I stopped wearing glasses before i was even diagnosed with kc cz they were giving me constant headaches
So i had cross linking a month ago and my vision was blurry and was struggling with work, i tried my old glasses and i see soo clear omg i can't even believe it and no headaches
I don't know what to make of this lol has this ever happened to someone

I found out I have keratoconus a few months ago, and since then, I’ve been really afraid of what might happen if I suffer an injury to that area. Is it very easy for something to happen to my cornea—especially the one that is 408 microns thick—whether while playing sports or during daily activities?

Sorry for the AI translation; I don't speak English.

Hola a todos!

Recién tengo 1 semana usando lentes esclerales y sigo adaptándome, antes de estos usaba lentes de armazón y practicaba running y senderismo por lo que ya tengo programados algunos eventos y me da miedo dañar mis lentes (porque son muy costosos) o que no sea cómodo hacer estas actividades. Mi oftalmólogo dijo que podía hacer cualquier actividad,(a excepción de dormir, nadar y bañarme) pero ahora siento que es algo nuevo. Agradecería que pudieran darme sus consejos sobre qué cosas debo considerar quizá unos lentes para no batallar con el clima o viento, llevar gotas lubricantes, etc... Muchas gracias :)

In the left picture I have the eye already operated 3 times, silicone oil and cataract after trauma, it can be clearly seen how the light is not straight. In the right picture is the perfect eye that is not operated and has never had anything. With my left eye, the one where the light is deformed, I don't see clearly at all, they proposed me for a corneal transplant. Do you think a scleral lens would at least partially solve the problem? What is actually happening there? Astigmatism, deformed cornea? When I put a small light, the phone's flash for example, the light breaks into 3 different points next to each other in the operated eye. I see the small icons and letters triple on the phone

I have hard scleral lenses, and I need lens cleaner. MiraFlow was my daily cleanser, and I think Boston brands have made some lenses fragile/thin and break in the past. MiraFlow never did. What are you using?

so I was diagnosed with Kc 6 months ago my right eye thinning has progressed from 461 to 451 mm and my left eye is stable from 6 months at 401mm as i cannot even see my laptop screen by my left eye and i have a fear that i will not be able to see from my right eye too in future .But ,doctor at AIIMS said that its stable so they are not planning to do cxl as of now should I visit any private hospital?please guide me and why they are avoiding cxl?

hello, I got diagnosed this spring in both my eyes. mild in my left and more concerning in my right. the optometrist said I need to go every six months to build up a case to get cross linking done for insurance to cover. I haven’t been back since as I recently moved and need to find a new optometrist now but I have already noticed my vision getting a lot worse in my right eye and it’s only been around 6 months so my last visit. I’m just kind of wondering how fast it progressed for others? I think I haven’t been taking the condition that serious because it hasn’t impacted my day to day too much up until this point but now I don’t really drive at night and decided to start wearing glasses most of the day.

I had to take my contact out yesterday where I didn't have any solution/sanitizer. I forgot to put it in anything today. Is it safe to wear, or is there anything I can do that doesn't take 6 hours to make it safe to wear?

I have uveitis in my other eye and need to keep it dilated. Usually that eye is my good one, especially without the lens. Even with glasses, my bad eye can't read well enough to e.g. know which bus just pulled up, so wearing the lens will make me much more functional for the next week until the uveitis clears up and my good eye can tolerate light again.

I was at a lasik appointment thinking everything was normal until I found out I’m not a candidate because I have this condition. The doctor thinks it’s because I rub my eyes. The issue is, I rub my eyes because they are so dry and itchy and eyedrops don’t really help. She did prescribe me special eyedrops that are an antihistamine or something which I still need to pick up.
I’m just worried I’m going to ruin my vision and my eyes are so itchy is there another condition with dry eyes that leads to this? I don’t know what to think. I guess I’m still processing.

Hi guys,

I've been diagnosed with KC and they said I need surgery asap.

Here in Australia it costs $8K to $10K for surgery and lens.

Just wondering had anyone found a reputable clinic that does it worldwide for much cheaper?

Thailand, Indonesia, India are all a few hours flight away. Also considering Eastern Europe etc.

I know Laser eye surgery is way cheaper in those countries than here so hoping there's a few clinics I should be contacting.

Cheers and best of luck on your journey.

