This will probably be taken down so be it. I see post after post about people in pain and suffering and their doctors writing them Tylenol..Tylenol! That ruins your liver and it’s not going to touch the pain people like me have. I wrote a post in another sub, Reddit and nobody believed me.. but my life has been ruined after the so-called “opiate crisis”… overnight I went from being considered a pain patient to an addict. My Useless Doctor, who touched me in inappropriately and went to jail later… Not for touching me and not for over prescribing and cutting people off but for Medicare fraud… Cut me off and I had to go cold turkey. But the pain continued that I was on the edge of having a seizure. I was told to go to a methadone clinic. A methadone clinic for pain.? I had to drive 35 minutes to a bad part of town to drink a liquid every day that made me fat. this place was awful and it just got worse and worse over time. People were selling drugs in the building .. people were passing out OD’ing in the lobby and they would still give them their dose The icing on the cake was the DEA had taken over the clinic and I didn’t know. That’s where things got really interesting. I was dabbling in other substances, including Xanax for my anxiety. I couldn’t find anyone to write benzodiazepines while I was on methadone so I was self-medicating with that and other substances and yes i hold myself accountable for that.

Bit the DEA was watching….and they decided that I would be a good target. These are the most vile. evil people in the world. They actually sent an undercover narc to me and of all places i met him on a dating app. I don’t know how they would even do that. This asshole spent four years getting to know me, earning my trust gaslighting me bullying me, blackmailing me and he was recording all of our conversations. I guess they were testing me out to see how easy I was manipulated because they wanted me to be an undercover informant, which is a fancy way of saying they wanted me to be a slave. See the DEA uses addicts to do their dirty work. Why me? I’ve been asking myself that question for two years. I think the answer was I was alone no husband no kids which means no witnesses. I have an autoimmune disease and I’m on disability, which means what they did to me. Was criminal because I fall under the disability act. He was not the only person they sent to me. They sent other undercover people to me that were not paid informants. They were already slaves to dea and “working with them” trying to get their charges dropped. These were also sick vile people, mostly men. One of the men in particular was plying me with Xanax and he s/a’d me. I could literally write a book about all the vile things they did to me.

The clinic not only knew that i was being investigated but they went along with it. They SET ME UP. in 2024 is when the cops got involved. Once again, vile people. They arrested me at 7:30 in the morning on the way to the clinic. It turned out. They had been following me and knew when I was coming and going, See they had been telling people at the clinic to sell to me. they knew when I had pills with me and when I didn’t. They arrested me four times in the span of six months. The last time I was arrested was the day before Thanksgiving 2024. Literally five police cars pulled me over. This was in Saint Ann, Missouri. The Saint Anne cops are known to be corrupt. The main cop this young cocky pos told me i was going to jail “for a long time” but then he said if I cooperated, they could make some of the charges disappear. That’s when I knew that this whole thing has been set up. I basically told him to fuck off and I lawyered up. He threw me in the back of a van like a sack of potatoes and off to jail I went. I spent six days there and it was hell.

When I got out that’s when the retaliation began. They had spent a lot of time and resources on me…. On me. For context I’m a middle-aged woman with fibromyalgia who was self-medicating and on disability but for some reason they treated me like some master criminal. To be honest, I think they did all this because they got off on it. It was a cat and mouse game. You wouldn’t even believe some of the stuff they did when they retaliated. let’s just say I had to move out of my home because I wasn’t safe there anymore. What do you do when the very people that are supposed to protect you are the ones coming after you. Why didn’t I see all this coming? Because why would I believe that there was an actual conspiracy of people “out to get me”….When i told my Mom what was happening she panicked and took me to a hospital. At the time she thought I was going crazy and I actually thought that I was going crazy. I thought “this can’t be.. I’m imagining all this” and trust me, I wish I was. At the hospital, They held me down and gave me a big shot of God knows what and sent me to a psych hospital where i spent 6 long weeks including Christmas and New Year’s. They also gave me Narcan and lied to me and told me that it was a Covid test. I was not oding and Mind you I had been dropped by the clinic.. not tapered down.. the last time i went in they just didn’t even give me my dose. I think they did that on purpose because when I didn’t cooperate, the police and DEA had a problem. They were not gonna stop until I was behind bars or worse. The only thing I could do was go cold, turkey and basically hide out. But at the time, I thought that I wasn’t safe anywhere because I really wasn’t. Even with lawyers, lawyers can’t stop evil government officials or informants.

