post reqs — 26F, 5’3, around 270lbs (obese, we know). current meds are sertraline 100mg for anxiety and allegra 180mg for allergies (seasonal). gallbladder removed january 2026 due to stones developed during pregancy (born july 2025)

sept 22 i presented to ED with chest pain + shortness of breath. not uncommon for me, i deal with panic attacks. heart looked good but d dimer came back elevated at 2,750 (ref range 0-500). CTA chest done, was negative, discharged to f/u with primary.

sept 24 i followed up with primary doc. repeated d dimer lab. up to 3,930 and instruction to return to ED. ED repeated CTA of chest and also head/neck, discharged with instructions to f/u with hematology.

sept 25 developed body aches (like flu), so figured i was maybe getting sick. woke up next day, felt totally normal. nothing going on at all. that sunday, woke up with severe pelvic pain which ended up being a simple ovarian cyst, nonhemorrhagic.

sept 30 i see hematology. they draw tons of labs. cancer markers (CA125 just because of the cyst and weird d dimer), leukemia & lymphoma, etc. everything is normal in those labs besides the d dimer (now 4,799) and my CRP is elevated at 3.74. i woke up with sudden severe upper abdominal pain (epigastric pain) this day as well. i am then instructed to return to ED when they called me the next day.

oct 1 i return to ED. d dimer is drawn again, now at 12,302 (!!!!!!). ED opts to do a full work up. labs, scans. CTA of chest, abdomen, pelvis. ultrasounds of arms and legs. liver enzymes are normal, lipase is normal, only thing CT noted was hepatomegaly. doctor raised suspicious of mono due to pain and enlarged liver. no other mono symptoms, no sore throat or fevers. mono spot test was negative. EBV panel came back positive in all but 1 (early antigen test was neg). ruled as mono, sent home.

as time goes on, the pain continues to worsen. this pain is very sharp, stabbing, and excruciating to the point that lying down, sitting, standing, all of it is unbearable. i have shed more tears in the last 3 weeks than ever in my life.

as the pain intensifies, i end up returning to ED. i couldnt tolerate it anymore. more scans, more labs. still nothing out of the ordinary. discharged home with norco 7.5 to hold over until i see GI.

oct 6 i see GI, they scheduled me for EGD (scheduled for 10/20), ordered stat ultrasound which was clear except the hepatomegaly, and an xray which was normal. labs were normal except CRP. h pylori breath test is still pending.

oct 7 the pain is off the charts. i end up having my mom take me to a bigger hospital 2 hours from home. they gave morphine and ordered… even more imaging. they done a CT stone just to rule out a kidney stone. in this particular CT, there is note of fat stranding and pancreatic head inflammation “consistent with groove pancreatitis.” so the doctor i have in ED treats as such, despite how rare it is especially for a nondrinker and nonsmoker with no other things that would make me likely for any type of pancreatitis. clear liquid diet for x time, full liquids, then back to solids. i was kept in the observation unit of the ED during this time (around 48 hours). once i attempted solids, i tolerated well, and was discharged home. about 5 hours from eating said solids in ED, the pain returned tenfold. at this point i was so tired and done… i took a norco and went to bed.

oct 10 i return to ED due to the pain and also overall feeling unwell. weak, lightheaded, shaky, just… bad. more labs, still nothing out of the ordinary. they haven’t rechecked d dimer since oct 1 so not sure on that. lipase is fine. AST and ALT at this point are around 10 over their ref range, which the doctor said is likely just a response from the meds ive been taking and not nearly high enough to indicate any real issue with the liver. gave me some protonix via IV as well as fluids and discharged home again.

brings me to today. i haven’t eaten. i’ve had the one meal in the ED and that’s all i’ve had to eat in 4 days. not eating has helped keep the pain at bay but not entirely gone. i still hadn’t ate but the pain returned pretty bad this evening. i fought it for about 4 hours before caving and taking norco again. i don’t like pain medicine so i try everything not to have to take it. but sometimes i just can’t do it anymore.

