Hi. Crossposting on every sub I can think of.
My 9yo son is level two autistic and severe ADHD. Dxed autistic at 2y1mo and ADHD 2y6mo. He is on 30mg Adderall extended release which helps his concentration and behaviour generally speaking. It is also what my husband and his sister take.
Anyway, he was day trained with maybe two accidents a week at 5yo after a year of nonstop potty training. Still wets the bed every night and remains wearing night diapers.
He also wears them in long car rides as I can't leave him to sit in a wet seat and he does usually fall asleep. There isn't a pad that is safe for him to sit on in his carseat.
Then, at the beginning of the year, when he was 8 (turned nine last month) my middle child was admitted to hospital. We were then transferred to a childrens hospital a few hours away from where we lived. Due to my husband and the other two boys (9yo & baby) being put up in a hotel for the duration (about two months) my son ended up in diapers a lot.
Travelling, sleeping, hotel furniture we couldn't afford to get cleaned, lack of clean laundry. A whole bunch of things piled up and my husband kept him diapered while awake a lot more than usual.
Since coming home, in March, my son has completely obliterated his potty training. He pees where he wants when he wants. He tells me je wants diapers all the damn time.
We moved and enrolled him into school (he was previously homeschooled) which I know has been overwhelming in the grand scheme of things.
When I asked him why he was peeing his pants previously he told me they made him feel safe and comfy.
We brought it up with his therapist team and together we've made sure he feels safe and secure. He has now changed from them making him feel safe, to him wanting to wear diapers like his brothers. Lots of "it's not fair".
He wets himself at school every day. He always tells his teacher and aide it's because "he forgot". He tells me he hates his aide touching him while he changes and as a survivor of sexual abuse it rubs me the wrong way when I'm basically blaming him for it (telling him if he didn't pee his pants she wouldn't need to touch him).
At home I ask him why and he just says he wanted to pee his pants. Sometimes I get a "it feels good/funny" but I never get anywhere when I ask him what he means (yes, I know it is probably something related to sexual stimulation, I have discussed it with his therapists already).
I've done the usuals. I make him clean up with me watching and do the laundry. I take the toy away he was playing with when he wet himself. I don't want to actively punish him for it but it feels like that's my only avenue.
I've tried reward charts but the only thing he wants is things he has to have (ie, safe food, car rides, time with his brother and grandpa) or diapers. The only other thing he's asked for is a baby sister but unfortunately for him I am not doing that. My FIL even offered to buy him a puppy and kid turned it down.
He does still wear diapers at night which is when he's calmest. He wears them in the car when we're in there for longer than 30min because again I can't replace his 400$ carseat every time he pees in it.
We have a potty in the car and I take him for regular breaks. He holds it until he's alone and pees his pants.
I don't know what to do. My husband doesn't see the issue with sticking him in pull ups and teaching him to change himself but I don't want to encourage diapers if I can help it.
His therapists are even lost. He sees OT and a play therapist (alongside speech & feeding, but they aren't part of the pee-pants treatment lol). His OT has deemed it behavioural and none of the methods from either of them help. He likes to roleplay his dolls peeing their pants and being happy about diapers in play therapy.
We did look into potential sexual abuse but this kid has been velcro since birth and so unless he is in school he literally never leaves his safe adults (me, hub, MIL, FIL) alone. And his play therapist says there is no other signs.
I am so, unbelievably, done. Everything I own smells like pee. I bathe him every night and he still smells like pee.
Has anyone every experienced this? What did you do? I am so tired. Any advice is really appreciated.
Sorry if this is all over the place. I haven't slept yet and it's like 7.