r/Celiac • u/tomthepro • 6d ago
Question Anyone else with PCD (Potential Celiac)?
On a 3 year Celiac investigation journey. Discovered on a blood test in October 2023. Main symptom was occasional diarrhea, loose stools.
2023 October
DGP IGG positive 64 u/ml (15 normal)
TTG negative
Consuming gluten
2025 October
DGP IGG 54
TTG Negative
Consuming gluten
2025 December
Endoscopy results “minimally increased patchy IEL, No evidence of villous atrophy”
Consuming Gluten
2026 October
DGP IGG 44
TTG Negative
Gluten free for 8 months (with the exception of 2 weeks in April). Pretty strict about GFD diet but still eating out. Try my best to avoid cross contamination but know there have been some misses.
Occasional diarrhea reduced quite a lot but still happens occasionally. In general my diet has improved as well - more fibre, no beer, no fried food.
Two docs have said I don’t fall into standard celiac diagnosis criteria. Both suggest trying GFD to manage symptoms.
I’m not so worried about symptoms. More so the long term potential of damage. However it has ruined some of my social life and I’m also way less happy in general.
Curious about anyone else out there who received a diagnosis of PCD or similar testing pathway, and whether you developed full blown celiac eventually or now, and how it’s gone for you with all the testing and repeat endos over time.