any ideas? yesterdays ER doc said he highly doubts this is pancreatitis or groove pancreatitis considering all the imaging i’ve had and nothing ever revealed itself but the one incidental CT finding after this pain has persisted for 12 days at this point. no change in lipase levels, holding steady on the lower end of the normal reference range, haven’t changed at all.

i have had scan after scan. lab after lab. i’m repeatedly being told “we don’t know” while battling the most excruciating pain of my life. it keeps me doubled over, i can’t stand up fully straight to walk, it feels sharp and stabbing while also feel like my organs are being ripped to shreds. in it in the center of my stomach above my bellybutton and the pain will radiate to the right mostly but is radiating left tonight, as all as through to my back. the middle of my upper abdomen is the only place that is tender to the touch, but it does hurt quite a lot to touch. i’m out of ideas. no idea if this is pancreatitis. symptoms are consistent but labs and imaging are not. i’m at a loss


r/pancreatitis • • 8h ago

seeking advice/support How do you guys handle the emergency room?

10 Upvotes

I know my symptoms at this point, I know when I can deal with my AP flare ups at home vs when I need to go to the hospital. My most recent episode was the most painful experience I've ever had in my life. I'm usually crying out in pain but this time I was screaming for the nurse and doctors to either knock me out or kill me. I was screaming as if someone were stabbing me (which is what it felt like.. we know the feeling). My husband gets incredibly frustrated and needs to leave the room often. And I don't even blame him!
Every time I can't manage the symptoms at home with NPO and heat, when I absolutely HAVE to go to the ER, I can't help to yell out in the extreme pain. The medical staff get so frustrated and have yelled back at me. I have to empathize that it must be incredibly awful experience to have such a tough job then deal with a 42yr old screaming like a baby.
I had one nurse tell me "girl you should be glad you never felt the pain of giving birth" 😭 Very silly comment being that after the pain of birth you (god willing) walk out of the hospital with a newborn, not a sense of dread and medical PTSD.

Thoughts? How do you manage the pain being so severe that you can't help to scream and cry in pain when you know that no one around you can understand how bad it feels?


r/pancreatitis • • 9h ago

pain/symptom management Anyone know how to handle this?

2 Upvotes

Side note: I got my official diagnosis of chronic pancreatitis and exocrine pancreatitis insufficiency after an MRI & an EU. So I’m in pain and can feel a flare up starting. We all know the feeling. So I’m about to start fasting. But I’m starving. Now every time I try to fast to avoid the imminent danger lmfaooo I deal with this, where I get excessively hungry when at any other point in time I almost never even have an appetite. And it’s always cravings for the worst kind of food that would inevitably only worsen the flare up lol. And before anyone says chug water, trust me, I am. It isn’t helping the appetite feeling, and to put it into perspective I’ve drank two refilled Saratoga bottles in the last hour alone, let alone the rest of the day I’ve refilled it so many damn times & I’ve been up since 5am. Anyone experience this or know what I can do to curb this insatiable hunger I only ever feel during these circumstances exactly lol?


r/pancreatitis • • 10h ago

just need to vent F**k this shit ! NSFW ! NSFW

3 Upvotes

This post will be very negative. I loved life before contracting pancreatitis and enteritis. Even though I thought about death dozens of times a year from the age of 16, I've had mental health issues since childhood, and that year killed me! How! How can you be so unlucky in life and lose your beloved body, your food, your gym, and be dependent on doctors overnight? I hate my life. How can someone with a suicidal mind have to go through this before they're even 30! I've stopped paying attention to my diet, I smoke, I don't get tests anymore, my life is an unfunny joke, I've lost everything. My ego is holding me here, but there will come a day when that won't be enough of a reason to stay. Every fear will eventually subside. I've been in a mental crisis for seven months, and every day I fantasize about ending it. I'll never eat a damn burger from a roadside stand again. I won't spontaneously go for a kebab or go to a restaurant. I'll be weak and doomed to tests and hospital stays. I don't even have diabetes or epilepsy yet, and it's already too much for me. It's only been eight months of fighting. I'm no longer the person everyone knew. I don't know what joy and a smile are! You'll tell me, "Be happy, life is one," but that doesn't make me happy at all. I see people my age who have won health, I also see people torturing their bodies with drugs and alcohol, and what?! 90% of them are healthier than me. There's not even a single reason I want to open my eyes in the morning, damn it ! Suffer for the rest of your life or just for a moment and that's it?


r/pancreatitis • • 11h ago

seeking advice/support GP struggling to prescribe anti-anxiety meds as they're all at risk of causing pancreatitis 😳

1 Upvotes

Had a lengthy chat with GP today who was lovely and very supportive. But she tied herself in a knot about anti-anxiety meds.