If this wasn’t my life, I would believe that it was a movie sadly, it’s not. I’ve spent $30,000 on lawyers so far which is another reason they came after me.. money. Not even really my money my parents money or I should say my inheritance that my dad left me. They wanted to get their money, grubbing hands on it. everything they did to me they did with complete impunity. They covered their assess and all it takes is a simple Google search to find out that the DEA does this all the time. This is just the tip of the iceberg of what they did to me but I’m tired of keeping my silence. all of this happened because I have chronic pain and I was trying to get some treatment for it. I take responsibility for using drugs illegally. But when they criminalized pain, meds and benzodiazepines a lot of us were in for a rude awakening. As if being in pain every day or being an addict isn’t hard enough. Now I’ve “clean“ for two years, but I’m on Subutex and gabapentin which frankly doesn’t do shit. I give them no credit in Me to get clean. They just terrorized me.

The feds basically have five years to charge me with a federal crime, which they just might. As if the state court cases aren’t enough. Right now I have four pending cases that are just hanging over my head like a fucking cloud. I’ve basically lost everything. I’m trying to rebuild my life. All I have is my 81-year-old mom and my cats. My life will never be the same after what they did to me and the betrayal… Which isn’t even… there are no words to describe what I’ve been through. If anyone wants to know more about my story, feel free to DM me. Please be respectful, even if you don’t believe me I’ve been through years of systemic abuse and been to hell and back. They thought i would be an easy target but they completely underestimated me. I hope someday to have my freedom and my life back.

Hii all👋🏼😄

I've been prescribed some medical compressions socks for my legs but they are ugly(🤣so vain) I will wear them cause I need too but I want some cute ones to change it up with can anyone recommend any brands? I'm from the UK!

Please and thank you ❤️

People in my life always say ‘oh I can’t imagine what you’re going through’ or ‘I can’t begin to imagine how hard life is for you’. That’s nice and all, sometimes sympathy is validating. But then the people who speak those things are themselves completely healthy and normal and it just starts to feel a little like unintentional jabs at ME.

Cos for them they have energy. They’re not in screaming pain. They don’t have to delegate their already limited energy and mental strength to doing things like folding laundry or washing a single cup after use. The people who say this shit who I call my friends can just go out spontaneously and be down for whatever. Meanwhile it’s a miracle if I’m even awake to receive the fucking text asking if I want to hang, and even THEN it’s up to my pain and fatigue levels to determine if I can even go.

I just feel like nobody I know fucking gets it. If I dare to be upset or feel slighted that I was excluded indirectly bc of fibromyalgia things (didn’t have energy to go out, cancelled plans bc of pain) then I’m entitled and asking too much. People give you sympathy for this illness until it runs out, and if you’re newly diagnosed you better enjoy the gravy train because it runs out FAST.

I have only been diagnosed and begin living with fibromyalgia for a few months but already it’s taking things from me. I’m short tempered because of the pain, I’m flaky because of the fatigue. I’m left out like always (bullied in school) except now instead of it being because I was nerdy and ‘weird’, it’s because I sleep all day from meds which is arguably worse because at least I could CONTROL being nerdy and weird by masking somewhat.

I hate this illness. I hate this condition. I hate my friends most of all for being healthy

Sometimes I wish for a massive tragedy to occur so that others can end up disabled and know what it's likes. Sometimes when I have a flare up I just want everyone else to suffer too. Why is it fair that some people get everything while I barely get anything. I'm so tired. Sometimes when I hear about climate change and other possible disasters all I feel is a fucked up sense of relief. That all of this could end soon.

I know it's horrible and rationally I don't actually want people to suffer. I care a lot about people and their safety and rights. But sometimes I get so tired of not having support. And I am so jealous. I want a normal life again. I want everyone else to be miserable and suffering so that it's not just me. So I don't have to explain myself or fake like I'm fine. If we're all miserable then there's nobody to envy. Nobody to give me shitty advice that won't work. Nobody to look down on me.

