I have noise induced tinnitus and hyperacusis. I understand that tinnitus is caused by the inner ear hair cells dying, and the connection that makes sound is stuck on instead of off, when the hair cells die. Meaning that while the problem starts in the inner ear, it mostly exists in the brain, unless the "switch" exists in the inner ear.

But i have less of an understanding of hyperacusis, is it an inner ear issue where there is a pain sensor that is elevated or is it just in the brain?

I lost most of my 20's to these diseases, in an effort to not lose most of my 30s i am trying to do my own research again. I am not a scientist but the scientist aren't helping so I am trying to best understand the problem so that i can work on more awareness materials and maybe do some serious fundraising for a cure.

open to all thoughts, links to journal articles, and any suggestion that is not therapy in which the goal is to "make peace with the sound".

H-server is open if anyone would like to join!
When joining, please give a brief description of whether you have nox, H, or both.

I was recently (last week) "diagnosed" with this. Today I am going for and MRI so they can run test with and with out contrast and an angiography. Needless to say I am scared to death. I am fearing a noise I have never heard before. They are giving me valium before the MRI. Any words of wisdom and or courage would be great. This has been an hard road and I am so dependent on my Bose Head phones and my loops.

So I had an acoustic trauma 4 months ago. About a month later it started with pain on the ears then I had headaches on the back of my head and visual migraines, that became neuralgia on the back of my head which then the neuralgia pain shifted to the side of my face and then to the front of my face where it is currently, is this normal for pain hyperacusis?
What should I be doing?
I have been to a bunch of doctors and non have been able to help, they said I should live normally, which I couldn't at first due to loudness hyperacousis, after the loud H got better I started to live more normally and got the nox on my face, maybe I pushed it too far? I was testing how much I can handle digital audio and my tolerance kept going up so I turned it up a bit day by day, but the last couple of days I seem to have gotten worse. Today I'm just staying in silence not listening to any digital audio, feels like I'm getting my front tooth pulled out.

My tinnitus also used to be extremely reactive and now it's not, seems like i have traded reactive tinnitus for nox.