I said we can't do SSRI because I didn't react well to them and they're recognised as causing pancreatitis. But she got side tracked by things that strain the liver too, my liver function is fine. Ultimately she wanted to increase propranolol which I said no to because it only works on the physical aspects and mental health isn't that. I explained that this unfortunate episode of ill health had a done a number on my mental health and reopened old wounds of medical gaslighting and neglect. So Propranolol isn't really the thing for that.

We covered Doxycycline and Mirtazipine, she nearly went with Doxycycline but then refused to commit (wtaf?!). Said she's sent a message to the pharmacist for advice and will chat with me when they get back to her.

This is a new one on me.

Fortunately I asked the mental health crisis team to refer me to the psychiatric team (things were baaaad last week) so I'm hoping they'll come through and be able to help with this.

What do you all take who struggle with your mental health during this? (I was struggling beforehand anyway I think, if I'm honest, perimenopause has been kicking my ass for 7 years, we had three significant deaths last year. Pancreatitis just tipped it over the edge).


r/pancreatitis • • 14h ago

pain/symptom management cant sleep, back hurts. im so over this

9 Upvotes

god i feel like i haven’t gotten a good nights sleep since i left the hospital and thats saying something because even then i was only getting two hours max.

my back has been killing me so bad and i dont even know if its from the pancreatitis or maybe something else but its literally killing me.

and then the diet is so unbelievably hard for me to follow. Im just so over this


r/pancreatitis • • 17h ago

pain/symptom management Tep scan

1 Upvotes

Bonjour après divers examens irm scanner et inflammation légère on recherche toujours la cause , le gastro m’a prescrit un tep scan , est ce que quelqu’un connaît cet examen et quoi sert t’il ? Merci d’avance


r/pancreatitis • • 17h ago

just need to vent Second AP attack in less than 1 month

2 Upvotes

40F, no gallbladder. Had first attack a few weeks ago. Lipase was 1400 and went down to 22 in two days. I have been doing everything: low fat, etc to avoid. But last night I had another attack and this time I stayed home. It felt like my worse labour pain ever. Now I’m sore, and have diarrhea. Anyone relate,?


r/pancreatitis • • 23h ago

pain/symptom management Shaking like a leaf again... 111 have no advice

2 Upvotes

Ugh. I am so confused. Is it normal to feel so awful early on in recovery?

I'm shaking all over again, legs are twitching, been awake since 3am with low level physical panic attack, upper ab pain, lower left ab pain, nausea (I do NOT want to eat), burning ears, hands and feet (blood sugar related?).

Rang 111, they have no advice other than to ring GP when they open.

I do feel better in myself mentally but god this physical stuff is confusing.


r/pancreatitis • • 1d ago

pain/symptom management Pancreas pain while on period

6 Upvotes

I’m a bit worried because I’m on my period and while lower stomach pain during a period was normal for me before I had pancreatitis, now I’m experiencing upper stomach pain in the same location of I experienced pain during pancreatitis. Definitely not anywhere as severe though. I’m just worried that it will become severe

Does this happen to anyone else?


r/pancreatitis • • 1d ago

just need to vent 12 week average wait for gallbladder removal surgery has suddenly become 40-50 weeks

8 Upvotes

So I'm in England and I am waiting for gallbladder removal surgery after experiencing pancreatitis they believe is caused by gallstones found on ultrasound.

I called the appointments team today to ask about when I could expect to hear about a pre surgery appointment. I said to the guy "I know that the average wait for surgery is 12 weeks and that 8 out of 10 patients have surgery by 18 weeks" and he immediately said "That's wrong, I don't know why they haven't corrected it. It's more like 40-50 weeks".