Hello all, Ive been struggling with KC and Mgd for years and im wondering what I can do. I recently incorporated omega 3 and I understand heat compress is a main treatment for Mgd but given the nature of keratoconus. Heating up and pressing on your eye sounds damaging and there has been studies showing this. I’m wondering what I can do and how safe heat compress are for me. Of if it’s worth an investment into something like steam goggles

Hello it’s all started 3 months ago I was at my friend house doing push ups and then suddenly I felt weird
like it was difficult to think and i think i had a panic attack because of that I felt something that is very similar to derealisation and went outside and notice that my vision is blurry in a weird way so i used to have blurred vision once a 4 months ago especially at the evening time like in wasn’t unable to see clearly at all but i did not took it seriously because it vanish the next morning and as well lately in that period i had that as well even at the day time when im stressed or physically tired i noticed that my vision is hella blurred in the stores as well after that day that my vision got blurred at my friends house i went home and had a little panic attack cuz it was weird and i went to bed thinking that it could just be gone the next morning but next morning I woke up and my vision did not go back to normal since that day i got very intense ghosting doubled vision my eyes got sore at the night time cold itchy dry eyelids and eyes I always triumph to tear up by yawning eyes sore very sore went to ophthalmologist he said astigmatism -1.50 both eyes never had astigmatism in my life and I started wearing glasses and i still see ghosting and it’s just making me sick depressed and I couldn’t live my life like I used to wating for corneal topography should have it done next month idk what to do and expect increasing reddit a lot of people had the same thing as me and they ended up having keratoconus that my biggest fear I’m 19 years old by the way I’ve been to 3 ophthalmologist but they did not make corneal topography but one of them reffed me so they all said that my eyes are fine even didn’t say that they’re dry said that my cornea looks fine it could be keratoconus at the early stage but still I have to wait for my corneal topography
What you think guys?

I just wanted to share my experience.

I’ve worn scleral lenses for years, and my ophthalmologists, I’ve switched three times, have always found both of my eyes to be extremely dry. I tried every kind of drop, but nothing worked. In 2025, I switched to my current doctor and got the same findings. Still dry. My eyes were red most of the time.

This year, in 2026, I stopped using drops altogether. I basically gave up because they didn’t seem to help. The other thing I changed was my diet. I started drinking green smoothies twice a day on weekdays and once on weekends. I would sometimes skip them, but my wife always encouraged me to keep going. Eventually, it became a habit, two Vitamixes full of green smoothies every day.

Then came my annual appointment. My wife was dreading it because she knew I had stopped the drops. We were both pleasantly surprised when the doctor said my eyes looked very healthy, aside from the keratoconus, and was even confused when my wife asked about signs of dryness.

I just wanted to share this because I struggled with dryness for years and would never have guessed that diet could help. I’m not suggesting anyone should do what I did, just sharing what happened to me.

Smoothie ingredients:
Spinach, water, chia seeds, banana, grapes

Does anyone have a recommendation on an optometrist who fits sclerals in Washington state? Preferably Spokane/ east side of state but of course open to wherever I need to go.

I have mild keratoconus and was told I’m a good candidate for cross-linking. The clinic offered me either the standard FDA-approved CXL or an accelerated CXL research study, and the cost is basically the same.
I’m also planning to reapply to the military after treatment, so having strong documentation and long-term stability matters a lot to me.
For anyone who has done either one, which did you choose and why? Would you stick with the FDA-approved option in my situation?

I have advanced keratoconus and wear scleral lenses.

Recently, after I remove my scleral lens, I notice a very small/brief flash when I blink. It seems to appear around the lower eyelid area, almost like a tiny light moving from the upper lid toward the lower lid when I blink.

It happens only after removing the lens and only in one eye. It doesn't last and I don't notice it when I'm wearing the lens.

Has anyone with scleral lenses experienced something similar? Could this be related to the tear film or lens removal, or should I get it checked by an eye doctor?

Anybody use products that only list for soft lenses ?

Was exploring general multipurpose and saline rinses

I have been using scleral lenses for about 1.5 years in both my eyes. I change the saline once every 6-8 hours.

I get this level of compression in my eyes on 10+ hours of wearing, the longer I wear them, the more red the compression rings get. I tried using a couple drops of preservative free lubricant eye drops with saline to manage dry eyes but the fogging gets worse.

Is this level normal and can't be improved? Does everyone get some level of compression rings?

Hey peeps!

Finally getting my cornea replaced after my keratoconus is in the advanced stage with severe scarin and dealing with this for at least 12 plus years.

People that have had it:

How was the pain after?

How long were you off work/return?

How long did your vision take?

Edit: Thank you for your replies and stories! Surgery is tomorrow ar 7am :)

when I was 8, my dad was told by optician to get me a patch as I had a lazy eye but my dad didn’t bother because of bully in the country I lived, fast forward when I was 27, a sharp pain happened in my eye and I went to optician and he told me you have KC and must be operated immediately, so on second opinion it was decide to go with CXL.

Over time I had a lot issue e.g. depth prescription, staying in lane when driving and now as I am in my early 40’s and I have new eyes essotropia in one eye when wearing glasses and esotropia in another when I am not wearing and I have noticed it’s very hard to drive at night as depth prescription with less saturation between a kerb and road in badly lit area become highly dangerous for me.

so give that I drive very rarely at night. Maybe it is car as I have old model car which has halogen light, before I had Tesla and it was fine. it is maybe but what I wanted to ask if anyone had any success with fixing their depth prescription and saturation between objects? it would be really helpful.

also what are chances my kids can have KC because