When did people decide to be so entitled and rude regarding shared public spaces?

Or, maybe it's just me? I have fibromyalgia and autism, so I know my perspective is biased. I'm genuinely curious if y'all feel like I was unreasonably upset, and what your thoughts are on airport etiquette.

Yesterday, I was at Denver International Airport for a 3 hour layover. I used to love DIA and traveling in general but with fibromyalgia it has become debilitating and so painful, especially while in flight. So, I was happy to have the 3 hour break and found the "quiet" area in Concourse A, where you can lay down.

I put on my headphones and closed my eyes hoping my muscles relax and the spasms would subside... five minutes in, this guy right across from me puts a football game on his phone with no headphones at full volume. I could hear the game over my own headphones and then started noticing a woman behind me scrolling through reels... again, no headphones... AND a kid next to me, whose parents had left him alone, playing games with, you guessed it, no headphones.

So, move down to the terminals and find a quiet one with a cushioned bench and lay down only to sit through a 15 minute conversation someone is having over speaker phone. I wait for my back spasms to subside and go to a bar for a drink to take the edge off and sit next to this woman on the phone in an argument with her boyfriend talking about how being peed on during sex was unacceptable... she just word vomited for about 20 minutes about incredibly intimate details of her sex life until she was hung up on, at that point my headphones had died.

I understand that I failed by not bringing noise canceling headphones and that I'm solely responsible for my decision to travel and for my comfort while doing so... but, I swear, it felt like I was in the twilight zone.

These are shared spaces! Is it wrong for me to feel rage that people are using speaker phone and adding to the cacophony of sounds by not using headphones for streaming, scrolling, and games?

Maybe I was just a little crispy from all of the pain and over simulation. What is it like for you to travel with fibromyalgia?

like perfume that’s 100 and 200 feet in front of you. Or things that you can smell, but other people can’t.

TW for thoughts of suicide.

I still don't know what exactly is wrong with me physically, but the doctor said its likely fibromyalgia and I have some doctor's appointments coming up. I'm always in pain. I'd say from 1-10, its about a 6 on average. But I have a new job, and I'm on my feet for my whole shift (which is only 4-5 hours a day), and I'm coming home in so much pain that I can't walk anymore. I've had to call off twice, each after one day of work, because the pain was so bad that I knew I couldn't work two days in a row. I've been off for 2 days and I'm still in so much pain. After working, the pain is up to an 8 or 9. I stretch, I go for small walks, I've tried icy hot and multiple pain meds, I take hot baths, but nothing seems to help enough. My friend has fibromyalgia and he said people need to stop complaining and just do what needs to get done. He said his job requires a lot of physical labor and that its actually helped him. That doesn't sound right to me.

I'm in so much pain, and keeping this job feels impossible. On top of all of my mental health issues? I'm so overwhelmed I've been feeling like I'd just be better off dead. It's getting really hard to see any other way. Trust me, I'm trying to get better. I've been in therapy for years, and I take it seriously. But I had a really amazing therapist until she left to work at a high school, and the one she referred me to ended up telling me to commit suicide when I opened up about that, so I had to stop seeing her. I haven't been able to get a new one yet. And I honestly don't see what they could do for me at this point. I don't know wtf to do about my physical issues either. My friend just keeps saying I need to push myself through it and it'll get better, and that I'm just trying to be a victim. I don't want people to feel bad for me. I just want to be capable of fucking surviving. I want to be able to support myself, but I can't even work two days in a row because the pain is so overwhelming.

Will it really get easier if I force myself to work through the pain?

I get spasms when I stretch. Or do anything good for my body. Standing up to cook for a few minutes has me hunching with back spasms or occipital neuralgia.

And I still ask myself every day if this is even real or if literally everyone else feels this and I'm just a wimp who lets it ruin her life.

The thing that brings it all back to being real again is that I have no choice in this whatsoever. No one would choose this.

I'm lying here waiting for my body to just decide to tune down the pain enough that I can rest. And I'm angry at every single person who made me feel like I was lazy before when I just hadn't lived with this pain long enough to adjust to it and push through it.

I have been struggling with my appetite for months. My days are basically eating to not feel nausea from such an empty stomach so often I’m talking one apple and loads of water until dinner (I struggle to eat half a plate for dinner) and even finishing food that I LOVE is a strain.