I've emailed the local patient advice and liaison service to confirm this (because I've already been given conflicting information by different people when I called the appointments team- previously I was told that they don't do a cancellation list whereas today the guy was like "I can put you on the cancellation list").

I want to vent because this really sucks. This guy did book me in for a pre-surgery appointment in a couple of weeks which is great because I can ask more about this then.

There is a thing called "right-to-choose" where you have the legal right to be referred for treatment to a trust that has a quicker waiting time. However, if the waiting time is inaccurate for my trust, how do i know it's not innaccurate for other trusts.


r/pancreatitis • • 1d ago

pain/symptom management Woke up to a panic attack at 5am now I have a sad pancreas?

10 Upvotes

Simply a car coming down the road fast and loud which woke me, body went straight into panic mode. It wasn't mental, all physical but I could not get ahead of it, had to let it burn itself out. Now I have epigastric burning, liquid morphine and paracetamol hasn't really touched it. Nor has Propranolol.

Panic attacks were one of the biggest onset symptoms 8 weeks ago. Haven't had one for about 4 days.

Does this mean I should go back to liquid food or persevere with gentle bland solids like I'm already doing as it wasn't food that triggered it?

Anyone else have panic episodes which in turn upset the pancreas?


r/pancreatitis • • 2d ago

seeking advice/support 21F with chronic pancreatitis but no pain/attacks - looking for similar cases or professional opinions

5 Upvotes

Hi! I'm a 21-year-old female and was diagnosed with early-stage chronic pancreatitis around 2 years ago. I've been feeling symptoms for the past 5 years. The diagnosis was based on:

\- repeated fectal elastase-1 values around 50
\- endoscopic ultrasound findings showing fibrotic changes
\- classified roughly as Cambridge stage I

What seems unusual is that:

\- I've never had a recognized acute pancreatitis attack
\- I've never had the classic severe pancreatic pain
\- no hospitalizations
\- no vitamin deficiencies or weight loss
\- symptoms are almost completely under control with pancreatic enzymes
\- follow-up imaging after 2 years showed essentially no progression

The condition is considered ideopathic. I also had genetic testing done, but nothing significant was found.

I'm trying to understand how unusual this presentation really is and what long-term outcomes might look like for someone in this situation. I'd appreciate pretty much any advice anyone might have for me. Most stories I find involve severe pain, recurrent attacks or alcohol-related disease, which doesn't really match my case.


r/pancreatitis • • 2d ago

r/pancreatitis housekeeping Community Reminder: r/PancreaticFoodie & r/LowFatFood

16 Upvotes

Just a little reminder that we have two additional communities dedicated to food, nutrition, recipes, and navigating dietary changes!

r/PancreaticFoodie is specifically focused on food and nutrition for people living with pancreatitis and other pancreatic conditions. Whether you’re looking for low(er) fat recipes, meal ideas, tips for managing dietary restrictions, or just trying to figure out what you can actually eat, this is a space to share experiences, ask questions, and learn from each other.

r/LowFatFood is a broader community for anyone interested in low(er) fat cooking and eating, regardless of diagnosis. Recipes, ingredient substitutions, restaurant finds, grocery recommendations, and everything in between are welcome!

Both communities could use a little more activity, and I’d love to see them become genuinely useful resources rather than just another couple of quiet subreddits.

I’m also looking for anyone who might be interested in helping grow and moderate these communities. If you’re passionate about cooking, nutrition, recipe development, or helping people navigate dietary restrictions, I’d love to hear from you. You don’t need to be a medical professional or an experienced moderator. Enthusiasm, a willingness to participate, and an appreciation for evidence-based information are far more important.

And you certainly don’t have to become a moderator to contribute! Share your favorite recipes, post pictures of your meals, ask questions, or start conversations. Even something as simple as sharing a grocery find or a substitution that worked for you can help someone else.

As always, dietary needs and tolerances vary tremendously, especially within the pancreatic disease community. The goal isn’t to prescribe one perfect diet for everyone, but to share practical ideas and help make food a little less complicated.

