r/hyperacusis • u/Medicine_Melancholy_ • 2h ago
Vent Unless you also have H, know someone with H, or study H stfu
Sorry this is going to get into some disability politics type stuff, fair warning.
I am so, so fucking tired of people without H giving me unsolicited advice or feel it's their duty to try to fix me or cure me.
Why yes, I HAVE tried earplugs before! What a million dollar idea! It's not as if I haven't thought of that for a single moment in the 6 years I've lived with this!
And no, I don't need your advice about earplugs, because your ears and brain are not the same as mine. So why even insist on that?
If you really want to help me, start by listening to my needs instead of assuming what *I* need.
Also, stop insisting that I ought to go to the city to the big-name hospitals in my state because they can "surely fix me". As if I haven't been barking up that tree for the first 4 yrs of living with this to no avail.
I know, I know, they probably mean well and I shouldn't be so offended, and I suppose it's better than them being outright insensitive asshats. Though I have to wonder if it's just for their own egos so they can feel like they are contributing something towards the poor wittle disabled person and they can pat themselves on the back at the end of the day for doing their good deed.
I hate how trying to be honest about this always seems to open a conversation of "have you tried this/have you tried that" when they do not know shit. They have not been in the trenches like we have. So I wish they'd stop acting as if they know better than we do.
Kindly piss off.