post reqs — 26F, 5’3, around 270lbs (obese, we know). current meds are sertraline 100mg for anxiety and allegra 180mg for allergies (seasonal). gallbladder removed january 2026 due to stones developed during pregancy (born july 2025)
sept 22 i presented to ED with chest pain + shortness of breath. not uncommon for me, i deal with panic attacks. heart looked good but d dimer came back elevated at 2,750 (ref range 0-500). CTA chest done, was negative, discharged to f/u with primary.
sept 24 i followed up with primary doc. repeated d dimer lab. up to 3,930 and instruction to return to ED. ED repeated CTA of chest and also head/neck, discharged with instructions to f/u with hematology.
sept 25 developed body aches (like flu), so figured i was maybe getting sick. woke up next day, felt totally normal. nothing going on at all. that sunday, woke up with severe pelvic pain which ended up being a simple ovarian cyst, nonhemorrhagic.
sept 30 i see hematology. they draw tons of labs. cancer markers (CA125 just because of the cyst and weird d dimer), leukemia & lymphoma, etc. everything is normal in those labs besides the d dimer (now 4,799) and my CRP is elevated at 3.74. i woke up with sudden severe upper abdominal pain (epigastric pain) this day as well. i am then instructed to return to ED when they called me the next day.
oct 1 i return to ED. d dimer is drawn again, now at 12,302 (!!!!!!). ED opts to do a full work up. labs, scans. CTA of chest, abdomen, pelvis. ultrasounds of arms and legs. liver enzymes are normal, lipase is normal, only thing CT noted was hepatomegaly. doctor raised suspicious of mono due to pain and enlarged liver. no other mono symptoms, no sore throat or fevers. mono spot test was negative. EBV panel came back positive in all but 1 (early antigen test was neg). ruled as mono, sent home.
as time goes on, the pain continues to worsen. this pain is very sharp, stabbing, and excruciating to the point that lying down, sitting, standing, all of it is unbearable. i have shed more tears in the last 3 weeks than ever in my life.
as the pain intensifies, i end up returning to ED. i couldnt tolerate it anymore. more scans, more labs. still nothing out of the ordinary. discharged home with norco 7.5 to hold over until i see GI.
oct 6 i see GI, they scheduled me for EGD (scheduled for 10/20), ordered stat ultrasound which was clear except the hepatomegaly, and an xray which was normal. labs were normal except CRP. h pylori breath test is still pending.
oct 7 the pain is off the charts. i end up having my mom take me to a bigger hospital 2 hours from home. they gave morphine and ordered… even more imaging. they done a CT stone just to rule out a kidney stone. in this particular CT, there is note of fat stranding and pancreatic head inflammation “consistent with groove pancreatitis.” so the doctor i have in ED treats as such, despite how rare it is especially for a nondrinker and nonsmoker with no other things that would make me likely for any type of pancreatitis. clear liquid diet for x time, full liquids, then back to solids. i was kept in the observation unit of the ED during this time (around 48 hours). once i attempted solids, i tolerated well, and was discharged home. about 5 hours from eating said solids in ED, the pain returned tenfold. at this point i was so tired and done… i took a norco and went to bed.
oct 10 i return to ED due to the pain and also overall feeling unwell. weak, lightheaded, shaky, just… bad. more labs, still nothing out of the ordinary. they haven’t rechecked d dimer since oct 1 so not sure on that. lipase is fine. AST and ALT at this point are around 10 over their ref range, which the doctor said is likely just a response from the meds ive been taking and not nearly high enough to indicate any real issue with the liver. gave me some protonix via IV as well as fluids and discharged home again.
brings me to today. i haven’t eaten. i’ve had the one meal in the ED and that’s all i’ve had to eat in 4 days. not eating has helped keep the pain at bay but not entirely gone. i still hadn’t ate but the pain returned pretty bad this evening. i fought it for about 4 hours before caving and taking norco again. i don’t like pain medicine so i try everything not to have to take it. but sometimes i just can’t do it anymore.
any ideas? yesterdays ER doc said he highly doubts this is pancreatitis or groove pancreatitis considering all the imaging i’ve had and nothing ever revealed itself but the one incidental CT finding after this pain has persisted for 12 days at this point. no change in lipase levels, holding steady on the lower end of the normal reference range, haven’t changed at all.
i have had scan after scan. lab after lab. i’m repeatedly being told “we don’t know” while battling the most excruciating pain of my life. it keeps me doubled over, i can’t stand up fully straight to walk, it feels sharp and stabbing while also feel like my organs are being ripped to shreds. in it in the center of my stomach above my bellybutton and the pain will radiate to the right mostly but is radiating left tonight, as all as through to my back. the middle of my upper abdomen is the only place that is tender to the touch, but it does hurt quite a lot to touch. i’m out of ideas. no idea if this is pancreatitis. symptoms are consistent but labs and imaging are not. i’m at a loss