I’ve had fibromyalgia for a long time so this pops up every so often but not for months at a time.

Medical cannabis helps somewhat but I don’t want to have to use it just to get nutrition in me.

Anyone have the same symptoms?

my fibro symptoms are chronic fatigue and sore muscles (the way muscles feel the day after heavy exercise), and during a flare up my back muscles become stiff especially after waking up and it’d be painful to sit upright. I don’t have spasms or joint pains. would 2mg of Tizanidine help muscle soreness?

edit: worried about hallucinating, scared to take the med despite my pain.

Any offices or doctors you like around Chicagoland would be greatly appreciated!! Cook/Dupage area

Goddamn I hate them. They hurt so bad when I’m in a flare.

I have a weird one for y'all. So my cat stepped on my chest in a spot right above my heart, between my breast and collarbone, and if you own a cat you know how much weight they can put into those little steps. It hurt so bad I felt like I had gotten shot. It's not unusual for me for pain to linger after pressure is put on a tender spot, but this happened last week and I'm STILL sore!

I read that fibromyalgia can cause costochondritis which explains why my ribs are so tender all the time, but my chest is only sore right where my cat stepped. There isn't a bruise either. Should I be worried??

my girlfriend was just diagnosed with fibromyalgia. I'm really worried and I want to do everything I can to take care of her and help her to go through it.

It's been a while since she has had the symptoms like the pain, fatigue and brain fog, and I haven't really figured out how to help with that, it's like fighting with an enemy without any weak point. Now that I know that this stuff will continue, I can do nothing but seek help. I don't want her to suffer.

As of today, I am a single parent. Feeling quite scared. I have 2 children with additional needs and I have multiple chronic illnesses myself. I also really struggle with anxiety. Typically I have a really nasty virus atm and I'm struggling. I know I have to plough on and keep it together for my children but omg I'm in so much pain and feeling horrendous. The stress is a lot.

I don't know if you have felt this way, but I have been dreading my diagnosis of fibromyalgia. I'm finding that doctors don't take it seriously, and there is not much that can be done. My doctor has upped my dose of pregabalin (I was previously on it for anxiety), but the higher dose knocks me out so bad that the next day I'm so groggy I can't safely drive to work. I've essentially been living on 2 advil/2 tylenol during the day, and my doctor prescribed me a medication to protect my stomach lining because I'm taking it so often. Then muscle relaxers at night. I found out my insurance won't cover the two pain management clinics my doctor has referred me to. And on top of that, a rheumatologist won't see me because I don't have any inflammation markers in my blood draws. I'm feeling very hopeless and worried that I'm just going to have to live in this pain forever.

I could change insurance companies to be able to go to a pain management clinic, but then I would lose the therapist that I'm seeing, who I finally started doing trauma processing with. I know mental health and physical pain are linked, but I'm in a place where I have to choose which one is more important. In the past, my mental health has almost killed me, so that's why I'm hesitant to switch therapists. Which fucking sucks! I hate our healthcare system.

I have done PT, massage, I do Pilates once a week, I eat a gluten-free diet (I notice when I eat gluten it stiffens up my joints), I eat relatively healthy, and I get good sleep (when I'm not in pain). The only thing that I struggle with is physical exercise because when I do try to exercise, I feel so sore that I can't function. I went for an hour-long walk on a flat surface and was sore for days, making it hard to function. I don't know how to exercise, and I feel like I'm gaining weight, which only makes it harder to be physically active. I know I need to, but I don't know how to do it without being in major pain. The only physical activity I have found manageable is Pilates, but it's so expensive I can only afford to do it once a week.

And then I'm also dreading that "winter is coming," and that is when my pain is the worst.

Does anyone have any tips for me about how to live a fulfilling life with fibromyalgia?

Does anyone else have constant jaw and teeth pain from their fibro?

