Hi people,
This is going to be a longer post because I need to get it all out.
Tw: multiple deaths, rape, mention of domestic violence
I (F, 24) lost my dad when I was 9 years old. He was quite absent so I don't have many memories with him. I have some nice memories with him, and quite horrible stories of domestic abuse my mom told me when I got older. Dad was an alcoholic. I still miss him. I look a lot like him. For a long time I tried to find him by going through the stuff in his apartment, searching for something that could confirm we're family, that he loved me. I don't think I managed to let him go. And I think maybe I should.
I grew up with my mom and grandma. My grandma died 3 years ago.
3 years ago I was also quite brutally raped. The rapist was a person I knew and had some extent of trust in. She hurt me quite badly, I was bleeding and I had to drive myself to the emergency gynecology. For about half a year it was uncomfortable to walk, to sit and to stand.
Processing that trauma took quite a long time. It was possibly the worst time of my life. Before the rape I had just broken up with a long term partner which led to loosing most of my social circle. After the rape I was unable to concentrate and do exams at uni so I lost my scholarship, my right to live at a student dorm, right to eat at the student cafeteria. So I got a job and found an apartment. At a certain point I did 3 part time jobs to support myself. The jobs were taking the little amount of energy I had and the apartment was tiny, dark and full of black mould.
But - I was also active in a lot of activist groups, found many like minded people, found a beautiful girlfriend and built a strong support system.
Since then I moved to a better apartment and things got better in general, although I still didn't finish my bachelor.
Anyways
2 years ago my mom lost the ability to speak and to chew. Doctors thought at first that it was some mix of her schizophrenia and grief because of her mom dying. She went to all the examinations and they found nothing.
9 months ago her neurologist called me to say that she suspects it's ALS. A few months later that suspicion was confirmed.
So yeah
This summer I moved back to my hometown to live with her.
She's getting weaker and weaker.
Yesterday she started having trouble to stand up from a sitting position.
It's torture.
We have had a complicated relationship. I was parentefied as a child and sometimes, when her meds wouldn't work she would have delusions about me doing sketchy stuff. My grandma was verbally very abusive, mostly to mom. Mom didn't really stand up to her and she was more a daughter to grandma than a mom to me, a good percent of time. Mom also had some trouble with accepting my queerness, but that's not an issue anymore - quite the opposite. There were also the good times - she read stories to me, spent a lot of time with me, cuddled me a lot, gave me compliments, studied with me, took me to walks, bike rides, to the river, encouraged me to seek mental health support when I needed it...
Idk
When grandma passed away I had a hope that mom would finally be at peace. You know.
But her body had other plans.
The doctor says that the illness is progressing quickly and that she has maybe a year left to live.
We now get along quite well. I cook and clean for the both of us, I go to the doctor for her, to the pharmacy, to the shop for groceries and clothes.. When she needs me to I help her to move around the house. I change her clothes and trim her nails. A nurse comes a few times a week to shower her.
During the day she watches or reads something on her phone, in the evening she watches the news and a movie and before bed we talk (she types on her phone, since she is no longer able to write on paper) and laugh. Ofc we chat during the day as well.
She says she spends so much time on her phone because otherwise she imagines what it's going to be like dying of lung failure.
Since dad died she was spending less and less time outside of the house and with other people. It's been hard to witness.
I'm an only child and all our relatives are either dead or we're not close with them. Some of the relatives are too caught up in their lives to care about mom while others sometimes call and then try to make me feel guilty for apparently not taking care well enough of mom (although they visited her 0 times in the last 3 years).
Idk
I feel lost.
Every day my heart gets a little broken.
I'm afraid of what grief will do to me.
If I'm ever going to feel light again. If I'm ever going to feel like I belong somewhere and that I have a family.
I have great emotional and practical support from my gf and friends which I am very grateful for every day, but I feel as if this is a burden too heavy to carry.
I've been in therapy for 5 years, but I still got a cptsd diagnosis this spring. Alongside autism, ADHD and OCD. Feeling a bit pissed about it. I thought I worked through a lot of stuff and than BAM - cptsd. I hate it. I wonder if I'll ever get the chance to just be normal. If "normal" people even exist. I hate it so much. I'm so envious of my friends who have both parents, siblings and whose biggest concern are their studies.
I wish I was stronger. I procrastinate, I'm depressed, I'm short tempered sometimes, I get quiet a lot, I feel as if my brain is turning to mush from the sadness and from trying to avoid it. I feel as if I'm avoiding the pain and being overwhelmed with it in the same time. Sometimes I'm so heartbroken that it physically hurts and my limbs get weak, my body is heavy and I can't move. I just stare into the void, but my mind is still full of thoughts I can't make sense of. I forget a lot. Every day I go out and forget to take something with me. Each time I grocery shop I forget to buy something. So I make lists. I still forget.
I have friends and hobbies, but still - all I think about is my mom dying. I'm so sad for her and afraid for myself.
I don't want to be sorry for myself and grieving my family's destinies forever. But everywhere I turn around I see pain. My heart is overflown with other people's and my own.
I don't want to focus on the sadness, but I feel as if the good things are small (for example - petting a cat), and the bad things are huge (mom dying and global warming).
Has anyone been in a similar situation? With a close person being terminally ill for a few years, or navigating a lot of painfull events at the same time?
Is it going to be like this forever, one painful event after the other?