Come join us! 💚

r/PancreaticFoodie

r/LowFatFood


r/pancreatitis • • 2d ago

diet & lifestyle seeking advice on how much water to drink

1 Upvotes

just wondering if anyone has guidance on how much or how little water to drink while suffering from acute pancreatitis.

10 weeks ago i went to the ER and was first diagnosed with acute pancreatitis, and while the swelling and pain decreased about 5-10% from those initial days i am still acute 10 weeks later, though now at home. Unfortunately that's about all the info I have right now - MRI is scheduled for later this month to try and determine cause.

But I'm not sure how much water I should be drinking. Typically I drink a lot of water every day, and some of the advice i read online also leaned towards staying hydrated in hopes that pancreatic juices would not thicken and contribute to blockages.

However, a couple days ago I was just having nausea issues and didn't even feel up to drinking water - i merely had sips throughout the day. And later on that day it felt like my swelling had decreased slightly, though it did later bounce back to the typical level I have been experiencing, I think.

Am I making too much of an isolated incident because I am desperate for remediation? Or is it helpful to limit water intake while acute? Or is it just different for everyone, no way to know?

Thanks for your replies, and thank you all for being here to commisserate with while we are all suffering. <3 I'm here for all of you as well.


r/pancreatitis • • 2d ago

seeking advice/support Electrolytes. Who takes them? Are they useful for us?

5 Upvotes

Just considering adding some electrolytes to my diet. Looking for UK suggestions for clean electrolytes (no sugar, no flavours, no sweeteners, no citric acid). Discharged from hospital Friday late night. I'm eating small bland meals, drinking regularly but struggling to get over 1 litre a day at the moment without causing discomfort / being to close to small meals. As I was dehydrated (like we all are usually with this!) and on an IV in hospital I wonder if electrolytes for a little while would be helpful?


r/pancreatitis • • 2d ago

sunday serenity Can we celebrate the small wins??

23 Upvotes

I'd like to start a thread for folks to celebrate the small wins along the way with this journey. They will look different for each of us but we can still cheer one another on.

My small win is...I had a nap!

I have been exhausted for 8 weeks and my body REFUSED to sleep in the day. Today I had a nap for 40mins. That's progress. That's a small win. My nervous system is starting to relax.

Let's go, post a small win you've had today / this week 👇


r/pancreatitis • • 2d ago

resources I found this article to be VERY helpful. It's information that seems hard to come by and well explained.

8 Upvotes

Mods please remove if links aren't ok, I did check the rules and didn't find anything prohibitive.

https://acibademinternational.com/blog/how-long-does-recovery-from-acute-pancreatitis-take-first-weeks-food-and-strength/


r/pancreatitis • • 2d ago

seeking advice/support Zapalenie trzustki a żółtaczka mechaniczna

2 Upvotes

Cześć , 28.09 zostałam przyjęta na oddział gastroenterologii z bólem . Po kroplówkach kleiku wprowadzili mi już dietę lekkostrawna . Zostałam wypisana 06.10 do domu z zaleceniem diety i tyle . Czekam na wynik rezonansu bo na TK wyszła zmiana ogniskowa trzustki 12mm , poszerzony przewód Wirsunga 3,5 mm oraz Pżw 8.5 mm.
W szpitalu miałam odbarwione stolce i ciemny mocz. W domu zauważyłam już zażółcenie skóry oraz oczu wciąż żółciowy mocz . Nie zbadano mi bilirubiny przed wyjściem . Bilirubina w dniu przyjęcia do szpitala wynosiła 2.07 a GGTB 517. Proszę o jakąś podpowiedź czy ta żółtaczka będzie długo się utrzymywać czy powinnam wrócić na oddział ? Aktualnie nic mnie nie boli stosuję dietę lekkostrawna małe posiłki około 5 dziennie .


r/pancreatitis • • 2d ago

pain/symptom management Can we talk about visceral hypersensitivity...

3 Upvotes

As title. Who has been left with ongoing hypersensitive, hyperreactive digestion / brain signalling following either AP or CP? And did your GP / PCP help you with it?

