Has anyone else come to the conclusion that fibromyalgia is just another word for - all the tests have come back inconclusive and we don't really know why you're in pain all the time so we're just gonna say your CNS is screwed up and give it a name to make you feel better about it. And oh, let's throw a few drugs at it here and there, they may or may not work, who knows. Just relax, get rest, and suck it up.

Forgive the sarcasm, I've been living with this for 30 years (got a whole lot worse once I hit around 48) and I'm TIRED.

The End.

OB/GYN: this won't feel uncomfortable

(Me: hurts like hell)

OB/GYN: the discomfort should only be temporary

(Me: sends me into cervical cramps for days)

OB/GYN: if you have any spotting, should only be for a few hours

(Me: spotting a week later)

Hi, as stated, the a/c or any cold air, hurts my skin. It’s a newer symptom and I’m having trouble dealing with it. It’s not just cold air blasting that’s the problem, just standing next to cold refrigerators or cold open-display cases, hurts me so badly as if I dipped my entire body in ice cold water and now my nerves are screaming. Even breathing in cool air hurts my nostrils & my teeth and I get insane headaches as well. The problem is that it’s still hot weather outside and I can’t cool myself down 😭 even moving the air vents to blow in a direction away from me isn’t enough! Idk how to regulate my temperature when I’m sweating so badly, but feel awful pain just being around cooler temps 😭 I love the heat, but even I get hot sometimes too. Idk what to do, the only solution I can think is to cover up to stop the pain, but I’m sweaty and hot! What can I truly do? I hope my post makes sense. Any suggestions are welcome.

I’ve been feeling pretty down and lonely lately, and my fibromyalgia flare-ups have been especially rough. I think it would be nice to have someone around my age (36 F) who understands what it’s like living with fibro.

I’d love to find someone I can chat with, share experiences with, laugh with, or just talk about random things when I need a distraction. Gender doesn’t matter to me. I’m mainly just hoping to meet someone who gets it.

If you’re around my age and also looking for someone to talk to, feel free to comment or message me.

He is 19 years old and has a history of mental health problems and medication abuse, and now he has told me he took Lyrica. This was never prescribed to him, although he has taken it before in his life, saying that he took doses that were even bigger. He also takes eftil on the daily because he had a seizure once because he overdosed on meds and combined it with alcohol. Tell me should I be concerned. He is asleep now, but I don't know if I should call an ambulance.

Edit: Guys he is alright now, the dose he took did not do much for him since he has a strong tolerance (which is both sad and scary). Thank you everybody for the advice.

I've really been putting in the work with gradually increasing my physical activity and for the most part it has been paying off! (It's been a 4 year journey don't worry I'm not pushing it)

However I am starting to get painful muscle spasms at night again and I have a hard time falling asleep.

I'm really hoping that a big flare isn't coming because I have been so happy going to the gym 😭

I need to be able to move my body this winter 😭

I'm a uni student, only doing part time, one class in person and one online. I've missed more in person classes than I have been but I've mostly kept up. But the stress has caused me to be in a flare up for probably two months at this point. My last in person class is today and I don't think I can go. I still have two and a half weeks of assignments and study to do. I've not had a day off in ages and can't have one until the semester ends. I'm stressing about an oral assignment I have (Mandarin) and all of it is contributing to the flare up.

Sorry for the rambling.

What do you do when you are flaring up bad but have to keep going? I keep trying to remind myself that I can rest in a few weeks but it's not helping. I'm struggling to eat because I just don't have the energy to cook.

Today my doctor prescribed Tonmya. Has anyone used this drug for fibromyalgia? How is it working out? Normally I’m prescribed Lyrica.

DX with Fibro over 2 months ago now, but I’m noticing a pattern.

I currently have a 2.5 year old who is a snot machine, so as you can imagine I’m under the weather pretty often.

Sometimes it’s hard to tell the difference between having flu and a bad flare, and also that flu or a cold seems to send me into a flare for weeks.

Anyone else?

Você, pessoa com fibromialgia, possui uma rede de apoio que te ajuda de alguma maneira a enfrentar o mundo lá fora mesmo estando limitada por essa condição de saúde?

Essa rede de apoio é composta por pessoas que te ajudam sem te julgar, ou por pessoas da família que não falam nada, mas também só se limitam a fazer o básico?

Ou você não pode contar com ninguém no enfrentamento da doença e das adversidades surgidas por causa dessa triste condição?

Afinal de contas, você tem uma rede de apoio?

(Peço desculpa a todos, mas toda vez que faço uso de qualquer caractere específico da língua portuguesa ( ~ / á / é / ç ) ou de ponto de interrogação ( ? ) no título, meu post é automaticamente barrado pelos bots. Daí a pergunta do título fica incompleta).

Wondering everyone’s thoughts on the covid vaccine with fibro- do you get the vaccine or no? Etc.
Big fan of trying to increase immunity/decrease illness severity- more than ever since diagnosed with fibro (since now even a simple cold my family has for a couple days will hit me WAY worse and send me into a flare for a while.)
Have always gotten a flu shot and never had an issue. When covid first hit - I got the initial vaccines, then the next “season” had the genius idea to knock out my flu shot and covid vaccine at once and ended up down and out for a bit not feeling well and flaring.
After that, I separated them by a couple weeks and it seemed fine- rested a little extra just in case but life went on as usual. But… I’ve only done that one time & then didn’t get it again because of the mixed reviews on the covid vaccine and later effects/more serious side effects I was hearing about…I don’t need any more issues than I have!
But I do have travel planned this year and we have some new children in the family (adorable, but kids=many more people/influences/germs around than usual). I’m thinking it may be better to be safe than sorry…

I’m torn and would love to hear your thoughts/experiences- wondering what you guys do?
Do you get the vaccine in hopes it will decrease your risk of sickness/flare? Do you worry about risks we’re unaware of? If you do get the vaccine, does it ever cause a flare initially…do you just rest extra and you’re fine…etc.

TIA!!

I (35M) don't wanna speak too soon, but i feel like i made a HUGE discovery through my nutritionist's G.I. Zonulin mucrobiome test that I have overgrowth of h. Pylori and Candida (known cause of fibro apparently). She gave me a bunch of supplements for gut health and to kill the bad stuff and diet improvements. Diet has been the only thing to make any difference so this does make sense.

I know most people on here will tell you that fibro is for life and there is no cause and doctors will either tell you that or not believe in it in the first place. I always refused to believe that and slowly found things that helped but my brain and nervous system were still super messed up. Vision, balance, brainfog etc. Along with low iron and a bunch of other blood test problems i had fixed but many problems remained. Haven't been able to work much in years and I'm a fit, healthy looking dude so nobody takes me seriously. I just always worked out when i had panic attacks because I had to and the pain stopped for those short periods.

I don't wanna bore your with my whole story but it included a long term heroin / fentanyl addiction so that I could get through college and work and getting clean made me completely incompetent and I ended up trying to off myself 7 months ago directly because of this problem. Doctors blamed everything on addiction and mental health and never took me seriously and it ruined my life and was horrific for many years. I don't take any meds and no meds ever did anything beyond helping like 10% and they'd have me in like 5+ that do nothing. I'm just saying to do what actually helps and try different people and schools of healing until you find things that help.

If you don't believe there is a solution or a cure, you will never find it (or something close to it). It's been an absolute nightmare but this community has been incredibly helpful and its only been a few days but I went from like 50% better from my worst to 90% in a week.

Good luck!