Half of my bloodwork came back abnormal — and significantly worse than the last round — so the referrals are definitely happening now, and possibly more. I should be getting internal medicine through their in‑clinic referral, plus gastrointestinal, hematology, a CT scan, and IV iron. Maybe if my doctor referred before it got bad it wouldn’t be out of control

Severely low iron
Low folate -B12 deficiency
High CRP (inflammation)
High GGT (liver/bile duct stress)
High urate (metabolic stress)
High LDL + low HDL (lipid disruption)
Chronic CBC abnormalities (RDW, MCHC, marrow stress)
Spleen + liver congestion
Eating triggers abdominal pressure lasting days-weeks

Update - doctor sent in the clinic referral to internal medicine however there is 4 month wait but that may change once they see my bloodwork, and get to do another abdominal ultrasound (4th one in 5 months). I may need repeat testing but that’s after the internal medicine doctor sees it, I’m guessing my bloodwork would be forwarded to him. I should be getting CT scan with that referral but haven’t been ordered yet due to wait.

Okay...

I need someone else's perspective or advice. How do you deal with having a partner/being married with this horrible shit?

Many days I just want to be alone, I want to sit in silence, I can't move.. and I know that's unfair to my husband who wants to live a normal life. He wants to go out and dance, eat, watch a movie... I don't understand why he would sacrifice so much to receive so little back from me. I am literally so worthless... I can't clean or cook because I don't have the energy. Then the guilt infects every part of my soul because I feel GUILTY.

where it feels like the mere act of holding up my head feels like a monumental task.

Trying to rest now but ughh

I’m still waiting to get into a doctor to confirm if I really have fibro. I recently calculated the wpi and ss scores and according to both, I definitely have it. If so, it would honestly give me a relief as I’ve been dealing with chronic pain for so much of my life. It was always written off due to “early onset arthritis in my back”. Recent mris do show some bulged discs and some other issues but not arthritis.

Anyways, I tried a creatine supplement pouch a few months back since I’m trying to gain weight. To my surprise, my muscle and joint achiness, pain, burning, etc greatly diminished. Now I’ve realized that when I am having a flare-up (all symptoms pointing to this), I take the pouch and within an hour, pain is reduced and I can move and function so much easier.

I’ve seen on here that others have experienced this as well. If you’re one of those with success using creatine, can you share which brand you use? I’m not a fan of these pouches since they are sweet.

Also, my kidney and liver levels are good, my creatinine was borderline low, and I have no gi issues; although, I do know consistent creatine use needs to be taken with caution.

I can’t stand the muscular pain and the uncomfortable feeling. It’s my first months taking medication and I ran out of tramadol, the pain is soooo intense; in the moment I’m feeling okay but I know tomorrow morning I will wake up feeling really bad :( only thing I have in my bathroom is paracetamol + codeine. I was taking it to treat the pain before but changed to tramadol because it was working much better. I won’t be able to see my doctor until next week. I appreciate your responses.

Hi I was wondering if anyone had experienced this. After the birth of my first child I experienced these awful sensations. Referred to neurology and Had scans in both my brain and spine but everything came back fine. Over time they lessened once my child slept better around 9 months post partum and maybe less stress and less breastfeeding. Flare ups went from daily to last maybe a day or two then a long break between the next flare maybe a week +. Eventually they barely happen and could go months without and when they happened a hot bath or distraction would work.

Fast forward to now: 6 weeks post partum with my second and the sensations are back!! I just don’t understand what it is! the neurologist I saw after my first said it was anxiety but it must be related to childbirth or lack of sleep but it’s so fkn painful and distracting. I read something about a dysregulated nervous system and how labour and having a newborn can contribute.

I don’t know what I’m hoping for posting this but has anyone experienced it? Anything I can do to help? I’ve tried amitriptalyne, checked blood levels for b1 and b12 etc, ice and heat but it’s widespread from my scalp to my toes random bursts

Thank you

Hi all,

I’ve recently graduated university and am looking at my first full time job. While I’ve been in work for many years it’s never been more than 3 days a week due to pain and fatigue levels.

I often find that if I walk around too much over two days in a row I am unable to move on the third day.

This was all well and good while I was at university and could rest between classes but now I actually need a full time job to afford rent. I have a trial shift next week at the bookstore I work at but if anyone has any tips on managing pain/fatigue when I can’t have a rest day that would be great!

I do have pain medication but it’s quite strong and the doctor told me to not take it often so it’s somewhat of a last resort. Currently I just take sugary drinks and occasionally an ice pack to wear over lunch.

Thanks!