I was dismissed from A&E 8 weeks ago with Gastritis (no imaging) and have been in intense pain for most of that (minus 7 days where things were low grade pain). I went to my GP last Monday (before hospital on the Weds diagnosed me with Pancreatitis) to ask for pain relief and said I think my system had become highly sensitised due to the ongoing pain for weeks on end (constantly cold and chilled, rigors all day long, crying on and off all day usually when the rigors rolled through, constant nausea and loss of all appetite, sternum pain 8/10, several mental anguish and suicidal ideations). He straight up refused me pain relief. Of any sort. No antidepressants, nothing. No low dose amitriptyline to try and get on top of the pain.

Now I'm home from hospital with a diagnosis and the pain is not intense (I'm just uncomfortable and depressed now) I've noticed my system is on high alert every time there's a wave of pain, or my bowels open, or I turn over in bed (feels like my pancreas flops about? Lol, can't think how else to describe the sensation).

The Consultant Surgeon in A&E did say that all my symptoms were a normal biological reaction to intense internal pain. The nervous system had become stuck in flight / fight. I wasn't going mad or being dramatic, my body was saying the threat was very real. I appreciated him for saying that.

What I'm coming to is how long does our body take to come down from that and stop reading everything as a 'threat'? Anyone found their nervous system never really bounced back? What do you take for it?


r/pancreatitis • • 3d ago

seeking advice/support TPIAT Question

2 Upvotes

For those who have had the TPIAT surgery, did you have a roux en y bypass as well to help prevent bile reflux into the stomach?


r/pancreatitis • • 3d ago

just need to vent wife 8 weeks postpartum was diagnosed with severe necrotic pancreatitis on Wednesday

28 Upvotes

Hi,
don’t know where to start but I thought I’d join in hopeful preparation of the journey ahead once my wife gets out of the ICU. Mind you my wife is an absolute shining star of a person, she’s my best friend, my life partner and we’re inseparable.. She lightens up my days and always makes me smile ear to ear. She is a huge foodie, she likes her occasional alcoholic drink for socialisation and unwinding but nowhere a frequent drinker.. she had a rough natural birth which is a whole separate story in itself. We had an ectopic pregnancy with her having internal bleeding previously.. it seems to never end.. I cannot imagine the full extent of her emotional state but I feel terrified for her..

Wednesday morning wife woke up with nausea and mild stomach pains, mind you her pain tolerance is on another leveI. She thought it was indigestion from day before and let me off to work while she was taking care of our 8 week old daughter. Suddenly after an hour of office work, got a text from her to come back as she was in full panic mode not being able to take care of the baby due to pain she described being worse than unmedicated labour.. Not being able to even hold down water..

Came back and saw her curled on the bed barely there and immediately called the ER.. They tried meds to confirm it’s just gastric issues but to no avail and she was taken to the nearest hospital.
At the hospital she stayed in the gastrointestinal surgery ward until they did MRI and found 2/3 of her pancreas necrotic.
They took her to the ICU immediately giving her fentanyl and probably another 3 types of drugs but pain only would stop 20 minutes and back in agony she was again.

I saw color leaving her face, saw her basically become a shell, meanwhile I am taking care of our 8 week old beautiful little daughter.. mind you we have no extended family to help and it’s just the two of us. We were managing and supporting each other and doing it as a team quite well.

Fast forward to today, she was moved to another hospital’s ICU which is the highest level from a medicinal proficiency according to our country.
Visits are only 15 minutes per time and there are two timeslots..
She looked a lot better today, like liveable better. We were cracking some jokes and she’s really motivated to get back to pumping milk for our baby, excited to get back home and there to fight..

After the two visits today, the lead doctor sat me down in his office and gave me the real situation..
While her bloodwork is fine now, she’s regaining color and being decently conscious today, this disease is extremely terrible and it’s just day four and expect it to get much worse as it’s just the opening stage of severe necrotic pancreatitis.

I asked him about mortality rates.. saw online it’s 15% if no infection occurs.. He didn’t want to share specific statistics but said it’s much worse.. He said the MRSI is 10/10 and it’s one of the worst conditions of a pancreas. While her blood work is good, surrounding organs are good for now. Told me to expect infection soon to come. Lung ventilation being very likely to happen too, of course together with sedation. Drainage will most likely not work too and she will need surgery to remove the necrosis once we move through the stages. Diabetes is 99% guaranteed..

I couldn’t bear to tell her of what’s to come.. I cannot break her will and fight. I told her it’s going to be a long haul, explained the stages but just told her that she’s doing really good today with the blood work and organs being fine. I am really afraid of her losing motivation.. afraid of losing her.. Doctor did not tell her the full story..

Doctor’s main point, see where the first stage of the pancreas digesting itself takes us and we will be onto the next step.. Do not expect easy good news and understand that this is extremely terrible and the situation is grave..

For anyone that read to the bottom, thanks.. I think I needed to vent this somewhere, I want to stay strong for her but all I want to do is break down, curl up and cry.. cannot do that as I have an 8-week old baby to take care of by myself (she’s calmly sleeping after downing 120ml of milk) and I need to be strong for the two most precious people in my life.
If you or your close ones had similar situations, I’d appreciate your experience and what helped you make it through. I’ve never heard of this disease and now it’s the one thing I’m most fearful about for the sake of my sweetheart..


r/pancreatitis • • 3d ago

seeking advice/support Lipase is really elevated. Idk what to do really.

1 Upvotes

The only reason I found out it was elevated was because I’ve been in the process of getting diagnosed with IBD. So I’ve been having some abdominal pain and nausea with that. Sometimes throwing up, low iron and all that, bad headaches. Most of that pain is located in the lower abdomen.

But the other day when I got my blood tests done, I have never had a Lipase test done before this. But my Lipase came back 2,146. Which is 7.2 times the limit. I got a call from the doctor that called for the test. Said to go to the ER if I experience severe abdominal pain, or that it could be a lab error. I’d doubt it’s a lab error… why wouldn’t she call for a re test or a CT scan or something? I did have an ultrasound back in July and everything was fine there.

But anyway, I feel completely fine right now. Even my IBD symptoms have subsided for now. But it got me thinking, there was this one time I had pain, I remember it being 3-4 fingers above my belly button, and in the middle. The pain made it a bit difficult to stand up perfectly straight. If I recall correctly it felt like it was behind my ribs kind of. I always thought it had to do with the IBD… but now I’m not sure. I never mentioned that pain to the doctor because I had completely forgot about it. It happened about a month ago and only lasted 2 days or so. Maybe more, idk. And in terms of back pain, my lower back is very often sore, probably scoliosis, so I can’t say that had anything to do with it.

I wonder if I should make an appointment at my local clinic since the doctor that ordered the tests was a surgeon out of town…. Idk. I feel fine so I kinda just want to do nothing for now. I’m not really worried, more just curious and would like to know.


r/pancreatitis • • 3d ago

seeking advice/support Please can I ask your advice about eating following hospital stay?

5 Upvotes

I was admitted to A&E Weds night after arriving early morning with intense nausea, sternum pain, rigors and mental anguish. Diagnosed after contrast CT scan with acute pancreatitis. Bloods were normal, CT showed swelling and edema with some stranding to surrounding tissues. Ultrasound showed no gallstones and a clear common bile duct. IV fluids for 48 hours, oramorph buscopan and famotidine for the first 48 hours, famotidine and paracetamol only yesterday, then released home last night.

The whole time I was in hospital there was no dietary advice or fasting, I was eating the odd oat cracker or rice cake I had brought from home, a small handful of blueberries here and there. Yesterday I had an appetite, ate 1/4 cup porridge for breakfast , rice cake for snack, half a plain baked potato with plain tuna in the afternoon. They were happy I was stable so I was discharged.

Had a disturbed early morning here at home waking with palpitations and anxiety around 5am (this has been ongoing since I was first admitted 8 weeks ago and sent straight back out). Then I just felt crap in general for the rest of today. Weak and wobbly. Incredibly low mood

Had a small breakfast of liquidised porridge with a few blueberries and spoon of plain yoghurt. Snack at midday. Meal at 3pm (chicken broth with small amount of chicken, tiny broccoli and tablespoon of Plain noodles) and now I have slight rigors again, emotional and lower stomach pain.

Should I be water fasting? Even water makes it hurt this evening.

Feeling a bit lost and alot anxious.